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“The Year of the Family Caregiver”-Celebrating a Decade of Caring. Fifth National Conference for Caregiving Coalitions April 27, 2011 San Francisco, CA. The National Family Caregiver Support Program. The National Family Caregiver Support Program (NFCSP).

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the year of the family caregiver celebrating a decade of caring

“The Year of the Family Caregiver”-Celebrating a Decade of Caring

Fifth National Conference for Caregiving Coalitions

April 27, 2011

San Francisco, CA

U.S. Department of Health and Human Services, Administration on Aging, Washington DC 20201

PHONE 202.619.0724 | FAX 202.357.3523 | EMAIL aoainfo@aoa.gov| WEB www.aoa.gov

the national family caregiver support program nfcsp
The National Family Caregiver Support Program (NFCSP)

Created in the 2000 Reauthorization of the Older Americans Act

Focus on Caregiver vs. Care Recipient

General Provisions of Title III Apply

Services delivery system

Organization and structure (SUA, AAA, LSPs)

Intrastate Funding Formula

the nfcsp 10 years of growth
The NFCSP – 10 Years of Growth

Gradual increases in funding

$125 million initial appropriation

$154 million for FY 2010

$192.2 million for FY 2012 (requested)

Projects of National Significance & Innovation

New approaches

Effectiveness of programs

Quality and improvement through evaluation, training, TA and research

2006 Amendments

Care Recipients with Alzheimer’s Disease of any age

Lowered age for grandparents/other relatives to 55

Inclusion of older caregivers (55+) of individuals with disabilities (18-59)

program impact
Program Impact

Who Do We Serve?

675,000 caregivers

1/3 work full time

Primarily Women (73%)

Elderly themselves

54% age 60+

22% age 75+

17% live in rural areas

Grandparents

81% female

84% age 60-74

What They Tell Us?

84% receive respite

45% said respite was most helpful

75% reported less stress

85% reported caregiving was easier

95% reported service quality as good to excellent

nfcsp 10 th anniversary
NFCSP 10th Anniversary

November 17, 2010 – 10th Anniversary Celebration

Year of the Family Caregiver

www.celebratingfamilycaregivers.org

Calendar

National, State, Local Events

Tools, resources

Video Testimonials

looking ahead national family caregiver support program
Looking Ahead:National Family Caregiver Support Program

Vice President’s Middle Class Task Force – Caregiver Initiative

Focuses on Specific Caregiver Needs

Integrates Caregiver Supports with other HCBS

FY 12 Budget Request

NFCSP (III E) - $192.2 million

Title VI C - $8.388 million

ADSSP - $11.46 million

Lifespan Respite - $10 million

lifespan respite care program
Lifespan Respite Care Program

What are Lifespan Respite Care Programs?

Defined by the Lifespan Respite Care Act of 2006 (PL109-442) as:

Coordinated systems of accessible,

community-based respite care services for

family caregivers of children or adults with

special needs

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program implementation
Program Implementation

Authorized in 2006

Funded in 2009 and 2010 at $2.5 Million

President’s FY 12 Request: $10 Million

Competitive Grant Process

12 States funded in FY 2009

12 States funded in FY 2010

FY 2011 Program Announcement

Up to $200,000 for three year projects

TA Activities – ARCH National Respite Network & Resource Center

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lifespan respite care program states
Lifespan Respite Care Program States

2009

Alabama

Arizona

Connecticut

District of Columbia

Illinois

Nevada

New Hampshire

North Carolina

Rhode Island

South Carolina

Tennessee

Texas

2010

Delaware

Kansas

Louisiana

Massachusetts

Minnesota

Nebraska

New York

Oklahoma

Pennsylvania

Utah

Washington State

Wisconsin

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looking ahead lifespan respite care program
Looking Ahead:Lifespan Respite Care Program

2011 Respite Summits – GA, MT, OH, VA

FY 2011 Program Announcement

Lifespan Respite Program Reauthorization

2011 National Respite Conference

Glendale, AZ

November 1-4, 2011

2nd Annual Grantee Meeting

looking ahead supporting family caregivers
Looking Ahead:Supporting Family Caregivers

Health Care Reform Provisions

Incentives to states to increase access to Medicaid HCBS

Training for family and home care workers

Expand access to care coordination and transitional care services

contact me

Contact Me

Greg Link, MA

U.S. Administration on Aging

Washington, DC

Greg.link@aoa.hhs.gov

U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES, ADMINISTRATION ON AGING, WASHINGTON DC 20201 PHONE 202.619.0724 | FAX 202.357.3523 | EMAIL aoainfo@aoa.gov| WEB www.aoa.gov