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Diagnosis – What Next??. David Williams, Cerebra. Diagnosis – a good thing?. Relief Fear Grief Blame So I’m not going mad then? What do I do now?. What now?. Learning to be a parent all over again Becoming the expert Who do I go to for help and information? Isolation

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Diagnosis what next

Diagnosis – What Next??

David Williams, Cerebra


Diagnosis a good thing
Diagnosis – a good thing?

  • Relief

  • Fear

  • Grief

  • Blame

    So I’m not going mad then?

    What do I do now?


What now
What now?

  • Learning to be a parent all over again

  • Becoming the expert

  • Who do I go to for help and information?

  • Isolation

  • I thought the diagnosis would sort things out


Diagnostic labels
Diagnostic Labels

  • Asperger’s Syndrome

  • Atypical Autism

  • Autism

  • Childhood Autism

  • Childhood Disintegrative Disorder

  • High Functioning Autism

  • Hyperlexia

  • Kanner’s Autism

  • Mild Autism

  • Moderate Autism

  • Nonverbal Learning Disorder

  • Pathological Demand Avoidance Syndrome

  • PDD-NOS

  • Rett’s Syndrome

  • Severe Autism

  • Semantic-Pragmatic Disorder


Understanding the diagnosis
Understanding the Diagnosis

‘Well, Mr Williams, your son has Asperger’s Syndrome. I can recommend an excellent book by Tony Attwood..’

  • Internet

  • Books

  • Support groups

  • Cerebra’s Regional Officers


Education
Education

  • IEPs

  • School Action

  • School Action Plus

  • Statementing

  • Which school?

    Barriers: ‘He’s really quiet at school’; ‘He’s an intelligent boy’; ‘He’s not severe enough to need help’; ‘He’s not actually disabled, is he?’


Social services
Social Services

  • Mental health or learning difficulties?

  • Getting an assessment

  • Getting a social worker

  • Direct payments


Social security benefits
Social Security Benefits

  • Disability Living Allowance

  • Carer’s Allowance

  • Increases to other benefits

    Barriers: complexity of claim forms; stigma; negativity of claim form; lack of information; mis-information; lack of expert help


Cerebra
Cerebra

10 Regional Officers – 1 in Wales, 9 in England

  • General information on condition and support after diagnosis

  • Completing benefit forms, tribunal representation

  • Help with all stages of SEN process

  • Assistance with getting help with social services


Diagnosis what next 1328611

0800 32 81 159

Parent Help-Line



Cerebra s parent support1
Cerebra’s Parent Support

Satellites

Stress Counselling

Sleep

Service

Portfolios

Holiday House

Sensory

Toys

Grants

Wills & Trusts

vouchers

Speech Therapy Vouchers



Thanks for coming

Thanks for coming!

David Williams

Parent Support

Cerebra