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EMPOWERING COMMUNITY MEMBERS

Learn about the vital role of community members in IRB research, including advocacy, participation, and confidentiality. Discover how to find, support, and engage effective community members for research projects.

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EMPOWERING COMMUNITY MEMBERS

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  1. EMPOWERING COMMUNITY MEMBERS Susan L. Rose, PhD Executive Director University of Southern California Office for the Protection of Research Subjects (OPRS) http://www.usc.edu/admin/provost/oprs

  2. IRB COMMUNITY MEMBER

  3. ROLE OF THE COMMUNITY MEMBER • Advocate for the participant • Actively Participate in IRB meetings/reviews • Ask questions • Give your opinion • Review submissions • Maintain Confidentiality

  4. WHAT MAKES A GOODCOMMUNITY MEMBER

  5. FINDING A COMMUNITY MEMBER: • Considerations • Must posses basic computer skills • Availability: doctor appts, children • May need assistance if special needs • Incentive: honorarium, paid-parking

  6. FINDING A COMMUNITY MEMBER • Expectations • May be overwhelmed at first • May not be familiar with terminology • Reality of time constraints/ might have limitations on availability

  7. RESPONSIBILITIES OF BOARD MEMBERSHIP • Attend meetings: your input is needed • Be open-minded • Be vocal AND able to defend your opinions • Make time to: • Educate yourself • Familiarize yourself with IRB policies • Get to know your colleagues • Take notes

  8. WHAT YOU OWE THE COMMUNITY MEMBER • Provide an opportunity for them to experience a session before committing to membership • Give them a partner/mentor to orient them to their duties • Offer assistance if the member has special needs • Provide Educations Resources • IRB Director should conduct a 1-on-1 ed session • Policy Literature • Technical references

  9. ADDITIONAL RESOURCES USC IRB Community Member Information and Education: http://www.usc.edu/admin/provost/oprs/training/cm.html Online Community IRB Member forum and useful links: http://www.orau.gov/communityirb/ List serve for Community Based Participator Research: http://mailman2.u.washington.edu/mailman/listinfo/cbpr

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