About Us Genetic Alliance is the world’s leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities. Genetic Alliance’s network includes more than 1,000 disease-specific advocacy organizations, as well as thousands of universities, private companies, government agencies, and public policy organizations. The network is a dynamic and growing open space for shared resources, creative tools, and innovative programs. Over the past 25 years, Genetic Alliance has been the voice of advocacy in genetics. Advocacy in the 21st century, however, requires new definitions and new focus. We dissolve boundaries to foster dialogue that includes the perspectives of all stakeholders: from industry professionals, researchers, healthcare providers, and public policy leaders to individuals, families, and communities. In a rapidly changing world, Genetic Alliance understands that nothing short of the transformation of our mission, goals, and even our Board of Directors will suffice to transform health.
Programs Genetic Alliance has developed a series of programs designed to increase the visibility of genetics and advocacy, establish strong networks and advance important campaigns, including community based family history. Our current programs include :
Resources and Services Genetic Alliance provides a range of resources and services that benefit both individuals and organizations. We welcome and encourage your involvement: listen to webinars, create and edit entries in WikiGenetics and WikiAdvocacy, participate in the Advocates Partnership Program, add your organization to Disease Info Search, and more. Individuals and organizations can utilize our resources to: Stay Informed Engage and Participate Some of our resources are tailored specifically for organizations. We also have a Community Job Board where organizations can post job openings and individuals can find new and exciting opportunities for employment.
Resource Repository Genetic Alliance Resource Repository is a robust document repository service that aggregates the combined resources of advocates, healthcare professionals, government agencies, think tanks, and other contributors. These resources cover a wide range of topics such as: You can visit the Resource Repository at www.resourcerepository.org Resource Repository Search The Resource Repository is a digital commons for the global health community. This electronic collection of documents, links, audio, and video files, relies on contributions from the community in topic areas such as newborn screening, family health history, genetic testing, reimbursement, research, drug development, community engagement, and organizational development.
Publications Genetic Alliance publications are aimed at emerging and experienced advocacy leaders, researchers, healthcare providers, and policymakers. All of our publications are available for free downloading and posting, as long as Genetic Alliance is credited as the author and the content is not modified in any way. Printing of publications is allowable for individual use only.
Upcoming Events Registries and Natural History Studies Salon Registry and Bio bank Boot Camp May 17, 2012, 4:00 p.m. - 6:00 p.m. EDT Genetic Alliance4301 Connecticut Avenue, NW Suite 404 Washington, DC 20008 May 15, 2012, 9:00 a.m. - 4:00 p.m. EDT Genetic Alliance4301 Connecticut Avenue, NW Suite 404 Washington, DC 20008