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” Ancient cities and their reflection to todays world  ” 2010-2012. Lithuanian multiple sclerosis union. Was founded in 2000 with the help of the Danish Multiple Sclerosis Society.

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lithuanian multiple sclerosis union
Lithuanian multiple sclerosis union
  • Was founded in 2000 with the help of the Danish Multiple Sclerosis Society.
  • Unite appr.1000 people but represent the interests of almost 4000 affected people and are helping to solve their problems
  • From 2002 the oorganization is a member of the European MS Platform. was founded in 2000 with the help of the Danish Multiple Sclerosis Society.
  • From 2007 we became a member of Euro carer association.
  • The Organization also is one of the initiator in the founding of the Baltic MS Alliance
people with multiple sclerosis
People with multiple sclerosis
  • What is my diagnosis…
  • I did not realise other people have the same diagnosis…
  • Doctors did not....
slide4
Multiple sclerosis is a fundamental neurological illness with a high morbidity, especially among people at a young age of employable morbidity 20-40 years of age. An attempt is of made to conceal the illness from not only employers but also those close to the person. Disability is rapid and severe.
four stage model
Four stage model
  • Out the flat
    • what is wrong with me – information about the disease
  • Interesting world
    • Support group activities
    • Friends, events
  • We are citizens
    • We have right
  • We have medical needs
    • Re-organisation or creation of the care system
areas of activity
Areas of activity

include social and psychological consultation

representation of patient interests in all state institutions

implementation of national and international projects

ms societies the beginning
MS Societies – the beginning ....
  • Lectures
  • Discussions
  • Support group meetings
  • Parties
  • No accountancy
  • No money
  • But a lot of enthusiasm
slide9

Management issues in MS

MS diagnosed

healthy

Psychosocial issues

Cognitive function

impairment

DMT

disability

Symptom management

rehabilitation

handicap

multiple sclerosis ms
Multiple sclerosis (MS)
  • is one of the most common diseases of the central nervous system.
  • Today over 2,000,000 people around the world have MS.
emsp members
EMSP Members
  • • Austria
  • • Belarus
  • • Belgium
  • • Bosnia-Herzegovina
  • Bulgaria
  • • Croatia
  • • Czech Republic
  • • Denmark
  • • Estonia
  • • Finland
  • • France
  • • Germany
  • • Greece
  • • Hungary
  • • Iceland• Ireland
  • • Italy

• Latvia

• Lithuania

• Luxembourg

• Malta

• Netherlands

• Norway

• Poland

• Portugal

• Romania

• Russia

• Serbia

• Slovakia

• Slovenia

• Spain

• Sweden

• Switzerland

• UK

focus on society
Focus on society

Kersten et al 2000

slide14
The place of multiple sclerosis in the European Union policy PRESS conference in the Parliament 2009
our main principles
Our main Principles

To promote Quality of Life for People with MS which draws together the interests of national MS societies worldwide and other community in implementation activities of a global projects.

we are organizing seminars in non traditional environments at the restaurants
We are organizing seminars in non-traditional environments-at the restaurants
one of the learning project
One of the learning project
  • Partnerinės institucijos:
  • Švietimo irinformacijoscentras

Stylida-Graikija

Nacionalinis Kapodastriano Universitetas,Geologijos fakultetas

Atenai-Graikija

Aplinkosaugos švietimokolegija

Nikosia-Kipras

my presentation of the lisbon convention for persons with disabilities in the publication in greece
My presentation of the Lisbon Convention for Persons with Disabilities in the publication in Greece.
everything is in place
Everything is in place

TIME FOR ACTION

IS

NOW