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AUCD and the LEND Program

AUCD and the LEND Program. Fred Palmer, MD and George Jesien, PhD Waisman Center – Registry Meeting June 29, 2007. Three National Networks. Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Programs: 35

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AUCD and the LEND Program

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  1. AUCD and the LEND Program Fred Palmer, MD and George Jesien, PhD Waisman Center – Registry Meeting June 29, 2007

  2. Three National Networks

  3. Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Programs: 35 University Centers for Excellence in Developmental Disabilities (UCEDDs): 67Formerly University Affiliated Programs (UAPs) Developmental Disabilities Research Centers (DDRCs): 21 AUCD Represents and Supports Three National Networks

  4. Leadership Education in Neurodevelopmental Disabilities

  5. LEND Network

  6. Leadership Education in Neurodevelopment and Related Disabilities (LEND) Programs • Funded by the MCHB and work directly with State Title V Agencies • Ensure health care professionals have the necessary leadership skills and most current knowledge • Provide a range of interdisciplinary clinical services at university & community settings • Address the unique needs of children with special health care needs & their families • Promote cultural competency, family-based care and interdisciplinary partnerships.

  7. Audiology Genetics Health Administration Nursing Nutrition Occupational Therapy Pediatrics Pediatric Dentistry Physical Therapy Psychology Social Work Special Education Speech & Language Parents and consumers Faculty and students are drawn from 13 core disciplines

  8. National Information Retrieval System (NIRS) • Web-based network wide database • Trainee data and follow-up survey • Products • Projects • Technical Assistance Activities • Tied into performance measures

  9. Clinical Services & Training (FY05) • 62,147 clients seen in Center Clinics & Services • 22% minorities • 146,810 served in the community • 24% minorities • Nearly 2,000 interdisciplinary long-term trainees

  10. SSA/AUCD: A National Collaboration

  11. Pediatric Medical Units • Help adjudicators make good decisions as early as possible in the process • Improve timeliness,& efficiency of childhood determinations • Employ interdisciplinary teams to review case and targeted assessments as needed

  12. PMU Locations • Boling Center for Developmental Disabilities, U of Tennessee Health Science Center - Memphis, TN • Center for Disabilities & Development, U of Iowa - Iowa City, IA • Center on Human Development & Disability, U of Washington LEND Program, - Seattle, WA • Institute for Community Inclusion, Children’s Hospital, U of Massachusetts - Boston, MA • JFK Partners, U of Colorado Health Sciences Center - Denver CO • Mailman Center for Child Development, U of Miami Miller School of Medicine - Miami, FL • Nisonger Center, Ohio State University - Columbus, OH    • University of Illinois UCE - Chicago, IL

  13. Record Review Report Template • Synthesize file evidence • Describe severity of impairments, especially functional limitations • Resolve inconsistencies and/or contradictions • Recommend additional evidence, if needed

  14. Project Evaluation • Central data collection • Password protected access • Anonymous case data: no identifiers • Sites enter data for each referral • Case characteristics • Secure on-line case reporting • SSA role • Track final case outcome

  15. www.aucd.org

  16. Thank You! www.aucd.org George Jesien, Ph.D. Executive Director gjesien@aucd.org Fred Palmer, MD, Director, Boling Center FPALMER@UTMEM1.UTMEM.EDU

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