Looking forward, pulling together and pressing on

1. Looking forward,pulling togetherand pressing on Lewis Ritchie

2. SCIMP 2008 Conference BallotInvitation to give final talk Please choose and tick only one of the following options:- • I am delighted & honoured to accept  • I am reluctant & have serious misgivings about this great responsibility  • You have sent this invitation to me by mistake 

3. SCIMP 2008 Conference BallotInvitation to give final talk Please choose and tick only one of the following options:- • I am delighted & honoured to accept  • I am reluctant & have serious misgivings about this great responsibility  • You have sent this invitation to me by mistake 

4. “Small men…..cannot handle great events” General Charles de Gaulle

5. Learning from the mistakes of others…..

6. The task: To summarise key principles and take home messages

7. An excellent Conference - packing it all in…..

8. Not biting off more than we can chew

9. A fair sense of proportion…. (proportionality)

10. Looking forward…. • Values, vision and leadership • Opportunities and obligations • Pulling together and pressing on

11. What of our values….?

13. A rapidly changing and uncertain world..

14. Remembering why we are all here

15. The importance of the clinician-patient relationship: • Essential humanity • Intimacy • Safety • Truthfulness • Mutual understanding • Workable consent for information sharing

16. Key value: “…Do unto others as you would have done unto yourself…..”

18. A few guiding principles…..

19. Guiding principles • Patient centred care = patient centred records • Patient and health professional needs main drivers - not available technology • Imperative of strong clinical leadership and professionalism

20. Guiding principles • Universal CHI - key for successful record linkage – “journey of care” • Cultural change and confidentiality concerns – are the ultimate obstacles - not technological constraints • Incremental, measured progress v “big bang”

21. “Prove all things…hold fast to that which is good” The imperative of evaluation – establishing resilient models, sharing success and the avoidance of duplication of effort

22. …but beware the Dubya binocular trap!

23. Scotland’s Health Challenge • Ageing population • Increase in long term conditions • Unhealthy lifestyles / obesity epidemic • Leading to: • Growth in emergency hospital admissions • Pressure on services / waiting times & lists • Compounded by: • Remote and rural dimension • Deprivation and inequalities • Increasing public expectations • Technological advances / cost pressures

24. Confronting the Health Care Challenge From Cell to Community Scottish Care Networks Translating Excellence In Life Sciences eHealth to support world class patient care New Evidence & Clinical Trials Community Cell

25. Vision • Traditional boundaries of care – demarcated by sectors of provision - must give way to integrated care, focused on the patient ‘journey of care’ • Primary and secondary care – the language of the past?

26. A patient centred service: the journey of care In the past organisational and perceptual barriers have separated primary and secondary care *CH, RGH, DGH Patient enters hospital* PatientHome Available as and when required NHS 24 Specialists 65 Specialties GPwSI Health information etc Pharmacy Dentistry Optometry Mental Health Services Sexual Health Services Diagnostics Primary Care Emergency Care Community Care GPs GPwSI Practice, District Nursing, Health Visiting, AHPs Source: Carol Black (modified), 2006

27. Our Vision for eHealth “exploiting the power of electronic information to help ensure that patients get the right care, involving the right clinicians, at the right time, to deliver the right outcome” Better eHealth Better Care NHS Scotland eHealth Strategy 2008 www.ehealth.show.scot.nhs.uk Heather Strachan

28. What it looks like:

29. Without vision, we perish……without values, we decay…without leadership, we lose our way

30. ….and the leadership thing?

31. “essential…in partnership with technical and other health professional and administrative support staff – the team”

32. A defining moment, a new morning, hope for the future

33. Opportunities & Obligations

35. “eHealth supporting the best clinical care and research environment in the world” AM’s four year “manifesto” – opportunity for change

37. Better Health Better Care • We are committed to the delivery of high quality palliative care • to everyone in Scotland who needs it, • on the basis of need not diagnosis, • and according to established principles of equity and personal dignity. • Extend the use of high quality • generalist palliative care standards in all care settings

38. Palliative Care Summary (PCS) Macmillan Nurses led initiative Palliative Care Forms Based on Gold Standards Framework Scotland (GSFS) Paper process already in place in many GP Practices IT Development to assist with key patient group Underpinned by new GMS DES Elizabeth Ireland and Libby Morris

39. 18 Weeks Referral to Treatment Time “ a whole journey waiting time target of 18 weeks from general practitioner referral to treatment …. by December 2011” Cabinet Secretary for Health and Wellbeing, Scottish Parliament – Official Report, 28th June 2007. Tracey Gillies

40. Current view of many clinicians Speed of access Quality Key Message: Both please! - Imperative of service redesign and cultural change

41. INFORMATION GOVERNANCE George Fernie Information Governance ensures necessary safeguards for, and appropriate use of, patient and personal information.Key areas are information policy for health and social care, IG standards for National Programme for IT systems and development of guidance for NHS and partner organisations. Key message: getting confidentiality right for both patients and professionals

42. A proportionality test A test of proportionality is the application of objective judgement as to whether the benefits outweigh the risks, using what some might call the test of reasonableness or common sense. Proportionality involves making a considered and high-quality decision based on the circumstances of the case, including the consequence of not sharing.

43. HealthSpace Development Patient portal through which they have a secure on line domain for their transactions with health service Aligned with Choices Place to store records – access on line electronic records-and also from which they can send information to their clinician Gillian Braunold

44. Key Messages - HealthSpace: • Considerable potential for real patient engagement and supported self care enhancement • Enhanced consent model possibilities • Patient audit of care and of professional access • Universality of eHealth – need to learn from other systems (to avoid the ‘Scots Wha Hae’ syndrome)

46. Information Literacy Cycle Heather Strachan

47. Key Message • Shared understanding and optimal use of health care information key for both patients and health professionals

48. Data Transfer v Data Migration • Not synonymous • Complex and usually incomplete • Classification of Diseases etc continues to evolve “Transfer of electronic patient records from one general practice to another a key milestone in primary care computing” Leo Fogarty

49. Pulling together and pressing on

50. Looking forward…a word of encouragement