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Audit & Standards Sub-Committee: M Johnson (chair), M Backx, C Ball, G Brook, D Churchill, A De Ruiter, S Ellis, A Freedman, L Garvey, P Gupta, K Foster, V Harindra, C O’Mahony, E Monteiro, E Ong, K Orton, R Pebody, F Post, C Sabin, A Schwenk, A Sullivan, R Weston, E Wilkins, D Wilson, M Yeomans.
Annual rolling audit programme for BHIVA sites: providers of adult care.
2009 audit of management of hepatitis B/C co-infection.
Accompanying survey of management of paediatric aspects of adult care:
Data from HPA: SOPHID
“Supporting Change: Successful Transition for Young People who have grown up with HIV infection” 2007*:
*Transitional care is also covered in CHIVA standards of care, 2010.
To describe adult HIV clinics’ policy and practice on:
Survey of adult HIV clinics/departments:
143 sites took part. 59 HIV centres, 71 outpatient HIV units, 13 neither.
NB denominator is sites who had or expected transitioning patients.
Of 134 sites who had or expected to receive transitioning patients, 64 answered about how transition arrangements had been planned. Groups involved were:
Young people with HIV (16)
Patient support group(s) (10)
Other community-based organisation(s) (10)
Of 134 sites with/expecting transitioning patients:
Only 5 sites had a policy defining age(s) for stages of transition.
Several said ages vary but:
5 sites had had transitioning patients who stopped attending, and 39 who attended irregularly.
Support to prevent lapse and LTFU included:
NB: Totals vary because sites unsure or not answering are omitted. Base is sites who had or expected to receive transitioning patients.
Some respondents commented on need to develop transition services. Others felt these worked well for small numbers of patients.
Adult HIV services have varying, but mostly limited, experience of young people transitioning from paediatric care, and use a range of approaches.
Adult services should: