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Learn about CCFA's successful educational initiatives, webcasts, cooking shows, camps, and professional programs in the fight against IBD. Discover the impact made by strategic planning, sponsorships, and patient engagement in 2003.
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CCFA Annual Meeting November 7, 2003 Betsy Myatt
Education Day is a dream come true • Fifth year of current program • Old program = 65 attendees • New program = grown to over 700 in 2003 • 50% of attendees are new to CCFA
CCFA Education Day defines keys to success • Connection/partnership of volunteers, staff, and funders • Strategic planning to take program into the future • Communication of the value of CCFA • Development of highest quality programs that fit patient needs
Webcasts far surpassed our dreams • Over 250,000 program views of all programs • Five currently running programs still gaining audiences • Open Dialogue on UC • Nutrition & IBD • Leading Edge Developments • Advocacy & Insurance • CME program – Current and Emerging Therapies
Many thanks to our sponsors • Procter & Gamble Pharmaceuticals • AstraZeneca • Solvay Pharmaceuticals • Centocor • Protein Design Labs
Exciting programs connected us with patients • E-Survey conducted in 2003 • 4,000 patients completed survey in 1 week • 65 questions • More surveys planned for 2004 • Cooking shows met patient needs • Medical overview • Cooking demo and samples • Q&A from audience
CCFA Cooking Shows have been sellouts in eight cities CITIESATTENDANCE • Seattle 130 participants • Cincinnati 100 • New York 92 • Houston 92 • St. Louis 57 • Dallas 150 • San Diego 150 • Detroit 400* 931
CCFA Camps Across America still growing • CCFA Camps Across America – 743 Kids at 14 camps • Kids corner of Web site planned • Updates of children’s brochures • Next Webcast – Children with IBD – coming soon
More planned for patients in 2004 • CCFA Cooking, compliance, and wellness pilot program, including • Live program • Webcast • Chapter modules • Nutrition introduced this week • Medical overview – in review by doctors
More planned for professionals in 2004 • Profession programs • Web-enabled clinical conversations • Web-based case study series with live rollouts • Sponsorship of 2-day symposium in fiscal 2004 with planning for 2005 and beyond • Professional section of CCFA.org designed by CCFA and NSAC Professional Education Committee
We’re making connections with each other through technology... • One consolidated database • Raiser’s Edge constituent relationship management system for 360º view of donors • Best practice processes – consistently used throughout the Foundation
Workgroups are looking at the way we do business • Starting with “AS IS” processes – what we’re doing today • Defining the “TO BE” processes – what we want to become
You must have dreams • CCFA’s Web site = the ultimate resource for patients and professionals in IBD • Consistent and efficient delivery of highest qualtiy programs • Getting in touch with patient needs and meeting those needs
You must have dreams • Sophisticated donor information so that we can secure funding for the ultimate dream– Research that will find a cure for Crohn’s disease an ulcerative colitis
To accomplish great things, we must dream as well as actAnatole France KEEP DREAMING