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Daughters & sons initiatives:. Empowering our Future from Invisible Pasts. WHO ARE Daughters & Sons?. “We are the Daughters & Sons of a parent(s) with a mental illness.” There are millions of us in the U.S. alone, young and old. (Birth through death).

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daughters sons initiatives

Daughters & sons initiatives:

Empowering our Future

from Invisible Pasts

who are daughters sons
WHO ARE Daughters & Sons?
  • “We are the Daughters & Sonsof a parent(s) with a mental illness.”
  • There are millions of us in the U.S. alone, young and old. (Birth through death).
  • Many of us care/advocate for our parents; some of us never lived with our parents; some of our parents have passed away.
  • Sometimes referred to as “Invisible Children” (“Hidden Victims”, “Invisible Children’s Projects”, funding streams, etc.)
slide3

Creative orientation

Tolerance of difference

Willingness to challenge the status quo

Emotional expressiveness

A sense of humor

Common Strengths of Daughters and Sons

Five “redemptive” characteristics (Strengths)

identified through Qualitative Analysis/ Interviews

by Heather Burack, MSW,

Daughter of a mother with SPMI, while doing

her Master of Social Work at Hunter College - CUNY

Child and Youth Mental Health Matters Congress - Vancouver May 2012

the daughters sons issue is a lifespan issue
The “Daughters & Sons” Issue is a lifespan issue…
  • Pre-natal, birth to three, childhood, adolescence/young adulthood, adulthood/aging
  • Through the eyes of a child: “When we were teased on the playground …’Ha, ha! Your mother cracked up!’…we raced home thinking she had been in a car accident…” Daughter, CT
  • Lasting scars: “Everyone has the attitude that if I am standing here today, I must have survived it all and thus be “over it”. But I am not over it, and WE as a group are not over it and we have work to do.” Daughter, CA
lifelong effects of childhood trauma
Lifelong effects of childhood trauma
  • ACE (Adverse Childhood Experiences) Study is ongoing collaborative research between the Centers for Disease Control and Prevention in Atlanta, GA, and Kaiser Permanente in San Diego, CA. Data gathered from over 17,000 middle-income participants continues to be analyzed; it reveals staggering proof of the health, social, and economic risks that result from childhood trauma. http://acestudy.org/home

ACE score questionnaire (#9): “Was a household member depressed or mentally ill, or did a household member attempt suicide?”

visibility barriers
Visibility barriers
  • Focus on ill parent/medical model
  • Children’s lack of power/voice
  • Funding streams
  • View that people living with mental illness aren’t parents (or shouldn’t be parents)
  • Lack of understanding of the big picture from systems (child welfare/mental health/courts/WHO/ACE)
  • Lack of research and data collection
  • Lack of interventions/evidence-based practices
what efforts do exist
What efforts do exist?
  • Support Groups:
    • Adult D&S: NYC, MN, PA (bi-monthly w/ sibs), TX
    • Young D&S: CT, etc.
    • Geriatric: Stasia-NYC (Geriatric MH Alliance)
    • 6-week workshop (Adult D&S) – PA
    • Parenting: Study of Internet Parenting Classes & In-Person Parenting Class (“Parenting Plus”) – PA
    • Other Resources: Michelle Sherman (MN) – Publications, Grant, Website, presentations, Veterans Parenting Tool Kit
systems change
Systems Change

MA: Joanne Nicholson, Ph.D.(Systems Change Manual) UMASS, Dartmouth

MI: Joanne Reibschleger, Ph.D. (Research, Social Media) Michigan State University

CT: Group of stakeholders working on DMHAS Policy on parenting, DCF, brochure for young adult parents with mental illness, etc. (includes researcher Daryn David, Ph.D.-Yale/PRCH)

NYC: Lawyers/other stakeholders meeting about custody loss issues/preserving families

Mental Health Association-NY, S.E. PA

other resources d s worldwide
Other Resources, & D&S worldwide
  • Other Resources: Websites, Blogs (The Crooked House-NM), Books, movies
  • D&S Worldwide:
    • Australia (COMIC, COPMI) (young caregivers)
    • UK (young caregivers)
    • Canada (young caregivers/parents0
    • Italy, France, Netherlands
    • D&S Initiative
    • Vancouver: 3rd World Conference (3 themes)
slide11

Resources created

Website

We created a Website

www.howstat.com./comic

Our aim was to make free information readily available

Under the auspices of the Mental Illness Fellowship of South Australia

Child and Youth Mental Health Matters Congress - Vancouver May 2012

slide12

Result of efforts

- as at 8 April 2012

Child and Youth Mental Health Matters Congress - Vancouver May 2012

supporting our family kit 4 000 hard copies were printed and distributed
Supporting Our Family Kit4,000 hard copies were printed and distributed

2002 First Version FREE DOWNLOAD Second Edition 2008

Child and Youth Mental Health Matters Congress - Vancouver May 2012

slide14

CANADA

IRELAND

SWEDEN

GERMANY

BASQUE COUNTY

ITALY MALTA

ENGLAND

USA

KOREA

MALDIVES

Australia and all of its states and territories

By using social networks and media we have

travelled and shared with others internationally.

Our first overseas presentation was New Zealand

and now we are here!

Adelaide

NEW ZEALAND

63

Child and Youth Mental Health Matters Congress - Vancouver May 2012

links
Links
  • Adult Children of Parents with Schizo-Affective and Other Mood Disorders: https://www.facebook.com/groups/35021114281/
  • Children of Parents with Mental Illness: https://www.facebook.com/groups/95113476577/
  • COMIC – Children of Mentally Ill Consumers/Parents: www.howstat.com/comic
  • Figlie e Figli di Pazienti Psichiatrici - Children of Mentally Ill Parents: https://www.facebook.com/groups/218565708168348/
  • Mia Madre E’ Bipolare: http://miamadrebipolare.blogspot.it/
  • The Crooked House Website: http://www.thecrookedhouse.org/
  • The Crooked House Blog/Forum: http://thecrookedhouseorg.blogspot.ca/

Child and Youth Mental Health Matters Congress - Vancouver May 2012

slide20
Daughters and Sons Vision

1. Expanded Research and Professional Education: Traditional research, concerning Daughters and Sons, has focused on the statistical likelihood that the individual would acquire their own psychiatric diagnosis, but, there is little knowledge about the environment in which the child was raised.

2. Young Children: Extended family, parents and professionals need to be trained and encouraged to talk to young Daughters and Sons about our parent's and our experiences, including our perception/identification with our parents.

3. Teens and Young Adults: As they transition into adulthood, Daughters and Sons may be at risk to abuse in relationships due to economic and social vulnerabilities, especially where prior resilience factors (social support, education, peer support, role modeling) have been weak or altogether absent.

Child and Youth Mental Health Matters Congress - Vancouver May 2012

slide21
Daughters and Sons Vision

4. Adults: We seek to support Daughters and Sons as caregivers, advocates, and co-survivors of mental illness in their relationships with parents and the health care system.

  • Advocacy for Parents with Psychiatric Disabilities: Parents with psychiatric disabilities should be intentionally supported in their parenting role as part of recovery planning and parenting should be recognized for its value in psychiatric rehabilitation.

Methods: Workshops, public speaking, creation of support groups, creating a collective effort that promotes policy and program innovations - leaving room for members’ individual creativity and talent.

Child and Youth Mental Health Matters Congress - Vancouver May 2012

next steps
Next steps:

Within NAMI:

Making resources available on the NAMI National website.

Create awareness at the affiliate level of these resources increasing the capacity to respond to families with these needs.

Building Daughters & Sons support groups

Nationally:

Building capacity for supported parenting programs is critical.

Your Voice is CRUCIAL!

questions discussion
QUEStions/discussion

Daughters and Sons Initiative

Cheri Bragg

cheri@dandsinitiative.org

(860) 841-6968