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National Health Registers and TRINIS in KSRZIS

Robert Fialka Barbora Černá. National Health Registers and TRINIS in KSRZIS. Agenda. About KSRZIS What do w e do Registers in KSRZIS NROD Definition of Trinis operation Interconnection between TRINIS and other registers Our future plans. About KSRZIS.

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National Health Registers and TRINIS in KSRZIS

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  1. Robert Fialka Barbora Černá National Health Registers and TRINIS in KSRZIS

  2. Agenda • About KSRZIS • What do we do • Registers in KSRZIS • NROD • Definition of Trinis operation • Interconnection between TRINIS and other registers • Our future plans

  3. About KSRZIS • COORDINATIONAL CENTER FOR DEPARTMENTAL MEDICAL INFORMATION SYSTEMS • State organization directly controlled by the Ministry of Health • Established on January 2004 • Organization with 15 employees • Member of EHTEL • Netcards member • Ehealth competence center

  4. About KSRZIS • Implement and increase system security according to established standard 27000 • CSN ISO/IEC 27001 certification • CSN ISO/IEC 9001 certification • CSN ISO/IEC 20000 certifications (1&2) • ECDL certification

  5. What do we do • Perform the medical informatics related tasks of the Ministry of Health • Take care of the deployment, development and operationof registers specified by the Ministry of Health • we administrate about 24 strategic information systems including high specialized „life-support“ registers

  6. What do we do • Provide the medical information to medical staff and Ministry of Health • Execute experimental projects in conjunction with famous experts within the frame of public health • Cooperate with European registers • The European Association for Cardio-Thoracic Surgery (National Cardiosurgery Registry) • EIM ESHRE (National Registry of Assisted Reproduction) • Eurocare (National Registry of Oncological Diseases)

  7. Registers in KSRZIS • National Health Registers • Hygienic Registers • Specialized Health Information Systems • Hospital Infection Registry • Intensive Care Registry • Oculistic Registry

  8. Registers in KSRZIS • 7 National Health Registers • National Registry of Oncological Diseases • National Registry of Joint Replacements • National Registry of Cariovascular Intervention • National Cardiosurgery Registry • National Registry of Vascular Surgery • National Registry of people who refuse organ donations • National Registry of Assisted Reproduction

  9. Registers in KSRZIS • Data collecting in registers is mandatory since 2004 • NOR data collected since 1951 (the oldest data from 1933) • NKR 70% of institutions was able to collect data even from 1998 (some of them from 1993)

  10. Registers in KSRZIS • 14 Hygienic Registers • Registry of Tuberculosis • Registry of Venereal Disease • Registry of Acute Respiratory Infections • Registry of Drinking Water • Registry of Chemical Substances…

  11. NROD • NROD - National Registry of people who refuse organ donations (post mortem) • all citizens are donnors except people who are in the register • every donnor must be checked in NROD before every transplant operation • 24x7 availability • in case of a system outage offline solution with current data is available • nonstop oncall support

  12. NROD

  13. NROD

  14. NROD

  15. Definition of TRINIS operation • Integrated System of Transplantation Registers • 24x7 coverage • Nonstop technical and users support • 30 minutes response time • 2 hours resolution time

  16. Interconnection between TRINIS and other registers • Trinis acquires data from the following registers: • National Registry of Oncological Diseases • National Registry of Joint Replacements • National Registry of Cariovascular Intervention • National Cardiosurgery Registry • National Registry of Vascular Surgery • Registry of Tuberculosis • Registry of Venereal Disease

  17. Interconnection between TRINIS and other registers • Trinis operator gathers data with the aid of special application called „kukátko“ • fill in a personal number of the donor • information yes x no • detailed information is provided by a shift KSRZIS operator

  18. Interconnection between TRINIS and other registers

  19. Interconnection between TRINIS and other registers

  20. Interconnection between TRINIS and other registers • Which kind of data can be provided from the registers? • data from the National Register of Oncological Diseases • since 1951 • complete and quality • validation is executed by experienced nurses • there are 2 parts of the paper form - diagnostic - therapeutic

  21. Interconnection between TRINIS and other registers • Information about • a diagnosis • an anamnesis • a cancer (a range, a stage) • a way of a cancer diagnostic • smoker or no smoker

  22. Interconnection between TRINIS and other registers

  23. Interconnection between TRINIS and other registers • Information about consecutive therapy • - operation • - radiotherapy • - chemotherapy • - hormonaltherapy • - other therapy

  24. Interconnection between TRINIS and other registers

  25. Interconnection between TRINIS and other registers • Information about patient from the NKR • a previous heart operation • abuse of a tabac • diabetes mellitus • hypertension • dyslipidemias

  26. Interconnection between TRINIS and other registers

  27. Interconnection between TRINIS and other registers • Information about the heart operation from the NKR • about the CABG • surgery on valves • other surgeries like a congenital defect • postoperative complication • more than 110 data

  28. Interconnection between TRINIS and other registers

  29. Interconnection between TRINIS and other registers • Information from the TBC register • a date of diagnosis • a risk factors (HIV, a drug-user,…) • subsidiary illnesses (diabetes mellitus, ...)

  30. Interconnection between TRINIS and other registers

  31. Our future plans • Select a data from registers which are important for the transplantation • Provide this data directly to a KST operator as an well-arranged list

  32. Comments, questions…?

  33. Thank you for your attention

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