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MS Nursing: A Global Success Story. Linda Morgante, RN,MSN,MSCN, CRRN Director of Clinical Services Maimonides MS Care Center Brooklyn, NY. Multiple Sclerosis results in. Physical and functional changes Emotional and social consequences Changes in self-image and sexuality

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ms nursing a global success story

MS Nursing: A Global Success Story

Linda Morgante, RN,MSN,MSCN, CRRN

Director of Clinical Services

Maimonides MS Care Center

Brooklyn, NY

multiple sclerosis results in
Multiple Sclerosis results in...
  • Physical and functional changes
  • Emotional and social consequences
  • Changes in self-image and sexuality
  • Financial loss and vocational instability
  • Societal stigma & environmental challenges
  • Uncertainty
slide3

Evolution in MS Treatment

The World of Multiple Sclerosis

EpisodicCare

Palliative

Measures

Diagnose

and

“adios”

Supportive

Management

Symptomatic

Intervention

MRI

and

“goodbye”

Disease

Modification

Clinical

Trials

Advanced

Technology

Wellspring

of

Hope

a new vision of multiple sclerosis
A New Vision of Multiple Sclerosis

During the past decade, a greater understanding of multiple sclerosis has emerged

New therapies have modified the disease course and changed the vision of the disease

What has emerged is a philosophy embracing action (early intervention), hope (I can do something about it), and empowerment

a new philosophy of ms care
A New Philosophy of MS Care
  • Acute, symptomatic, sustained, and rehabilitative care remain the mainstays of care
  • A wellness approach incorporates other systems of care (primary services, preventive measures, a focus on education)
  • The MS Team may be found in MS Centers, in private practices, and in “Centers without Walls”
the ms team
The MS Team
  • Neurologists, physiatrists, specialists, PMDs
  • Nurses, NPs, Medical Assistants, PAs
  • Rehabilitation Specialists (PT, OT, SLP)
  • Counselors (social workers, psychologists, neuropsychologists, voc rehab, clergy)
  • Patient Advocates/Case Managers
  • THE PATIENT AND FAMILY/PARTNERS
the ms nurse
The MS Nurse

The Multiple Sclerosis Nurse has emerged as a pivotal player in the MS team

S/he frequently is involved in many aspects of care either directly or indirectly

the many hats worn by ms nurses
The Many Hats Worn By MS Nurses
  • Care provider
  • Educator
  • Facilitator
  • Counselor
  • Case manager
  • Advocate
  • Researcher
evolution of ms nursing care

Advanced

Practice

Evolution of MS Nursing Care

Primary

Care

Specialist

Care

MS Center Care

Home

Care

Acute

Care

Rehab.

Care

Long-Term Care

International

Organization

of MS Nurses

MS

Research

nursing care in multiple sclerosis requires
Nursing Care in Multiple Sclerosis Requires...

Creativity

Caring

Empathy

Hope

Lots of Stamina

what is an ms nurse
What is an MS Nurse
  • A competent expert who collaborates with those affected by MS and shares knowledge, strength, and hope. He/she empowers people to cope, and inspires a spirit of optimism about living with this lifelong illness.
ms nursing philosophy
MS Nursing Philosophy
  • Nurses care for people with MS throughout the spectrum of the illness, and respond with expert knowledge, skills, empathy, and hope. Nurses empower people by facilitating treatments, managing symptoms, promoting maximal function, and supporting a wellness-focused quality of life.
mission of the iomsn
Mission of the IOMSN
  • The IOMSN was established to ensure that a specialized branch of nursing in MS will continue to grow, and flourish. The organization hopes to establish standards of nursing care in MS, support MS nursing research, educate the health care community about MS, and disseminate this knowledge throughout the world.
mission of the iomsn1
Mission of the IOMSN
  • The ultimate goal of the IOMSN is to improve the lives of all those persons affected by MS through the provision of appropriate healthcare services.

From thebylaws of the IOMSN

iomsn
IOMSN
  • The International Organization of MS Nurses was founded in 1997 in Calgary, Alberta, Canada.
  • The organization welcomes individual and affiliate members.
  • To date, there are over 700 members from around the globe.
benefits of iomsn membership
Benefits of IOMSN membership
  • Access to current information regarding best practices in MS nursing
  • Education materials for health care professionals and patients
  • Internet access for professional information and e-mail correspondence to nurse experts
  • Mentorship
benefits of membership cont
Benefits of membership (cont)
  • Scholarships which are available for research, educational opportunities, and attendance at conferences
  • Opportunities for international networking and joint meetings
  • Newsletter
  • Speaker training
credentialing
Credentialing
  • In 2001, an international board was established to develop and define the domains of MS nursing.
  • An exam to credential MS nurses was developed to capture the global commonalties within the field.
ms nursing domains
MS Nursing Domains
  • Clinical Practice
  • Advocacy
  • Education
  • Research
clinical practice
Clinical Practice
  • The care and nurturing nurses provide for the physical, emotional, social, and spiritual dimensions of the patient and family
  • The tasks that we do every day: injection trainings, infusions, bladder care, bowel care, etc.
clinical practice1
Clinical Practice
  • Establish a partnership
  • Perform a comprehensive assessment
  • Formulate a collaborative treatment plan
  • Initiate and facilitate a treatment regimen
  • Monitor outcomes
  • Sustain therapeutic alliances
education
Education
  • Increasing patient’s and family’s understanding of MS and how it affects each person
  • Informing patients about treatment strategies and the need for self-responsibility
  • Providing information about programs, services, and relevant resources
education cont
Education (cont)
  • Teaching and improving self-care skills (ie: self-injection, nutrition, fatigue and spasticity management)
  • Encouraging patients to maintain an active, wellness-oriented lifestyle
  • Fostering productivity
  • Encouraging informed decisions
advocacy
Advocacy
  • Increasing access to services, programs, and entitlements
  • Networking with community agencies and legislators
  • Facilitating public awareness of the needs in MS
  • Assisting patients with complex entitlements
nursing research
Nursing Research
  • Many questions come from clinical practice and require validation. Some of the areas MS nurses have studied include:
  • Adherence to injectable therapies: Self-efficacy
  • The Lived Experience: Relapsing/remitting MS
  • Women’s Issues: osteoporosis
the exam
The exam
  • There are 150 questions
  • Designed for a nurse who has worked in MS for 2 years
  • The majority of questions are related to clinical practice
  • Can get 41 questions wrong, and still pass
certification
Certification
  • There are more than 300 certified MS nurses (MSCN) in world!!
future directions of care in multiple sclerosis
Future Directions of Care in Multiple Sclerosis
  • Long-term options (housing, day programs)
  • Increased focus on MS in the neurologic community
  • Comprehensive care programs
  • Managed care centers
  • Improved access to rehabilitation programs
  • Networks of care (CMSC, RIMS, IOMSN)
future directions for ms nursing
Future Directions For MS Nursing
  • Continue global educational efforts (IOMSN)
  • Implement creative nursing measures to insure patient’s health and promote healing
  • Validate what we do through nursing research
  • Continue to credential MS nurses
  • Take care of ourselves, and one another