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Public Disclosure: Wayne State University

Public Disclosure: Wayne State University. Valerie Mika, MS. Detroit EMS. WSU Detroit Receiving Hospital Sinai Grace Hospital St. John Hospital Henry Ford Hospital 24 Medic Units. RAMPART Enrollments. 178 patients enrolled at WSU 64 patients enrolled at HFH

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Public Disclosure: Wayne State University

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  1. Public Disclosure:Wayne State University Valerie Mika, MS

  2. Detroit EMS • WSU • Detroit Receiving Hospital • Sinai Grace Hospital • St. John Hospital • Henry Ford Hospital • 24 Medic Units

  3. RAMPART Enrollments • 178 patients enrolled at WSU • 64 patients enrolled at HFH • Detroit EMS total = 242 patients

  4. Community Consultation • Epilepsy Surgery Support Group I • Epilepsy Today 2008-Metro Detroit Area Conference • Epilepsy Surgery Support Group II • University of Detroit Mercy Student Senate • Detroit Receiving Hospital Lobby and University Health Center Lobby • Dr. Jimmy Womack Radio Show (WGPR 107.5FM) • Sinai-Grace Hospital ED Waiting Room • Bates Academy LSCO meeting • Crockett Technical High School LSCO Meeting • Pasteur Elementary School LSCO Meeting • Detroit Public School City Wide School LSCO Meeting • HFH internal email survey • New Center Pediatric Clinic I • West Bloomfield epilepsy inpatient monitoring - pediatric • Chadsey Detroit Public School - Local School Community Organization • NAACP Freedom weekend - networking expo • HFHS Epilepsy surgery support group • Winter-Halter LSCO • HF- Town Hall Meeting • New. St. Paul Tabernacle

  5. Public Disclosure • Media Briefing - Detroit News, Fox News, and WDIV channel 4 • Detroit News Article • Detroitnews.com • National Press Release through PR Newswire • Twitter twitter.com/henryfordnews • Henryford.com • Morning Post - HFHS Email Newsletter for employees • Morning Post - HFHS employee Email Newsletter • Freedom Weekend Display - NAACP • Brain Injury Association of Michigan Conference • Henry Ford West Bloomfield ED Poster • Henry Ford West Bloomfield Hospital One Year Anniversary Celebration • West Bloomfield Township Library • Henry Ford West Bloomfield Epilepsy Monitoring Unit • Henry Ford West Bloomfield ED Webpage Link • Health and Wellness Day • www.DetroitRAMPART.org • Telephone PSA • DMC Weekly E-news Ad • Fox 2 News Interview

  6. WSU Public Relations • School of Medicine distributes to WSU Main Campus • Two avenues • Email list of healthcare reporters locally (Detroit area) and nationwide • PRNewswire – service that WSU pays for – RSS feed gets distributed and the press release is automatically posted • News sources that hold “more value” • Detroit Free Press and WDIV • CBS Detroit News picked up the WSU story • PRNewswire/ US Newswire • $15000 membership fee including 30-35 releases nationwide • Range of $600-1000 per release

  7. TimeLine • Feb 14, 2012 • WSU SOM Public Affairs contacted Dr. Welch regarding questions about study results • Feb 15, 2012 @ 5pm • Article was distributed to the media • Feb 16, 2012 • Back and forth with the IRB about what needs to be approved before starting pubic disclosure • Feb 17, 2012 • IRB expedited the approval the WSU Press Release – CBS Detroit News – and New England Journal of Medicine • Constant email contact with the expedited reviewer

  8. WSU PR Services • Free Online Services • EurekaAlerts • Collegenewswire.com • WSU • Public Relations • Prognosis E-News Research • Prognosis E-News School of Medicine • Division of Research • Wayne State University Website (Wayne.edu) • School of Medicine Website (Med.wayne.edu) • WSU South End Newspaper Article • Social Media • Pinterest • Facebook • Twitter • Blogs • BrainTalk Communities: Online Patient Support Groups for Neurology

  9. Twitter

  10. Facebook

  11. List of PD Activities (online) • CBS Detroit • Science Newsline Medicine - Health professional • HeathNewsDigest.com - Health professional • Topix.com • BrainTalk Communities: Online Patient Support Groups for Neurology • BrightSurf.com: The resource for science information • Sandiegojack.com (radio station website) • MEDMERITS: Free access to the information doctors rely on • Newsedge • Sci Guru: Science News • www.news-medical.net • Feed My Science • College Newswire • Alltopics.com • Life Science log

  12. Documents submitted to the IRB • WSU and SJH IRB • Notification letters • Detroit EMS Medics and EMS Chief • Subjects • Website script (www.detroitrampart.com) • EMS Newsletter Template

  13. Notification Letters • Number of subjects: 178 • 35 repeat subjects (1 patient =13x) • 28 declined consent • 2 repeat subjects • 25 returned with unable to forward note

  14. Presentations • The 30th Annual Emergencies in Medicine Conference • Park City, Utah • William Coplin, MD • Detroit Receiving Department of Emergency Medicine Grand Rounds • William Coplin, MD • State of Michigan EMS Quality Assurance Taskforce • Dr. Vohra from HFH

  15. Other • Email to fire chief • City of Detroit Notification Letter • Mayor Dave Bing • Detroit East Medical Control Authority (DEMCA) • Epilepsy Foundation of Michigan

  16. Feedback • Subject Notification letters • “please remove ____name from your database to receive these letters and any future correspondences, she passed away 11-27-2011. Thank you.” • Blogs • “Thank you so much for posting this very valuable information. It's reassuring to know that there is another option to IV Ativan. Love & Light, Rose”

  17. Feedback • Facebook • One share • Wayne State University School of Medicine via Research @ Wayne State University • “Fascinating news about stopping prolonged seizures before getting to the ER.” • 4 Likes

  18. Thank you!

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