Deaf is Different:Unique Implications for EHDI Systems Leeanne Seaver, M.A. Janet DesGeorges Hands & Voices Marion Downs Center EHDI Conference March 3-4, 2005 Atlanta, Georgia
Unique considerations • Different from Whom? • Other disability categories; other ‘medical’ conditions • The communication factor • The Systems that serve us • Health, Law, Education • Screening, Identification, Early Intervention • Beyond the Clinical… • Societal, cultural, family
Health Systems Once “medical conditions/treatments” are ruled out or implemented – it no longer fits in the ‘medical’ category in families’ minds • Genetics • The ‘automatic assumption’ it should be done • The ‘Timing’ factor • Medical Home • As “Hub” of information • What medical professional holds the most area of expertise in hearing loss? • Sensitivity to the complexity of the decisions parents make
Early Intervention • Early Intervention • Choosing Sound • Specialized knowledge and skills • Generic vs. Hearing loss specific • Areas of specialty within deafness • By communication mode • By professional Degree (Early Childhood, Deaf Education, Audiology, Speech, Language Pathology • Consumers/Parents
Part C of the IDEA • Navigating Part C’s generic based system • Identification/Eligibility • State to state criteria • Natural Environments/LRE • Reauthorized language in IDEA 2004 • Least Restrictive Environment vs. Language Rich Environment • Transition to a ‘deficits’ based system • EHDI systems need to advocate with families going into the ‘next’ system
Beyond the Clinical… • Cultural/Societal • Language, culture, and community • History, literature, heroes, Accolades, political capital • Family • Steep hike up the learning curve • The need for information from a lot of sources • Impact on the Family
Hands & Voices National Leeanne Seaver, M.A., Executive Director Janet DesGeorges, Director of Outreach • PO Box 371926 • Denver, CO 80237 • 1-866-422-0422 toll free • 1-303-300-9763 (in Colorado) • email@example.com • www.handsandvoices.org
Hands & Voices and the Marion Downs Center Partnership • "The information provided in this material was supported by Grant/Cooperative Agreement Number UR3/CCU824219 from the Centers for Disease Control and Prevention (CDC). The contents are solely the responsibility of the authors and do not necessarily represent the official views of CDC."