It’s All About Living: Palliative Medicine. By Jacqueline A. Carrillo, MSN, FNP-BC DNP Candidate. Disclosure. No relevant financial disclosures to report. What is Palliative Care?. What it is NOT? Not- limited to End-of-Life Care Not- synonymous with Hospice
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Jacqueline A. Carrillo, MSN, FNP-BC
Life Prolonging Care
Hope for cure, life extension, a miracle…
Individualized blending of care directed
at underlying illness
physical, emotional, social, and spiritual
needs of child and family
with continuous reevaluation and adjustment
Hope for comfort, meaning…
Where Do We fit In?
Use of Advanced Skills
Suffering is a specific state of distress that occurs when the intactness or integrity of the person is threatened or disrupted. It lasts until the threat is gone or integrity is restored.
The meanings and the fear are personal and individual, so that even if two patients have the same symptoms, their suffering would be different.
Eric Cassel, MD
Information is a never ending resource
THE MOST IMPORTANT SKILL
Relationship Based Care
If it is offered it should be done
If there is love, they would want to stay with us as long as possible
Social Roles/ Dignity
Treatment is the only way to prolong life
You need to have decisions made for you now
Don’t give up.
We don’t want others to see
Go “down fighting”
Key Decisions for Long-Term Health Problems to Aid in Goal-Making: Long and Short Term
Maximize Quantity of Life
(More Time in One’s Life)
Prioritize Which Goal ?
Grave Health Problem
Maximize Quality of Life
(More Life in One’s Time)
Palliative Care often times increases both Quality and Quantity
Partially developed from Jackson, V. Massachusetts General Hospital
Roles of the APRN
The Joint Commission Advanced Certification for Palliative Care (http://www.jointcommission.org/certification/palliative_care.aspx )
Be an Advocate in Policy Making Environments
It’s All About Living
Wolfe et al JCO 2008
QUALITY OF LIFE FOR ENTIRE FAMILY