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Bioethical Challenges for the Rehabilitation Counselor. Bioethical Challenges - Current. Advance Directives Physician Assisted Suicide Reproductive Technologies Prenatal Diagnosis and Selective Abortion. Prenatal Diagnosis and Genetic Counseling. Ethical and Human Rights Concerns.

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bioethical challenges current
Bioethical Challenges - Current
  • Advance Directives
  • Physician Assisted Suicide
  • Reproductive Technologies
  • Prenatal Diagnosis and Selective Abortion
prenatal diagnosis and genetic counseling

Prenatal Diagnosis and Genetic Counseling

Ethical and Human Rights Concerns

prenatal testing
Prenatal Testing
  • Used to detect genetic disorders during early stages of pregnancy
  • Common Procedures:
    • Maternal serum screening
    • Chorionic Villi sampling
    • Amniocentesis
  • Carries risk of procedure-related miscarriage and false pos & neg
why is it important to detect genetic disorders
Why is it important to detect genetic disorders?
  • Reproductive Rights
  • Prevention of Suffering/Quality of Life
    • Child (wrongful life)
    • Parent (wrongful birth)
    • Society
  • Gives family time to prepare
why is it inappropriate to engage in prenatal testing
Why is it inappropriate to engage in prenatal testing?
  • Who is qualified to define quality of life?
    • Those without disabilities believe far greater suffering than those with disabilities
    • Quality of life is related to more to societal response than to the disability itself
  • Parents may feel coerced to do their part to “stamp out birth defects” (Moral responsibility to avoid preventable disease)
why is it inappropriate to engage in prenatal testing7
Why is it inappropriate to engage in prenatal testing?
  • Everyone has the right to exist
  • Child’s future right to autonomy is compromised by upholding parental right to autonomy
  • Slippery Slope
    • Discrimination vs. PWD
    • Selective abortion based on other undesirable characteristics – “Made to order” children
  • Perpetuates neg. attitudes toward disability
    • Better not to be born than to have a disability
why is it inappropriate to engage in prenatal testing8
Why is it inappropriate to engage in prenatal testing?
  • Belief that genetic counselors and physicians are biased toward selective abortion
  • General lack of knowledge about disability
  • Must make decision quickly before fully informed due to increased medical risk as pregnancy advances
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