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  1. The donor’s future role in the child’s life • Views of candidateparents • & • donors • A. Brewaeys, M. Brewaeys • E. de Reus • a.brewaeys@mckinderwens.nl MCK Fertility Centre

  2. Questions under investigation • Parents’ and donors’ desire for non identifying information • Parents’ intention to inform child • Parents’ and donors’ views on: • The child’s right to know its donor origin • Chance child wants to meet donor • Acceptance of future meeting between child and donor • Donor’s future role in child’s life MCK Fertility Centre

  3. Materials and Methods • Self developed questionnaire (response rate: 96%) • Population • Donors 47 • Heterosexual couples 77 • Lesbian couples 105 • Single women 80 MCK Fertility Centre

  4. Demographic characteristics candidate parents Age in years Education mean (SD) % with at least college level ______________________________________________________ He couples 32 (4.8) 54% Le couples 33 (3.8) 63% Single women 37 (2.4) 68% ____________________________________________ MCK Fertility Centre

  5. Donorcharacteristics • Age in years 37 (SD: 7.3) • Education (%) 73 (with at least college level) • Sexual orientation (%) heterosexual: 93 • Marital status (%) single: 54 • Children (%) no: 73 • Child wish (%) no: 42 yes: 34 yes later: 24 MCK Fertility Centre

  6. Motivations to donate (%) Helping infertile people 95 Creating offspring 61 Some kind of fatherhood 24 Validate own fertility 12 Financial reimbursement 5 MCK Fertility Centre

  7. What do candidate parents want to know about the donor (%) No information 8 _________________________________ Personality characteristics 28 Life circumstances 21 Physical characteristics 16 Number of children born 10 Professional activity 9 Motivation donor 8 MCK Fertility Centre

  8. What do donors want to know about candidate parents (%) No information 10 ________________________________ Number of children born 88 Life circumstances (family type) 21 Personality / Physical characteristics 5 MCK Fertility Centre

  9. Parents´ attitudes towards telling (%) Intention to tell? Yes Don´t know / later ___________________________________________ He couples 88 12 Le couples 92 8 Single women 93 7 ___________________________________________ MCK Fertility Centre

  10. How difficult is telling? (%) not difficult rather difficult difficult ______________________________________________ He couples 19 78 3 Le couples 60 40 - Single women 42 56 2 ______________________________________________ MCK Fertility Centre

  11. Most frequently expected difficulties are • At what age do I tell what kind of story? • When is the child ready to understand? • Would telling harm the child? • Would telling change the relationship between the non-genetic parent and the child? MCK Fertility Centre

  12. Child´s right to know donor´s identity(%) Agree Partly agree Disagree _____________________________________________ He couples 54 41 5 Le couples 81 19 - Single women 79 21 - _____________________________________________ Donors 100 - -_____________________________________________ MCK Fertility Centre

  13. Chance (informed) child wants to meet donor (%) <50% >50% Don’t know _______________________________________________ He couples 19 51 30 Le couples 11 75 14 Single women 5 71 24 _______________________________________________ Donors 20 48 32 _______________________________________________ MCK Fertility Centre

  14. Views on future meeting donor-child What would you think about a future meeting between your child and the donor ? (%) rather not would not mind would want to ___________________________________________________________ He couples 18 74 8 Le couples 3 89 8 Single women 2 70 28 ______________________________________________ Donors - 66 34 ____________________________________________________________________________ MCK Fertility Centre

  15. Views on donor’s future role in child’s lifecandidate parents (%) “what do you expect about the donor’s role in the child’s life?” He Les Single _________________________________________________________ None 49 35 14 Provider of information of certain characteristics 38 54 50 Person with whom child builds up a relationship 4 5 20 Don’t know / depends on child 8 6 16 ___________________________________________________________ MCK Fertility Centre

  16. Views on donor’s future role in child’s lifedonors (%) “What do you expect about your role in the child’s life?” None 15 Provider of information of certain characteristics 51 Person with whom child builds up a relationship 34 MCK Fertility Centre

  17. Summary • Results show a great diversity of opinions and feelings • Between groups • Within groups • An overlook on data along following lines: • The answers to our main study questions • Interesting differences between groups • Clinical implications Medisch Centrum Kinderwens

  18. Most striking findings: parents’ & donors’ desire for information • Majority of the parents would have liked some donor information • He couples the least • Most requested: • personality characteristics (intelligence) • Donors less interested • They mainly want know the number of children born out of their donation. MCK Fertility Centre

  19. Clinicalimplications • Shouldfertilityclinicsreconsidertheirpolicy ? • Whataboutgivingcandidateparents the opportunity to receive donor information? • Whataboutgivingthem the opportunity to maketheirown donor choice? Medisch Centrum Kinderwens

  20. Most striking findingstelling child • Majorityintends to informchild • A respectablenumberfindsit “ratherdifficult” to tell • Difficulties: • Which story at what age ? • Impact on family relationships and welfare child? • Clinicalimplications • Need to developwrittenmaterials and counseling programs that provide tools and help for DI parents in their proces of telling MCK Fertility Centre

  21. Most striking findingsfuture contact child-donor • Right to know donor’s identity? • Half He couples • MajorityLe couples & S mothers • All donors • Half of all groups: the chance of a future meeting >50. • The majority: no objection against a meeting • The donor’s future role? • None: He couples: 49%, • Provider of information: Le couples & single mothers 50% • Relationship with child : Single mothers 20% & Donors 34% MCK Fertility Centre

  22. Heterosexual couples • Ambivalence and uncertainty in their answers. This is reflected in : • Their difficulties to tell • No full commitment to the law: some question the child’s right to know the donor’s identity • Ambivalence about a future meeting donor-child • Need to develop group counseling programs for candidate parents and for parents with children Medisch Centrum Kinderwens

  23. Single mothers • Most open to donor contact in future • 20% wouldliketheirchild to have anemotionalrelationshipwith donor • Does absence of a partner increases donor expectations? • Risk childwillgrow up with donor expectationsthatmightneverbefulfilled • Counseling shouldaddress these issues Medisch Centrum Kinderwens

  24. Donors • Profile: • mean age 37 • highly educated • 50% single • 73% no children & 58 % child wish • Helping the infertile major motive but… • creating offspring 61% • some kind of fatherhood 24% • All under scribe the child’s right to know donor’s identity • 34% would want to built up a relationship with the child. MCK Fertility Centre