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TAND 101

TAND 101. TANJALA T. GIPSON, M.D. DIRECTOR, TAND CLINIC TSC CENTER OF EXCELLENCE LE BONHEUR CHILDREN’S HOSPITAL MEMPHIS, TN MAY 28, 2019. GOALS. DEFINE TAND REVIEW TAND CHECKLIST LIFETIME THE TAND EVALUATION: WHAT TO EXPECT PREPARING FOR YOUR TAND EVALUATION KEY POINTS

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TAND 101

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  1. TAND 101 TANJALA T. GIPSON, M.D. DIRECTOR, TAND CLINIC TSC CENTER OF EXCELLENCE LE BONHEUR CHILDREN’S HOSPITAL MEMPHIS, TN MAY 28, 2019

  2. GOALS • DEFINE TAND • REVIEW TAND CHECKLIST LIFETIME • THE TAND EVALUATION: WHAT TO EXPECT • PREPARING FOR YOUR TAND EVALUATION • KEY POINTS • QUESTION AND ANSWER

  3. TAND = TUBEROUS SCLEROSIS ASSOCIATED NEUROPSYCHIATRIC DISORDERS

  4. TAND

  5. TAND • 0-3 • 3-6 • 6-9 • 12-16 • 18-25 • prn >25 Comprehensive formal evaluation

  6. TAND • Practice Parameter based Management Strategies, eg Autism • Consider the need for an IEP • Medical evaluation for sudden behavioral change • Screen for TAND at least annually

  7. TAND CHECKLIST LIFETIME VERSION

  8. TAND CHECKLIST LIFETIME VERSION

  9. TAND CHECKLIST LIFETIME VERSION

  10. TAND CHECKLIST LIFETIME VERSION

  11. TAND CHECKLIST LIFETIME VERSION

  12. TAND CHECKLIST LIFETIME VERSION

  13. TAND CHECKLIST LIFETIME VERSION

  14. TAND CHECKLIST LIFETIME VERSION

  15. TAND CHECKLIST LIFETIME VERSION

  16. TAND CHECKLIST LIFETIME VERSION

  17. TAND CHECKLIST LIFETIME VERSION

  18. TAND CHECKLIST LIFETIME VERSION

  19. TAND CHECKLIST LIFETIME VERSION

  20. TAND EVALUATION: WHAT TO EXPECT • Visit preparation • TAND Checklist • TSC specific concerns • Interdisciplinary team approach • Neurology/neurodevelopmental disabilities specialist • Speech/language pathologist • Social worker • Neuropsychologist • Child Life Specialist • Chaplain (upon request) • Ongoing, individualized management

  21. TAND EVALUATION: HOW TO PREPARE • RECORDS • VIDEOS • TAND CHECKLIST • PATIENT PORTAL SIGN UP • TIME • ACTIVITIES • SNACKS

  22. TAND TAKEAWAYS • Avoid waiting. • It’s never too late or too early. • Research available clinical services and requirements. • Communicate with the TS Alliance. • Don’t give up hope!

  23. THANK YOU!

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