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Health Literacy for the Consumer Mary Klatt, M.A.L.S.

Health Literacy for the Consumer Mary Klatt, M.A.L.S. What we will cover What is “Health Information?” Where can the public get health information Types of questions Ethical & legal aspects Core print collection, weeding Core websites Evaluating Internet resources Health-E Illinois

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Health Literacy for the Consumer Mary Klatt, M.A.L.S.

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  1. Health Literacy for the Consumer Mary Klatt, M.A.L.S. Loyola University Health Science s Library

  2. What we will cover • What is “Health Information?” • Where can the public get health information • Types of questions • Ethical & legal aspects • Core print collection, weeding • Core websites • Evaluating Internet resources • Health-E Illinois Loyola University Health Science s Library

  3. Goals Participants will be able: • To identify primary consumer health resources • To locate information on diseases, drugs, and other medical topics. Be introduced to basic print and Internet websites • To evaluate websites that contain health information • To find services and providers in the state of Illinois by disease, condition or location Loyola University Health Science s Library

  4. Health Information… what does that mean? Loyola University Health Science s Library

  5. Health Information means… KNOWLEDGE • Warning signs • Do I need to see a doctor? • How can the doctor help me? Loyola University Health Science s Library

  6. Health Information means… EMPOWERMENT • Medication: • Why am I taking this? • How will this help me? Loyola University Health Science s Library

  7. Health Information means… INVOLVEMENT • I have a say in my healthcare • I can help keep myself safe from medical error. • I can make informed decisions Loyola University Health Science s Library

  8. Definitions • Consumer Health Information “Information on health and medical topics provided in response to requests from the general public, including patients and their families.” • Patient Education “…a planned activity, initiated by the health care professional, whose aim is to impart knowledge, attitudes and skills with the specific goal of changing behavior, increasing compliance with therapy and, thereby, improving health.” http://caphis.mlanet.org/resources/caphis_statement.html Loyola University Health Science s Library

  9. Definitions • Health Information literacy “The degree to which individuals have the capacity to obtain, process, and understand basic health information and services needed to make appropriate health decisions.[‘ http://www.healthypeople.gov/Document/HTML/Volume1/07Ed.htm Loyola University Health Science s Library

  10. Types of Questions I need information on: • A disease or condition • Medical tests / Medical procedures • Medication/drug information • Utilization of health care services • Newspaper article or report (television, radio) Loyola University Health Science s Library

  11. Where can I get health information? • Doctor • Nurse • Clinic Loyola University Health Science s Library

  12. What about the Internet? • Yes, but… • Evaluate the information you find • Be sure you are getting GOOD information Loyola University Health Science s Library

  13. What makes good information? • Authority • Quality • Trustworthy • Evidence • Unbiased • Private Loyola University Health Science s Library

  14. Authority • Who wrote this? • Do I know they can be trusted, or do they just say they can be trusted? Loyola University Health Science s Library

  15. Quality • Is someone backing this up? • School, Clinic or Government? • How new is this information? Loyola University Health Science s Library

  16. Trustworthy • Too good to be true? • Confusing “scientific” language? • Only site making this claim? ? Loyola University Health Science s Library

  17. Evidence • Is there Proof? • Can I trust it? Loyola University Health Science s Library

  18. Unbiased • Selling me something? Loyola University Health Science s Library

  19. Private • My health information should be private • Is there a privacy policy? Loyola University Health Science s Library

  20. What if I’m not sure? • Ask your doctor or nurse Loyola University Health Science s Library

  21. Useful Internet resources: • Where do I begin? Loyola University Health Science s Library

  22. MedlinePlus www.medlineplus.gov • Safe, trustworthy information • From the U.S. Government • More detailed information Loyola University Health Science s Library

  23. NIH Senior Health www.nihseniorhealth.gov • Information for older adults from the U.S. National Institutes of Health Loyola University Health Science s Library

  24. KidsHealth www.kidshealth.org • Easy-to-understand • Information for kids, teens… • and their parents Loyola University Health Science s Library

  25. Cancer.gov • http://www.cancer.gov • Types of cancer • Treatments and clinical trials • Screeing and testing • Cancer statistics Loyola University Health Science s Library

  26. Federal Drug Administration • www.fda.gov • Food – safety, allergens, food bourne illness • Drugs – regulations and drug information • Medical Devices – Choosing a device, problems with devices, recalls • Biologics – vaccines, tissues, gene therapy Loyola University Health Science s Library

  27. Centers for Disease Control • www.cdc.gov • Diseases & Conditions • Healthy Living – immunizations, smoking prevention, exercise • Emergency preparedness – bioterrorism • Environmental Health • Traveler’s Health • National Center for Health Statistics Loyola University Health Science s Library

  28. KidsHealth www.kidshealth.org • Easy-to-understand • Information for kids, teens… • and their parents Loyola University Health Science s Library

  29. Healthy Web Surfing • Source • Quality • Be skeptical • Currency • Site purpose • Privacy Questions/concerns to health care professional Loyola University Health Science s Library

  30. Health-E Illinois Go Local: A National Library of Medicine Project Loyola University Health Sciences Library June 1, 2007 Loyola University Health Science s Library

  31. Overview • "Go Local" links accessed from MedlinePlus health topic • web pages enable a user to find related health service • providers in their area. • MedlinePlus Breast Cancer page will direct users to Cancer • Clinics, Oncologists, Support Groups, etc. on the local state site • {Health-E Illinois}. • Services include hospitals, physicians, nursing homes, support • groups, health screening providers and many others. Loyola University Health Science s Library

  32. Access directly from MedlinePlus Loyola University Health Science s Library

  33. Health Information + Local Resources • MedlinePlus • NIH consumer literature • News • Nutrition • Directories • MEDLINE search • ClinicalTrials.gov • Genetics Research • Statistics • Financial Issues • Health-E Illinois • Featured Site • Search Functions: • Location • Health Care Providers • Programs and Facilities • Services for Diseases and • Health Issues • Topics + Loyola University Health Science s Library

  34. Go Local Nationally 18 states active 8 in projects in development Loyola University Health Science s Library

  35. Health-E Illinois Loyola University Health Science s Library

  36. Welcome Search by Location Loyola University Health Science s Library

  37. Search by Providers, Facilities, and Services Loyola University Health Science s Library

  38. Topic Search Loyola University Health Science s Library

  39. Results Loyola University Health Science s Library

  40. Results Loyola University Health Science s Library

  41. Contents 5,750 Records Loyola University Health Science s Library

  42. Contents • 740 Health Topics • Diabetes, Cancer, Senior Health, etc… • Condensed for simpler indexing. • 161 Service Terms • Facilities, People, Programs • Blood Banks, Allergists, Health Screenings, etc… Loyola University Health Science s Library

  43. Assigning Terms Service Term > Topic Term Advocacy > Autism Health Education Programs > Autism Referral Services > Autism Support Groups > Autism Loyola University Health Science s Library

  44. Translating into results Advocacy > Autism Health Education Programs > Autism Referral Services > Autism Support Groups > Autism Loyola University Health Science s Library

  45. Sources • Professional Associations • Government Funds Recipient Lists • Illinois Department of Public Health • HealthInfo Central Illinois Database • Commercial Directories • Homegrown lists from hospital referral services Loyola University Health Science s Library

  46. http://library.luhs.org/GoLocal/ Loyola University Health Science s Library

  47. Health-E Illinois • http://medlineplus.gov/illinois Loyola University Health Science s Library

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