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34 th Annual Fall Conference: September 20, 2014 PowerPoint Presentation
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34 th Annual Fall Conference: September 20, 2014 - PowerPoint PPT Presentation

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34 th Annual Fall Conference: September 20, 2014
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  1. 34th Annual Fall Conference: September 20, 2014 Speaker: Randy Henniger, CRC survivor and ostomate Topic: Beating CRC Cancer and Surviving the Cure Or “Under the knife: A patient’s perspective”

  2. You know you’re a bowel disease suffererwhen… • You have a favorite "Ensure" flavor. • People ask about your guts, before they ask about your family.• You have more photos of your insides that the outsides. • You have a spare pair of underwear in your bag/pocket.• You get directions around the nearest restrooms Thank you all for picking “poop” as your career…LOL

  3. 1986:Stage III rectal cancer-age 30 Surgery, radiation, permanent colostomy “Mrs. Henniger, your husband will most likely be dead in 6 months.” +8 days from DX to surgery + Down for 4 days +11 days in hospital +90 days back to work 2014: Permanent urostomy-age 59 + Up and walking hours after surgery + 5 days in hospital + 7 days back to work Surviving the Cure: ED, Peripheral Neuropathy, Bladder Dysfunction

  4. Patient Support Needs

  5. Diagnosis • Make a decision • Ostomy as an option • Gathering resources • Peer programs • Online communities • www.ostomy.org • www.inspire.ostomy.org • Facebook groups: Colontown • Preparing emotionally • “We don’t love you for how you go to the bathroom!” • “It’s better than the alternative: BEING DEAD!”

  6. Treatment & Recovery • Pre-Op • Stoma marking • Not at the belt line-PLEASE! • Talk to an ostomate • Wear some products • Try on your clothes • Share with your partner? • Post-op: Meet your rosebud..so sorry! • Recovery: Physical, emotional and spiritual

  7. Survival • Acceptance • Physical changes & EMOTIONS • Relationships & Image • Activities: Just do it! • Irrigation: a lost art? • Can I or can’t I? • Thick skin/humor • Accidents will happen! • Join a support community • Sharing our stories • Changing public opinion

  8. Active Ostomates: No Limits Surfing Hiking Bikram hot yoga Rafting SCUBA Biking

  9. Thank you for ALL you do!14 million cancer survivors/1 million ostomatesWe would not be here without you!!!MyContact InfoQUESTIONS DURING LUNCH??? Randy.henniger@gmail.com www.activeostomates.com