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Measuring Health Disparities: Effects of Underlying Quality of Ethnicity Data Jay S Buechner, Ph.D. Rhode Island Department of Health 2007 Annual Conference on Assessment Initiative August 22-24, 2007 Assessment Initiative 2007 Eliminate Health Disparities Healthy People 2010 Goal:

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measuring health disparities effects of underlying quality of ethnicity data

Measuring Health Disparities:Effects of Underlying Quality of Ethnicity Data

Jay S Buechner, Ph.D.

Rhode Island Department of Health

2007 Annual Conference on Assessment Initiative August 22-24, 2007

assessment initiative 2007
Assessment Initiative 2007

Eliminate Health Disparities

Healthy People 2010

Goal:

How do we measure progress?

slide4

Assessment Initiative 2007

Priorities for RI’s Web Query System

slide5

Assessment Initiative 2007

Operational Barriers

  • Small Numbers
  • Comparability
  • Data Quality
slide6

Assessment Initiative 2007

Operational Barriers

  • Small Numbers
  • Comparability
  • Data Quality
slide7

Assessment Initiative 2007

Operational Barriers

  • Small Numbers
  • Comparability
  • Data Quality
slide8

Assessment Initiative 2007

Operational Barriers

  • Small Numbers
  • Comparability
  • Data Quality
slide9

Assessment Initiative 2007

Data Quality Issues

  • Sample Surveys
    • Self-reported
    • Non-standard responses
    • Refusals
    • Bias
  • “Registries”
    • Self-reported?
    • Missing data
    • Under-reporting
slide10

Assessment Initiative 2007

Ad Hoc Data Quality Study Through

Data Linkage

  • Hospital Discharge Data
    • “Administrative Data”
    • Collected/reported by hospital staff
  • Traumatic Brain Injury Data
    • Abstracted from medical record
    • Collected by project staff
slide11

Assessment Initiative 2007

HDD Record

TBI Record

Race/Ethnicity

80.8%

75.0%

White

5.1%

5.2%

Black

1.2%

1.4%

Asian

<0.05%

0.8%

Native American

6.7%

8.0%

Hispanic

5.1%

3.6%

Other

1.1%

6.0%

Unknown

Comparative Race/Ethnicity Distributions HDD Record vs TBI RecordRhode Island, 1996-1999

slide12

Assessment Initiative 2007

Correspondence of HDD Record with TBI Record, Rhode Island, 1996-1999

98.5

100

90.4

89.8

88.4

77.3

80

64.7

60

Percent "Correct" on HDD Record

40

15.2

20

5.3

0

White

Black

Asian

Native

Hispanic

Other

Unknown

All

American

Cases

Race

slide13

Assessment Initiative 2007

Hispanic Surname Study,

RI Cancer Rates

  • From Bureau of Census:
    • List of 639 “heavily Hispanic” surnames
  • Apply to:
    • RI Cancer Incidence (Males)
    • RI Cancer Deaths (Males, Females)
slide14

Assessment Initiative 2007

Hispanic Male Cancer Cases, Rhode Island, 1989-1998

80

Method

70

Combined

Surname

60

Reported

50

Number of Cases

40

30

20

10

0

1989

1990

1991

1992

1993

1994

1995

1996

1997

1998

Year of Diagnosis

slide15

Assessment Initiative 2007

Recommendations/Suggestions

  • Establish a data collection policy
  • Evaluate reported data on race and ethnicity regularly
  • Establish and support improved data collection
slide16

Jay Buechner

Chief, Center for Health Data & Analysis

401.222.5115

jay.buechner@health.ri.gov

www.health.ri.gov