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Renal Data Management Project: Enhancing Efficiency and Patient Care through Centralized Data System

Join the discussion on organizing and managing a secure UK renal data warehouse for improved clinical governance and data transfer. Explore granular data fields and derived results for better patient care, quality improvement, research, and education. Collaborate with Renal Units, NHSBT, SRR, UKRR, and other partners in enhancing data governance and supporting renal care.

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Renal Data Management Project: Enhancing Efficiency and Patient Care through Centralized Data System

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  1. TheProject_19092012x.ppx

  2. TheProject

  3. TheProject RenalUnits Labs .

  4. TheProject RenalUnits Labs .

  5. TheProject RenalUnits Labs NHSBT OtherNational data .

  6. TheProject RenalUnits RPV Labs UKRR SRR RaDaR NHSBT BAPN OtherNational data .

  7. hard to managewasteful summarised data can’t be recovered perpetuates errors some unknown >> biaseg RRT start date & unit lost in transferinflexible…

  8. TheProject RenalUnits Patient sees~all their data RPV Labs UKRR Warehouse SRR RaDaR?10-20 gps NHSBT BAPN RPV type data transfer,at least daily OtherNational data .

  9. TheProject RenalUnits Patient sees~all their data RPV Labs UKRR Warehouse SRR RaDaR?10-20 gps NHSBT BAPN OtherNational data .

  10. TheProject RenalUnits Patient moves renal unit RPV Labs UKRR Warehouse SRR RaDaR?10-20 gps NHSBT BAPN OtherNational data .

  11. TheProject For discussion:How a UK renal data warehouse be organised and managed securitydata and clinical governancemanagement – coalitionanonymisation/named dataencryptiondata transfer - ?XML Schema – HL7 data validation ?practical on anonymous data, where to do flexibility – allow new fields = data items to be added by userInclude meta data …

  12. TheProject Granular data Include fields for meta data … date time relative time (pre dose, post dialysis … ) sample if not obvious (venous, arterial blood, venous side of dialyser )result unit of measurement (eg Hb g/L, g/dL, mmol/L) reference range assay method (eg PTH)

  13. TheProject Granular data Diagnoses and procedures – Store at highest level required by initiatorAggregate later where requiredUse SNOMED CT terms & codes (UK Renal Terminology Committee)

  14. TheProject Derived data:store raw data where possible/ practicalderive resultseg BMI, URR …

  15. TheProject InvolvesPatientsRenal units already keen to join Registries (UKRR & SRR)Renal AssociationRPVRaDar Groups Renal IT industriesData GovernanceNHS, DoH, ISD

  16. TheProject Can we develop a project that better supports what we do:Care for patientsQuality improvement- units could devolve some QI to the registries prompts (Tx list), trends (infections) …Run the servicesResearch – basic and epidemiologyTeach & learn

  17. .

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