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Patient issues that get in the way of TX adherence: surprising survey findings Sue Bergeson Vice President Consumer Affairs OptumHealth Behavioral Solutions.
Patient issues that get in the way of TX adherence: surprising survey findingsSue BergesonVice President Consumer Affairs OptumHealth Behavioral Solutions
Who Am I? The Art Work The Context It’s tough out there Assume passion and commitment There is no blame We are each expert in our own arena
Face to Face Time: Seven Minutes
What would you like to see changed? N=3,662
Spend more time with me; don’t rush through my appointment
PCP: second highest response
Psychiatrist: highest response
OBY/GYN: highest response
Time Before Interruption: ?
Time if Not Interrupted: ?
77% Heighten mood,
75% Racing thoughts
74% Racing speech, impulsiveness
72% Poor judgment,
57% Reckless behavior
57% Erratic eating
56% Erratic sleep
36% Heighten mood
43% Racing thoughts
37% Racing speech, Impulsiveness
35% Poor judgment
26% Reckless behavior
26% Erratic eatingExperienced vs Communicated
(NDMDA Gallop Pole Public Phone Survey (2002)
Address our fear of medication upfront
Explain your Illness to your satisfaction?
No: Psychiatrist 47%, PCP 63%
Explain your treatment to your satisfaction?
No: Psychiatrist 48%, PCP 57%
51 % Still wanted more information about their mental illness
Less than half of respondents had been given written information
81% who were given information - very useful
Source: NDMDA Gallop Pole Public Phone Survey (2002)
N= 2,000 – both consumers and providers
PCPs 71% say they make joint decisions, but
Only 39% say doctor asked their preferences
PCPs 69% say they tell side effects, but
Patients, only 16% told
Recovery goals vs. Treatment goals
Psych Nurse example
Feel Bad Take Meds Feel Better
Feel Hopeless/Worthless Change Life Feel Better
There are times when a person...
Impact of Diagnosis
Life is Limited
Actions for Change
Commitment to Change
DBSA Survey 2004 N=2,000
Certified Peer Specialists / Recovery Coaches Roles in Primary Care:
Overall, peer support consumers showed improvement as compared to control group in each three outcomes over an average of 260 days between assessments
3. Compassion (tied)
3. Knowledge (tied)
4. Interpersonal Skills
5. Attitude of Respect
7. Allow enough time
8. Work in partnership with us
9. Don’t just medicate
10. Look at the whole person
I want the health care system to: