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Edinburgh Centre Update & Quality Markers 2010

Edinburgh Centre Update & Quality Markers 2010. Centre Update. Funding Extra £40,000 cut from 09/10 Calman forecast ~9% reduction in budget since 08/09 Pressures from Service LRP No recruitment drive. Centre Update. Key Priorities. Linking the Services’ 3 databases

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Edinburgh Centre Update & Quality Markers 2010

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  1. Edinburgh Centre Update & Quality Markers 2010

  2. Centre Update Funding • Extra £40,000 cut from 09/10 Calman forecast • ~9% reduction in budget since 08/09 • Pressures from Service • LRP • No recruitment drive

  3. Centre Update Key Priorities • Linking the Services’ 3 databases • Establish PGD for the North of England (SM) • Maximising efficiencies within the service

  4. Centre Update Electronic Working • Data/IT team linking db to TRAK (local) • 2011: work with IT to link db to CHI (national) • Single demographic table for the 3 depts • Streamlining and linking all the clinical dbs • Post clinic processing on-line e.g. outcomes, Ix tracking

  5. Centre Update Challenges • Finance • Staff sickness • NHSL clinical governance e.g. leaflets approved • Ever increasing external demands on service

  6. Quality Areas • Integration • Service Delivery • Clinical Governance • Access • Communication • Patient and Carer Experience

  7. Integration: Building links with lab dbs to record tests e.g. LD tests, predictive tests required Establish links with TRAK and the CHI db Service Delivery: Lothian skill mix recommendation: 3.75 WTE Consultants 7.5 WTE Counsellors Edinburgh: 2.9WTE Consultants+ honorary 5.3WTE Counsellors 2 WTE Genetic Support Workers + SGCN, NM, HD,Psychs, NBS Integration & Service Delivery

  8. Clinical Governance

  9. Access Issues New Ways - Routine referrals to consultation within 12 weeks (90%) • Stop the Clock Criteria • 1/4/2011 - Routine referrals to consultation within 9 weeks (90%)

  10. November 09 - October 10

  11. Equity Clinic Distribution:

  12. Other Services within the dept • Muscular Dystrophy: 408 active patients • SHAL 09-10: 178 clients, 37 new referrals • NM: • New referrals: 105, of which MDM: 31 • Number seen at peripheral clinics: 20

  13. Communication Letter sent w/in 2 weeks (90%) • Difficult to achieve with high sickness level within the admin team (11% ~ 1WTE) • Pressures on the team resulted in not asking to report this data as would be extra work right now • Urgent letters: ~1-2 weeks • Routine letters: 3 weeks • Longer delays mainly caused by clinician

  14. Patient and Carer Experience • Approved Questionnaire through Forum Subgroup – Summer 2010 • Issuing Patient survey to Departmental Clinics since 1/10/10 – no uncompleted returns • Overall positive results • Some issues to address: • “HD and LD pats sometimes have difficulty in understanding the questions and we have to try and explain it to them in a different way” • ? More targeted questions?

  15. Positive Feedback Overall I am very satisfied with the consultation. I am now better informed re my condition Lovely personable staff from arrival to actual consultation. Staff are a credit to the NHS Very thorough. Very friendly service which fully met my needs Great very personal and gave us plenty of time Consultant couldn’t have been more helpful and considerate Some things to consider… Didn’t receive a promised call back when clinic appointments released-felt like a bit of a lottery Not a lot of space for wheelchairs. Had a bit of trouble finding building. Map not clear Better to ask family to bring family tree info before hand Waiting time to appointment very long-would be an issue if concerned re serious problem I may have difficulty in booking an appointment if I worked due to the time restrictions.

  16. Felt very welcome. Dr Lam doing an amazing job. And the awards for best male and female go to…. Catriona Whyte had a pleasant/lovely manner and put me at ease.

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