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Post-Diagnosis Services The Evidence Dr Nick Cartmell
Government evidence Current total state cost £20 billion per annum Additional >£5.4 billion personal care funding DoH impact assessment 2008 National Dementia Strategy 2009 All Party Parliamentary Group on Dementia 2011
Service user evidence • Alzheimer’s Society 2011 • Princess Royal Trust for Carers 2011 • South West service user groups • Published evaluations of existing services: • Dementia Advisers • Admiral Nursing Service • Dementia Voice Nurse
Published research • Universities in the UK • National Audit Office 2007, 2010 • Social Care Institute for Excellence 2011 • Nuffield Council on Bioethics 2009 • South West Dementia Partnership • USA 2009
Conclusions 1 • Based in primary care/community • Emphasis on dementia as a long-term condition • Signposting, information, education and advocacy • Face-to-face not telephone • Proactive contact through the entire journey
Conclusions 2 • Voluntary sector involvement • Strong links with other services • Importance of supporting relationships • 2- or 3-tier service • Person autonomy versus carer support
Ensuring success • Involve CCGs early • Pincer movement • Clear definition of role • Publicity • Outcomes evaluation • Thorough evaluation!