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CyberNephrology 2002 A Hands-On Training Program Presented at the Sindh Institute for Urology and Transplantation (SIUT) Karachi, Pakistan - October 2002 by Kim Solez, MD and Judy Tarselli, RN Contents : Getting Connected Exploring cyberNephrology

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cybernephrology 2002 a hands on training program

CyberNephrology 2002A Hands-On Training Program

Presented at the

Sindh Institute for Urology and Transplantation (SIUT)

Karachi, Pakistan - October 2002

by Kim Solez, MD and Judy Tarselli, RN

contents
Contents:
  • Getting Connected
  • Exploring cyberNephrology
  • Discussion Lists: Joining, Lurking, Participating
  • Rules and Netiquette
  • Live Help or Majordomo? (Majordomo: At your command!)
  • Searching the archives
  • Special Situations Viruses, Vacations, Unsubscribing
  • Using the Special Resources
  • cyberNephrology for your Colleagues, Staff and Patients
slide3

GETTING CONNECTED

Connections

  • Speed: Bandwidth - Modem, DSL, Cable
  • Cost: Flat rate, hourly/minute rate

Internet Service Provider

Anti-Virus Program

  • Preventive Medicine!
slide4

GETTING CONNECTED

URL:

www.cybernephrology.org

slide5

EXPLORING CYBERNEPHROLOGY

HOME PAGE:

  • EDUCATION
  • COMMUNICATION
  • NEW VISION
  • ABOUT
  • HOME
  • What’s New?
slide6

The e-mail Discussion Groups

It’s FREE!

It’s easy to join!

Join one group - or several!

slide7

The e-mail Discussion Groups

THE ORIGINAL GROUP AND ITS ADAPTATIONS

NEPHROL

The original discussion list! “Home of the Nephrolers and Nephronauts!” Physician-oriented, partially moderated for non-physician non-renal specialist members. (Research, publishers, etc.)

NEPHROL-Digest

“Digest” form

NEPHMIN

“Minimal” Stripped-down version of Nephrol-Digest with all repetition and North American-specific content removed

slide8

The e-mail Discussion Groups

MORE GROUPS FOR NEPHROLOGY PROFESSIONALS

NEPHBSCI: Nephrology Basic Science

NEPHCNPT: Discuss individual clinical nephrology cases

NEPHNPPT: Individual renal biopsy cases

NEPHJNL: Nephrology/Transplantation Journal Club

IFKF-L: International Federation of Kidney Foundations

NEPHDEVEL: Humanitarian Projects and ISN Sister Centres program

NEPHHIST: History of kidney medicine, ISN Video Legacy project interview transcripts

RENALPRO: Nephrology professionals: Nurses, Technicians, Dieticians, Social Workers, Administrators, Physicians, Engineers, etc.

RENALRD: Renal dieticians, renal nutrition

NEPHADMIN: Nephrology Administrators

slide9

The e-mail Discussion Groups

PROFESSIONAL GROUPS BASED ON LOCATION OR LANGUAGE

NEPHRONOL: Spanish-English discussion - nephrology subjects

ARABNEPHROL: Arab language - started in 2001, spectacular success!

ANNET: African Nephronet

NEPHINDIG: Renal disease in indigenous peoples

MDDIALYSIS: US dialysis unit directors

OTHER: AFFILIATED WEBSITES

www.cybernephrologie.org (French)

www.dialysis.ru (Russian)

slide10

1. Start an email message

2. Title - May be left blank

3. Body of Letter - Type the word “subscribe” followed

by the name of the discussion list you wish to join.

Example: subscribe nephrol

4. Type address: majordomo@ualberta.ca

5. Send the email message

JOINING A LIST (It’s easy and it’s free!)

slide11

How will you know you did it correctly?

CyberNephrology will send you:

  • WELCOME MESSAGE

Save or Print for future reference!

  • RULES
  • “The Do’s and Don’ts” of cyberNephrology
  • E-MAIL FROM YOUR DISCUSSION GROUP

Email will start to arrive as messages are posted.

Digest form will arrive once a day.

slide12

RULES AND “NETIQUETTE”

Some of the “DO’s”…..

  • Use appropriate title for subject when sending email
  • Use appropriate prefix on “Nephrol” mail
  • Use “Reply” only when addressing entire group
  • Use Majordomo command for “account” requests: (subcribe, unsubscribe, archives, list information, etc.)
  • Be patient with less experienced members!
  • Maintain professionalism!
  • Respect the different cultures within our global community and remember our common threads.
slide13

RULES AND “NETIQUETTE”

Some of the “DON’Ts”…..

  • Don’t send commercial messages to the group, or use the member list for distribution of commercial messages
  • Don’t send attachments unless well-described
  • Don’t open attachments unless sender is known
  • Don’t send personal replies to the entire list
  • Do not use auto-responses (ie: out of office messages)
  • No harassment or threats! (You will be immediately unsubscribed!)
slide14

RULES AND “NETIQUETTE”

If you need assistance, contact:

Kim.Solez@UAlberta.CA

or

Michele.Hales@UAlberta.CA

If you have any problems or complaints, contact:

Kim.Solez@UAlberta.CA

slide15
Joining the Discussion Lists

The Next Step: LURKING

cyberLurking: “To become a member of the group without making your presence immediately known.”

Please note:

Lurking is RECOMMENDED for new members!

  • Why? Because it allows you time to:
  • “get a feel” for the group
  • learn what types of messages are or aren’t appropriate for the list
  • Explore the resources and archives to learn about recent topics
slide16

And Finally!

PARTICIPATING IN THE DISCUSSION!

  • REPLYING TO A MESSAGE
  • WRITING A NEW MESSAGE
    • Addresses
    • Writing the message - content, quality
    • Subject titles: New messages, Change existing thread
    • Prefixes (Nephrol members)
  • REQUESTING A SPECIAL RESPONSE
  • YOUR SIGNATURE
slide17

REPLYING TO A MESSAGE

Use Reply, or type “Re:” in the subject field, followed by the name of the existing thread (string of messages)

(Digest members should type “Re:” followed by name of thread so it appears properly on your response.)

Do NOT send your reply to the entire list unless it is of general interest to the group! Non-informational messages such as “Thank you” or “Please fax that to me too” should be emailed only to the appropriate individual.)

CAUTION: Use of the “Reply” button is the most common cause of accidental mailings sent to the group. If you intend to reply ONLY to the author of a previous Nephrol message, do NOT use the “Reply” feature!

slide18
ADDRESSING A NEW MESSAGE

(to Nephrol - a partially moderated list)

Physicians specializing in Kidney, Urology, Renal Pathology and Transplant surgery and medicine may post directly to the list. Address for posting messages directly on Nephrol:

nephrol@majordamo.srv.ualberta.ca

Non-physician and non-specialist members are asked to submit messages to:

Kim.Solez@UAlberta.CA

slide19

WRITING A NEW MESSAGE

Remember… This is a global list!

Do not use proprietary brand names of drugs or abbreviations which would be unfamiliar to members in other countries.

This is also a highly specialized professional list!

Do not post questions that can be answered by readily available resources (ie: standard texts, literature searches)

slide20

“i hope you will avoid using the “ee cummings” poetry style of writing which does not capitalize any letters, and also try to avoid run-on sentences that never seem to end, or sentences that change topic in the middle of the sentence, and of course you should try to avoid messages that contain freqnt and lazy mispelngs because they only serv to frustrt and confse your readers!”

MAKE YOUR MESSAGE COMFORTALE TO READ!

“AND DON’T TYPE IN ALL CAPS BECAUSE IT IS AS RUDE AS SHOUTING IN A CONVERSATION!”

slide21
Make your message comfortable to read!
  • AVOID LENGTHY PARAGRAPHS
  • USE PROPER CAPITALIZATION AND PUNCTUATION.
  • PROOFREAD!

Spelling errors do occur but too many are distracting and could lead to errors in communication.

(Note: Spelling errors caused by a language barrier are generally forgiven!)

  • AVOID CHATTY CLUTTER!

Send “Thank you,” “I agree” and “Please fax that to me too” messages to the individual… Not to all 1500 people on the list!

slide22
CREATING A TITLE FOR MESSAGES

TITLES FOR NEW MESSAGES

  • Create informative title for “Subject” line
  • Make it brief, yet descriptive as possible
  • Will appear as email title - allows reader to choose whether to read or delete the message based on interest in subject, without having to open actual message.

CHANGING THE TITLE OF AN EXISTING THREAD

  • When topic of email conversations change, so should the titles!
  • Create an appropriate new title, followed by:

(was “old title”) on the subject line.

slide23

Nephrol members only!

Prefixes should be used before the title of ALL Nephrol messages. Example:

CN: Biopsy of Renal Mass

1. Allows busy members to determine general nature of each message at a glance so they can delete messages of low interest in the shortest time possible.

2. Messages that start with TX are automatically sent to Centerspan-L for added review and response by transplant specialists.

USE OF PREFIXES ON SUBJECT LINE (Nephrol)

slide24

Nephrol prefixes:

CN: Clinical Nephrology UC: Underdeveloped Countries

HD: Hemodialysis DS: Disasters

PD: Peritoneal Dialysis IP: Intellectual Property, Internet Publishing

HY: Hypertension TM: Telemedicine

TX: Transplantation MT: Meeting Announcements

NP: Nephropathology MW: Media Watch

PH: Physiology WWW: Worldwide Web resources

IM: Immunology CSN: Canadian Society of Nephrology

BI: Biochemistry LATF: Latin American Task Force

CB: Cell Biology JN: Jobs in Nephrology

AN: Anatomy JT: Jobs in Transplantation

ET: Ethics GEN: General Interest Messages

USE OF PREFIXES ON SUBJECT LINE (Nephrol)

slide25
REQUSTS FOR SPECIAL RESPONSE

NO RETURN RECEIPTS!

Do NOT send “return receipt” emails to the list! Creates unnecessary mailbox clutter for 1500 people!

DON’T CONTRIBUTE TO CLUTTER!

Ask for responses to be sent directly to your personal email address if the expected reply is not going to be of general interest to the group.

(Ex: If you write to Nephrol seeking contact information for a particular physician or clinic, remind members to respond to you OFFLIST at your address.)

slide26
YOUR SIGNATURE

Identify yourself!

Include name, title or position, workplace, etc.

Don’t attach an autobiography to routine emails!

Avoid excessively long signature attachments

slide27

NEED “LIVE HELP” OR “MAJORDOMO”?

(Majordomo = “cyberNephrology at your command!”)

Use Majordomo to:

  • Subscribe or Unsubscribe from discussion lists
  • Search archives (Get index, get files)
  • Find out what lists you are on
  • Get list of current Nephrol members
  • Retrieve Introductory Information
  • Find generic “help” messages
slide28

“MAJORDOMO”: cyberNephrology at your command!

How to use Majordomo:

  • Send your request in the BODY of an email message

Examples:

subscribe nephrol (to subscribe)

index nephrol (get list of available files)

  • No need for a “SUBJECT” title.

(Commands in “subject” line will NOT be processed!)

  • See cyberNephrology’s “Welcome Page” for more details about available commands
searching the archives
SEARCHING THE ARCHIVES

Type Majordamo command in body of email message:

index nephrol

Send to majordamo@ualberta.ca

When index is received and desired file is located, type another Majordamo command in the body of a new email message as follows:

get nephrol <file name>

slide30

SPECIAL SITUATIONS

  • COMPUTER VIRUS
  • Use antivirus software and updates on your computer
  • Do not open questionable or unexpected email attachments
  • Report any suspected virus activity to Kim Solez MD
  • VACATIONS
  • Subscription Options: Select with Majordomo Command!
  • - Subscribe to Nephrol-Digest (one email per day!)
  • - Unsubscribe before you leave, resubscribe upon return
  • Do NOT use autoreply while on Nephrol!
  • UNSUBSCRIBING
  • - Use Majordomo command in body of email
    • Ex: unsubscribe nephrol
cybernephrology
cyberNephrology
  • A worldwide SOURCE of INFORMATION
  • A worldwide DISCUSSION
  • A global COMMUNITY

All available at your fingertips!

“A Digital Resource”

Nephrology is the common thread.

“for Kidney Professionals”

“A Digital Resource for Kidney Professionals”

slide32

CYBERNEPHROLOGY FOR OTHERS

(Colleagues, Staff)

  • Nephrologists
  • Pathologists
  • Nurses
  • Renal Technicians
  • Pharmacists
  • Renal Dieticians
  • Social Workers
  • Administrators
  • Researchers
  • Students
slide33

CYBERNEPHROLOGY FOR OTHERS

(Colleagues, Staff)

  • Discussion Lists
  • Patient Education Materials
  • Online CME programs
  • Projects
  • Support research
  • “Virtual” Meetings
  • NetMeetings
  • Press releases
  • Clinical Practice Guidelines
slide34

The e-mail Discussion Groups

MORE GROUPS FOR NEPHROLOGY PROFESSIONALS

NEPHBSCI: Nephrology Basic Science

NEPHCNPT: Discuss individual clinical nephrology cases

NEPHNPPT: Individual renal biopsy cases

NEPHJNL: Nephrology/Transplantation Journal Club

IFKF-L: International Federation of Kidney Foundations

NEPHDEVEL: Humanitarian Projects and ISN Sister Centres program

NEPHHIST: History of kidney medicine, ISN Video Legacy project interview transcripts

RENALPRO: Nephrology professionals: Nurses, Technicians, Dieticians, Social Workers, Administrators, Physicians, Engineers, etc.

RENALRD: Renal dieticians, renal nutrition

NEPHADMIN: Nephrology Administrators

slide35

The e-mail Discussion Groups

PROFESSIONAL GROUPS BASED ON LOCATION OR LANGUAGE

NEPHRONOL: Spanish-English discussion - nephrology subjects

ARABNEPHROL: Arab language - started in 2001, spectacular success!

ANNET: African Nephronet

NEPHINDIG: Renal disease in indigenous peoples

MDDIALYSIS: US dialysis unit directors

OTHER: AFFILIATED WEBSITES

www.cybernephrologie.org (French)

www.dialysis.ru (Russian)

slide36
JOINING A LIST (It’s easy and it’s free!)

1. Start an email message

2. Title - May be left blank

3. Body of Letter - Type the word “subscribe” followed by the name of the discussion list you wish to join.

Example: subscribe renalrd

4. Type address: majordomo@ualberta.ca

5. Send the email message

slide37

CYBERNEPHROLOGY FOR OTHERS

(Patients and Families)

Public Education

Patient Support

Patient Discussion Lists

Support for Parents of Children with Kidney Disease

slide38

Patients: e-mail Discussion Groups

DISCUSSION LISTS AND INFOMATION FOR PATIENTS AND FAMILY

KIDNEYDISEASE: Adult patients with kidney disease. (This group now has 9 physician moderators and co-moderators answering questions!)

NEPHKIDS: Parents of children with kidney disease, also teen and young adult kidney patients (Sue Conley MD and Melissa Gregory MD)

IGAN: IgA Nephropathy

OTHER (CHECK WEBSITE FOR SUBSCRIPTION DETAILS)

DIALYSIS: Dialysis

PKD: Polycystic Kidney Disease

TRNSPLNT: Transplant patient discussion

slide40

Online texts and atlases

Nephrology, Pathology, Transplant

Examples:

Schrier’s Atlas of Diseases of the Kidney

AJKD: Atlas of Renal Pathology

slide41

Pathology Slides and Resources

Educational Slides on Renal Parenchymal Diseases and Hypertension

1. Digital Images from the slide collection of

Helmut Rennke, MD

2. Transplant Pathology Internet Services (TPIS)

related groups and initiatives cybernephrology plus
Related Groups and Initiatives“cyberNephrology Plus”
  • COMGAN
  • RenalTech
  • ISN: Video Legacy, Archives, Disaster Response
  • Banff Allograft Pathology Conference
  • HDCN (Hypertension, Dialysis & Clinical Nephrology)
  • CenterSpan (Amer Soc of Tx Surgeons - ASTS)
  • Educational Slides on Renal Parenchymal Diseases and Hypertension
related groups and initiatives
Related Groups and Initiatives
  • HDCN
  • Hypertension, Dialysis & Clinical Nephrology
  • www.hdcn.com
  • Editor & Director: John Daugirdas, MD
  • 3000 paid subscriptions
  • 28,000 people subscribe to weekly email update
  • Close cooperative relationship between HDCN and cyberNephrology
cybernephrology46
cyberNephrology

It’s more than just a website!

“A Digital Resource

for

Kidney Professionals”

where to get more information
Where to Get More Information
  • Visit www.cybernephrology.com
  • Contact Kim Solez MD or Michele Hales Kim.Solez@UAlberta.CA Michele.Hales@UAlberta.CA
your service center
Your “Service Center”

If you have questions, contact:

Kim Solez at: Kim.Solez@UAlberta.CA

or Michele Hales at: Michele.Hales@UAlberta.CA

If you have any problems or complaints, contact:

Kim Solez MD at: Kim.Solez@UAlberta.CA

If you’re not sure, contact:

Kim Solez MD at: Kim.Solez@UAlberta.CA

cybernephrology 2002 a digital resource for kidney professionals

CyberNephrology 2002A Digital Resource for Kidney Professionals

Use it as a resource in your own work!

Refer your colleagues and staff!

Refer your patients!

It’s more than just a website!