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This subcommittee prioritizes tracking national initiatives, promoting awareness, and providing guidance for advocacy groups in the field of newborn screening. They review existing resources, identify gaps, and make recommendations to support parents, health professionals, and screening program staff.
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Education and Training Subcommittee Priorities SACHDNC Advisory Committee Meeting May 17, 2012
Subcommittee Charge • Review existing educational and training resources, identify gaps, and make recommendations regarding five groups: • Parents and the public • Parents • The public • Health professionals • Health professionals • Screening program staff • Hospital/birthing facility staff
Priority 1: Track, provide input on, and facilitate integration of national initiatives and committee-initiated activities • Activities of major professional organizations • AAP, ACOG, AAFP, DoD, MoD, regional collaboratives, etc. • Major education and awareness activities • Genetics in Primary Care Initiative • Newborn Screening Clearinghouse • Other major sources of information for the public or professionals • Research and policy developments that might impact the subcommittee’s activities or recommendations • For example, dried blood spot retention and use
Priority 2: Promote newborn screening awareness among the public and professionals • Continue to support and provide input on the 2013 Newborn Screening Awareness Campaign plans and activities • Develop recommendations for the SACHDNC regarding activities that could extend beyond a year-long campaign to promote ongoing awareness and support for newborn screening
Priority 3: Provide better guidance for advocacy groups and others regarding the nomination and review process • Collaborative effort between the evidence review group and the Education and Training Sub-committee • Goals • Increase transparency of nomination and review process • Provide guidance for “getting your condition ready for nomination and review”
