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This report explores the development and utilization of primary care data, emphasizing the need to identify potential customers and users, data sources, and methods to improve data accessibility and quality. Through literature reviews, interviews with NHS staff, and stakeholder workshops, the report highlights both the strengths and weaknesses of existing primary care data. Key recommendations include enhancing data collection practices, promoting analytical expertise, and ensuring that socio-economic and ethnic factors are considered to improve health services planning and clinical performance measurement.
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Developing the use of primary care data Dr Azeem Majeed University College London
DH review of primary care data • Identify potential customers & users of primary care data • Identify potential sources of data, including strengths & weaknesses • Increase awareness of how data can be used • Identify options for improving accessibility, quality and usefulness of data
Methods for carrying out review of primary care data • Literature review • Interviews with DH & NHS staff • Advice from academics & other experts • Workshop on primary care data • Comments on report
Why is primary care data needed? • Help clinicians provide care • Plan health services • Monitor targets • Measure clinical performance • Guide clinical decisions • Measure health service utilisation • Health services research & epidemiology
What data are available • Data collected IN primary care • Data collected ON primary care
Sources of primary care data • PRIMIS & MIQUEST • Primary care databases, e.g., GPRD, IMS Mediplus, DIN • PACT data • RCGP weekly returns service • PCG/T disease registers • Local & regional morbidity projects
Strengths of primary care data • Population based • Most contacts with NHS take place in primary care • Information on morbidity, treatment, outcomes & utilisation • Increasing number of practices now computerised
Weaknesses of primary care data • Often comes from volunteer practices & hence may not be representative • Quality & completeness of data recording varies widely • Lack of socio-economic & ethnic data • Collected for different objectives • Can be difficult & expensive to access
Key questions • How can awareness be increased among potential users? • Should addition of socio-economic & ethnic data be a priority • How can a balance be achieved between the need for local & national data • How can the NHS make use of developments in primary care IT & disease registers?
Key recommendations • Encourage development of PRIMIS • Accreditation scheme with quality standards • Make greater use of sources such as GPRD • Develop centres of analytical expertise • Ensure monitoring takes case-mix into account