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nightingale 121 Iona Street, Ottawa, Canada K1Y 3M1

Nightingale Research Foundation. www.nightingale.ca 121 Iona Street, Ottawa, Canada K1Y 3M1. Nightingale Research Foundation. How I Help M.E. & CFS Patients in Canada. The NIH/CDC Addendum to the CFS, 2010 Diagnostic Criteria. A minimum of tests should be performed;

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nightingale 121 Iona Street, Ottawa, Canada K1Y 3M1

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  1. Nightingale Research Foundation • www.nightingale.ca • 121 Iona Street, Ottawa, CanadaK1Y 3M1

  2. Nightingale Research Foundation • How I Help • M.E. & CFS • Patients in Canada

  3. The NIH/CDC Addendum to the CFS, 2010 Diagnostic Criteria • A minimum of tests should be performed; • Tests have no known value; and • Tests do not aid in diagnosis or management of the CFS patient.

  4. Royal Free Epidemic, London UK 1955-1957 • 255 MDs, Nurses & Staff became chronically ill in this epidemic, first to be called Myalgic Encephalomyelitis. All were hospitalized, some for months. • Psychiatrists, Beard & McEvedy, without examining a single patient, called this Mass Hysteria. The press gobbled it up.

  5. Psychiatrists Beard & McEvedy • In a case heard before Justice McPherson on June 26,1989, the Lawyer Mr. Beckman, referring to a patient, asked Psychiatrist Alfred Beard: • Mr. Beckman asked: • “Did you then examine him?” • Dr. Beard answered.“A Psychiatrist does not ordinarily conduct a physical examination.”

  6. Nightingale Research Foundation • It is obvious from these few words, that the NIH/CDC, like Beard and McEvedy, • believe that CFS is a Psychiatric disease. • Apparently, one does not have to examine patients as long as you consider them Psychiatric patients.

  7. The Official Interpretation of CFS • Lets be honest with ourselves… according to: • the NIH/CDC; • the Insurance Industry; and • 90% of the World’s Physicians • CFS is a Psychiatric manifestation.

  8. However, It Can Get Worse • Many Physicians and the public consider CFS to be a joke. • The Patient is then laughed at, or treated with contempt.

  9. No Examinations • Thanks to the NIH/CDC definitions that state CFS patients should not be examined, most CFS patients have never been systematically examined.

  10. Myalgic Encephalomyelitis • There is only ONE IMPORTANT CLUEin the diagnosis of M.E. And it is…

  11. M.E. Brain SPECT Image

  12. Coxsackie A34 Polio 1 Polio 3a Polio 3 Enterovirus 70 Polio 2 CFS Patient 16 CFS Patient 15 Primary Paralytic Branch Polio 2 Coxsackie A31 CFS Patient 14 CFS Patient 17 CFS Patient 13 CFS Patient 12 CFS Patient 18 Non CFS 7 CFS Patient 11 Coxsackie B4A CFS Patient 19 CFS Patient 10 CFS Patient 20 Echo 9 CFS Patient 9 Non CFS 1 Coxsackie B4 CFS Patient 8 Echo 11 Coxsackie B5 Echo 7 CFS Patient 7 Coxsackie A9 Non CFS 2 CFS Patient 6 Echo 20 Echo 3 CFS Patient 5 Echo 4 Primary CFS Branch Coxsackie B1 CFS Patient 4 Non CFS 3 Non CFS 6 CFS Patient 3 Non CFS 6 Non CFS 5 CFS Patient 1 CFS Patient 2 Coxsackie/ECHO Branch

  13. Significant Pathologies • Pain Syndromes • Arthritic Syndromes • Thyroid Pathology

  14. Significant Pain & Arthritic Pathologies • 100 % of 153 consecutive patients with significant pain syndromes had Measurable Arthritic Indicators.

  15. 100% of Our Chronic FMS PatientsHave These Associations!

  16. Thyroid Pathology • Employing Mayo Clinic guidelines, more than 50% of M.E. patients seen by Nightingale, had Atrophic Thyroid. • Only 23% of M.E. females had a normal Thyroid volume.

  17. Thyroid Volume of 153 Consecutive M.E/CFS Patients

  18. Some Significant Vascular Pathologies In Our Patients • Dysautonomias; • POTS (Postural Orthostatic Hypotension) • Raynaud’s Syndrome; • Decreased Circulating Blood Volume; • Viral Triggered, Ehlers Danlos Syndrome; • Partially Expressed Marfan Syndrome; • Multiple Arterial & Venous Clotting Defects; and • Abnormal Ach Mediated Vasodilator Pathway.

  19. Macroscopic VascularM.E. and CFS Anomalies • Missed Coronary Artery Disease; • Missed Cardiomyopathies; • Missed Aortic Pathologies; • Missed Carotid Artery Disease; • Missed CNS Arterial Pathologies; and • Drug Induced (NSAIDS) Arteritis.

  20. Thyroid Volume of 153 Consecutive M.E/CFS Patients

  21. Conclusions • The previous short list of Major Pathologies found routinely in CFS and M.E. patients,can only be diagnosed if the Physician investigated the patient. • By dismissing M.E. & CFS patients as the NIH, CDC & many Psychiatrists routinely have done as Psychiatric expressions of disease the treatable pathologies will never be found.

  22. More Conclusions • In 25 Years of Testing M.E. and CFS Patients,I have yet to find a single patient who has been adequately investigated. • All CFS patients are: “Missed Diagnoses” with Multiple Missed Pathologies. • All M.E. and CFS patients have multiple pathologies, some which are treatable if diagnosed.

  23. Missed Diagnoses This inexpensive book can be purchased individually from www.Lulu.com For approximately $20 Canadian, but if you purchase it through your organization, in more than 10 copies,  it may be significantly less expensive.

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