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DOWN SYNDROME

DOWN SYNDROME. Definition. Associated with an intellectual disability caused by an extra chromosome. This takes place in chromosome 21. Also referred to as Trisomy 21. Severity can range from mild to severe. Characteristics. Short broad hands

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DOWN SYNDROME

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  1. DOWN SYNDROME

  2. Definition • Associated with an intellectual disability caused by an extra chromosome. • This takes place in chromosome 21. • Also referred to as Trisomy 21. • Severity can range from mild to severe.

  3. Characteristics • Short broad hands • Small oral cavity, results in protruding tongue. • Flat bridge nose • Hyper flexibility • Broad feet • Low set ears, short • Poor muscle tones • Slanting eyes • Heart defects • Susceptible to upper respiratory infections

  4. Key Issues For Social Workers • Know when intervention should start. • Know what programs are going to be most beneficial for the child. • Know what resources are available in your community. • Make sure the child gets on an IEP.

  5. Key Issues For Parents • Overwhelming • Stressful • Scary • Financial issues • Family issues

  6. Key Issues For Educators • Learn as much as you can about down syndrome. • Know what learning level the child is at. • Talk with the parents to learn as much as you can about the child. • Divide tasks into more manageable tasks. • Learn about the child’s talents and interests. • Inclusion

  7. Accommodations • Birth to 3 program • Speech and Language • IEP • Physical Therapy • Inclusion • Support

  8. Short Term Goals • Focus on the child’s deficits • State targeted deficit area • Achievable in less than one year • State goal in clear, concise language • Contain observable conditions • One for each deficit area • Identify all service providers

  9. Long Term Goals • Living and working independently • Achievable in a year or longer • Appropriate behaviors • Sees the future of the child through the parents and child’s eyes.

  10. Resources • Supporting the student with down syndrome in your class room http://www.dsawm.org/LinkClick.aspx?fileticket=EdUFKA910ek%3D&tabid=87 • National Down Syndrome Society http://www.ndss.org/ • Easter Seals of Wisconsin http://wi.easterseals.com/ • Waukesha School District http://www.waukesha.k12.wi.us/Programs/SpecialEducation.aspx • Down Syndrome Association of Wisconsin (dsaw) http://www.dsaw.org/

  11. Resources Continued… • Children’s Hospital of Wisconsin http://www.chw.org/display/PPF/DocID/33576/router.asp • Wisconsin Upside Down http://www.wiusd.org/resources-for-medical-professionals-educators-2/educator-programs • National Discrimination Center for Children with Disabilities http://nichcy.org/disability/specific/downsyndrome#def • Birth to 3 Program http://www.dhs.wisconsin.gov/children/birthto3/contacts/countycontacts.asp/ • Madison Area Down Syndrome Society http://www.madss.org/

  12. Bibliography • Van Gameren-Oosterom, H. M., Fekkes, M., Buitendijk, S. E., Mohangoo, A. D., Bruil, J., & van Wouwe, J. P. (2011). Development, problem behavior, and quality of life in a population based sample of eight-year-old children with Down syndrome. Plos ONE, 6(7), doi:10.1371/journal.pone.0021879

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