from global to local an alliance of federations for ncds 28 april 2010 n.
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FROM GLOBAL TO LOCAL AN ALLIANCE OF FEDERATIONS FOR NCDs 28 April 2010. Structure of presentation. Cary Adams Overview of UICC Ann Keeling Overview of IDF Nils Billo Overview of IUATLD Helen Alderson Overview of WHF Working together as partners

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structure of presentation
Structure of presentation
  • Cary Adams Overview of UICC
  • Ann Keeling Overview of IDF
  • Nils Billo Overview of IUATLD
  • Helen Alderson Overview of WHF Working together as partners
  • Ann Keeling The NCD Advocacy Agenda
who we are an overview
Who we are – an overview
  • The International Union Against Cancer (UICC) is the leading international non-governmental organization dedicated to the global prevention and control of cancer.
  • Founded in 1933, UICC unites over 360 member organizations, specialized and engaged in cancer control, in more than 100 countries across the world.
  • UICC is non-profit, non-political, and non-sectarian. It’s headquarters are in Geneva, Switzerland.
  • Current President: Professor David Hill of Cancer Council Australia
  • Over 1 million individual members working worldwide
  • 180.000 and growing World Cancer Declaration supporters
world cancer declaration

Annual global cancer mortality (millions)

World Cancer Declaration
  • ‘A global call to action to help substantially reduce
  • the global cancer burden by 2020 and
  • increase cancer's visibility on the international
  • political agenda’
  • UICC outlines 11 targets and a priority action plan to stop and reverse current trends at local and national level.
  • Aimed towards making significant improvements in the measurement of the global cancer burden, sharing best practice to increase rates of early detection and optimal treatment and thus improvements in cancer survival rates in all countries around the world.

Support the approx. 30 million people living and coping with cancer globally

world cancer declaration1
World Cancer Declaration

The Declaration sets 11 targets to stop and reverse current cancer trends

And aims to increase cancer’s visibility on the global agenda


1. Sustainable delivery systems

2. Improved measurement of the global cancer burden

3. Decreased global tobacco consumption, obesity, and alcohol intake

4. HBV and HPV vaccination programs and screenings

5. Shift in public attitude towards cancer

6. Earlier and accurate diagnosis

7. Appropriate cancer treatments and supportive care

8. Effective pain control measures accessible to all patients

9. Improved professional training opportunities

10. Decrease in emigration of health workers with

specialist training in cancer control

11. There will be major improvements in cancer survival rates in all countries

Please help us move cancer up on the global agenda

by signing online at:

international diabetes federation
International Diabetes Federation

220+ member associations in 160+ countries,

7 regional offices, 2million+ members

US$ 750 million

combined income

UN Resolution on

Diabetes Dec 2006

335 million have



IDF’s role

  • Global advocacy and campaigning
  • Evidence: IDF Diabetes Atlas, health economics
  • Policy Research
  • Sharing best practice eg diabetes education
  • Global guidelinesand advice to govts
  • Humanitarian programmes eg Life for a Child
  • Convening the global diabetes community –
  • World Diabetes Congress
vision health solutions for the poor

Health solutions for the poor


The Union brings innovation, expertise, solutions and support to address health challenges in low- and middle- income populations


Map of Global Activities

Technical Assistance – Education – Research


Union Membership Activities

  • Around 3 000 members from 152 countries
  • 84 Constituent Members
  • 18 Organisational Members
  • 2 834 Individual Members

world heart federation

World Heart Federation

Helen Alderson, Chief Executive Officer


The World Heart Federation


The World Heart Federation helps people achieve a longer and better life through prevention and control of heart disease and stroke, with a focus on low- and middle-income countries .


The World Heart Federation

The World Heart Federation helps people achieve a longer and better life through prevention and control of heart disease and stroke, with a focus on low- and middle-income countries.

  • Leads a united community of over 200 member organizations in the global fight against heart disease and stroke.
  • Brings together the societies of cardiology as well as heart health charities.

The World Heart Federation

Together with our members we achieve our mission through:

  • Awareness Building
  • Advocacy
  • Demonstration Projects
  • Sharing Science and building capacity
non communicable account for over 60 of global deaths
Non-communicable account for over 60% of global deaths

Source : WHO 2005: «Preventing Chronic Diseases: A Vital Investment»



Group III - Injuries

Low-income countries

Group II – Other deaths from non-communicable diseases

Group II – Premature deaths from non-communicable diseases (below the age of 70), which are preventable

Group I – Communicable diseases, maternal, perinatal and nutritional conditions

14 million premature deaths in LMCs

60 million


50 million

5.3 M


40 million

14.2 M


30 million

14.0 M


20 million

17.4 M


Omitted from the MDGs:

14.0 million premature deaths from non-communicable diseases

10 million

Total number of deaths in low- and middle-income countries (2004)

WHO slide

The number of deaths due to NCDs is expected to rise over the next 10 years: the largest increase will be in developing countries

Source : WHO 2005: «Preventing Chronic Diseases: A Vital Investment»


Out of the $21 billion ODA invested in health, where are NCDs?

Total ODA for Health in 2006: US$ 21 billion

(expressed in US$ Billions)

Source WHO NCDnet

0.9 %

Total Percentage of Health Aid spent on NCDs:

Source: Nugent & Feigl (2009), Donor Response to Chronic Diseases in Developing Countries, Center for Global Development, Washington, DC.


Millennium Development Goals drive the global development agenda

Eradicate poverty and hunger

Achieve primary universal education

Promote gender equality and empower women

Reduce child mortality

Improve maternal health

Combat HIV/AIDS, malaria and other diseases

Ensure environmental sustainability

Develop a global partnership for development

Where are NCDs?


The Framework

WHO Action Plan:

Defines NCDs as 4 diseases: cancers,



chronic respiratory

Agreed by governments

NCDs: a development


  • -
January 2009: The three NCD federation’s formed an alliance and we are pleased to welcome a fourth this year

882 national associations in 170+ countries


Why are the poorest people in low- and middle-income countries affected the most?

What will NCDnet be doing?

Objective 5 – Promoting partnerships


New network to combat noncommunicable diseases

WHO slide

idf uicc whf iuatld committed to working towards prevention control of ncds
IDF – UICC – WHF – IUATLD committed to working towards prevention & control of NCDs

International Federations’ key assets:

  • Members
  • Networks
  • Healthcare Professionals
  • Patient groups



and activities

2009 alliance advocacy demands
2009 Alliance Advocacy Demands
  • United Nations special session on NCDs (UNGASS)
  • NCDs and MDGs: adding NCD indicator(s) at MDG Review Sept 2010. Successors to MDGs post 2015.
  • International funding for essential NCD medicines/care
  • - Advocating for international and national funding
  • - Global Fundmandate expanded to Global Fund for Health integrating NCDs/Innovative financing for NCDs
  • Integration of NCDs, especially into primary healthcare

An UNGASS: what makes it special?

  • Only 28 Special Sessions in UN history – often mark UN anniversaries eg 2000 Women. Last was 2005.
  • convened either by Security Council (conflict/peace) or simple majority vote UN states in General Assembly
  • mega events/mega profile for an issue: 2002 Children: 3500 govt delegates (43 heads of state), 1700 NGOs, 1200 journalists and over 122 supporting events.
  • can catalyse major change egHIV/AIDS 2001: Commitment signed by all UN members. National progress reports every 2 years. Led to Global Fund.
ncds ungass building momentum
NCDs UNGASS: building momentum
  • Jan 2009 IDF started lobbying: no traction
  • May 2009 Alliance event at WHA built supporters
  • June 2009 statement CARICOM heads of govt
  • Alliance followed up with:
    • publication eg Time to Act
    • statements/presentations at key events
    • mobilising our members to lobby govts
    • behind scenes lobbying
july 2009 ecosoc 58 un member states recognize global ncd threat
July 2009: ECOSOC (58 UN member states) recognize global NCD threat

“We also recognize that the emergence of non-communicable diseases is imposing a heavy burden on society, one with serious social and economic consequences, and that there is a need to respond to cardiovascular diseases, cancers, diabetes and chronic respiratory diseases, which represent a leading threat to human health and development.”

9 July 2009

november 2009 ungass support by 54 heads of state
November 2009: UNGASS support by 54 Heads of State

"We declare our support for the call to integrate indicators to monitor the magnitude, trend and socio-economic impact of NCDs into the core MDG monitoring and evaluation system during the MDG Review Summit in 2010."

"We call for a Summit on NCDs to be held in September 2011 under the auspices of the United Nations General Assembly."

29 November 2009

the voice of the alliance at national level
The Voice of the Alliance at National Level

National Associations working together to support global advocacy for NCDs

ungass current state of play
UNGASS: current state of play
  • Formally adopted by 76 Heads of Govt, other govts supportive egRussia, Gulf..
  • CARICOM countries leading on draft resolution. Optimistic vote in UN May for UNGASS Sept 2011.
  • Feb 2010 Alliance advocacy supported by powerful NGOs eg GARD, FCA,
  • Reaching US govt is critical – US alliance
  • EU important: UK, France, Germany, Portugal, UK, Ireland, Cyprus, Malta committed
  • NCD panels New York 13 & 20 April, FCA statement
ungass current state of play1
UNGASS: current state of play
  • CARICOM countries leading on draft resolution. Now cosponsored by China, Brazil etc
  • Optimistic it will go to UN GA in May for a vote for high level Summit on NCDs Sept 2011.
  • We believe we will get the Summit .....and then the fun begins
Current state of support for the UNGASS75 Heads of State44 Co-sponsoring 7 ministerial level support
ungass current strategy
UNGASS: current strategy
  • Separate the UNGASS and MDGs: some powerful govts will oppose if the two combined
  • Secure the UNGASS
  • Once secured, get renew focus on the MDGs
  • Focus on ‘feeder meetings’ ie April Commission on Population and Development and July ECOSOC
  • Secure UNGASS, then launch the consultation (Commonwealth remains keen)
ncds and the mdgs
NCDs and the MDGs
  • 8 MDG goals determine agenda for international funding to LMCs till end date 2015
  • MDGs specify particular diseases eg HIV/AIDS, TB – not meant to be taken literally – don’t include NCDs
  • Adding an indicator would catalyse funding/technical assistance for NCDs
  • Discussion of an NCD indicator would set scene for inclusion of NCDs in successor goalsto MDGs
  • Sept 2010 MDG review meeting at UN last opportunity before 2015
jan 2010 who executive board highlights ncds in mdg report
Jan 2010: WHO Executive Board highlights NCDs in MDG Report

“”Recognizing also the growing burden of noncommunicable diseases worldwide, and

recalling the importance of preventing infectious diseases that still represent a heavy burden, particularly in developing countries, the adverse impacts of the food, environmental, economic and financial crises on populations, in particular on the poorest and the most vulnerable ones...

21 January 2010

mdg review september 2010
MDG Review September 2010
  • Getting into ECOSOC and MDG meetings???
  • Discussion of indicatorshas gone quiet (WHO??)
  • Many govts determined to raise NCDs at MDG Review
  • NGO consultations for MDG Review New York 14 and 15 June
  • Once we secure UNGASS NCDs will be taken more seriously
major players in aid to lmcs
Major players in aid to LMCs
  • Global Fund for AIDS, TB and Malaria: 2008 disbursed US$2.3 billion  - almost none on NCDs
  • Gates Foundation: 2008 disbursed US$3.6 billion (all sectors including health) – almost none on NCDs
  • UNITAID: 2008 expenditure US$232 million – none on NCDs 

BUTthe global agenda is driven by bilateral aid donors eg Netherlands, DFID, SIDA, NORAD etc (who also fund Global Fund, UNITAID, WHO, World Bank etc)

international funding for ncds
International Funding for NCDs
  • Bilateral donors still sceptical: ‘taxpayers will not support us funding diseases of affluence’
  • Two common misperceptions:
  • NCDs are not diseases of the poor
  • There are no cost effective solutions
  • Meeting with DANIDA 15 and 16 April
  • Paris Declaration Aid Effectiveness is key
the business case for ncds the world economic forum
The Business Case for NCDs: the World Economic Forum
  • We know costs of diseases but not costs of solutions (including prevention). WHO working on ‘packages’.
  • WEF important forum for defining business case for NCDs
  • WEF on NCDNet but WHO weak on NCDs (eg diabetes one staff member in WHO)
  • Major focus Davos January 2011 ???

Key Events 2010 /11

UN Commission on Population and Development Meeting

63rd World Health Assembly

126th WHO Executive Board

OECD Health Ministers Meeting

UN General Assembly Special Session on NCDs


NCDs Meeting

MDG Review Summit at

UN General Assembly

WEF Davos Meeting


Ministerial Meeting

WHO NCDNet Meeting









Late 2010/2011

the alliance going forward
The Alliance going forward
  • The alliance: flexible and effective. Hard to coordinate more than 4 organisations.
  • We will use our 4 logos and not take a name
  • More NGOs asking to join, work with wider NGO group through NCDnet
  • US based Lance Armstrong Foundation funding NCD Alliance Campaign Manager, Greg Paton based in IDF
  • Alliance website as resource and rallying point. Other NGOs free to support our statements/actions.