The Future is Open: Unleashing the power of people in 21 st century health & care

1. The Future is Open: Unleashing the power of people in 21st century health & care HC 2013 16 April 2013

2. People are making themselves heard… Ushahidi – “testimony” in Swahili In 2008 a group of Kenyan exiles developed a web service to map incidents of violence carried out by the government, reported via the web and mobile phones, eventually leading to UN intervention.

3. People are participating in government… The 311 movement: a model for the NHS? American cities transformed their commissioning efficiency through use of multi-channel platforms based around the 311 non-emergency helpline. They encouraged mass citizen feedback. New York receives 90,000 calls and texts a day. There is now clear evidence that ‘crowdsourcing’ municipal commissioning reduced costs , improved quality and has transformed citizen relationships

4. People are transforming science… WOW Since the Met Office launched Wow it has received more than 90million forecasts from the general public. Cell finder: Cancer Research UK Cellfinder has published more than 660,000 slides of potentially cancerous cells for analysis by the general public

5. People are transforming knowledge of space… Planet Hunters A collaboration between Yale University and Zooniverse, crowd sourcing the superior ability of the human eye over computers to spot patterns in light curves which may signify previously unidentified planets.

6. People are transforming everyday life… • Online banking – a consumer success story • Launched in the US in 1994 and in the UK in 1998 • Now >22M adult users (>50% of computer users) • Consumer applications offered with digital banking • Ability to transact • Customers pay bills and receive payments • Healthcare equivalent: ability to receive test results • Ability to book appointments • Online banks offer real time facilities to book meetings and calls with advisers • Healthcare equivalent: ability to email your doctor • Access to records • Online banking offers access to personal bank account applications in a secure environment • Healthcare equivalent: access to the medical record 6 SOURCE: Financial Fraud Action UK

7. People will transform health & care Purpose Create culture & conditions for health & care services and staff to deliver highest standard of care & outcomes Values & Behaviours Vision & Ambition We prioritise patients in every decision we take. We listen and learn. We are evidence-based Everyone has greater control of their health and wellbeing, Transparency Knowledge for All We are open and transparent. We are inclusive. We strive for improvement High quality care for all, now and for future generations Participation

8. What are the key cornerstones of 21st century health & care? Open Outcomes Good Data Transparency Text Text Knowledge for All Active Citizenship Patient in control Participation UNCLASSIFIED 8

9. Transparency & participation unleash power of people in health & care Accountability Choice Economic Growth Outcomes Customer Service Efficiency Knowledge for all Unleashing demand comparative data has promoted active choice in other sectors Raw material for enterprise NHS data offers global lead in technology and life sciences Driving up quality 1,000 fewer deaths each year in cardiac surgery since data published • Digital services • The VA reduced bed • days by 25% by introducing online record access to encourage self-care Identifying best practice and reducing waste Customer insight has transformed costs and value of health systems

10. Good data Developing data services and capabilities Supporting people to make the best decisions they can Transparency and Code for Health We will be publishing more data for free re-use and driving innovation and enterprise in the use of data by training staff and the public. We want Open Data in healthcare to be a social movement. care.data A modern data service for the NHS which will revolutionise the way we collect, protect, analyse, share and publish data. Enabling safe linked data to follow the patient across pathways of care to ensure outcomes can be analysed and patients given more information about quality of local care

11. Care.Data Linked interoperable data infrastructure which protects patients’ information and respects confidentiality Clinical & Prescribing Data from all care settings Safe Haven Data Flows Validation Data Linkage NHS England Commissioning Intelligence Tool Processing and derivations De-identification Clinicians / Research Publication and Access “Collecting and giving easy access to data linked across multiple care settings to unleash the power of data and transparency”..... Information for patients and the public

12. Patient and public voice A new approach to public engagement Customer Insight Every NHS organisation that receives funds from NHS England will need to demonstrate it is listening to its service users and responding to their requirements. From April 2013, one such tool – the Friends and Family test – will be mandatory in every NHS acute Trust. Civil Society Assembly A new initiative to bring together NHS champions to work with NHS England shaping its future. A virtual and physical network for anybody who wants to support and develop the work. It will have a steerco comprised of leaders from a variety of backgrounds, as well as patient bodies

13. Customer service Giving the patient control and choice when they want it

14. Customer service Putting knowledge revolution in the heart of health and care A new customer service platform will launch in November 2013 This will mark a watershed in the adoption of digital technology in healthcare. It will provide a multi-channel point of access to information and services in the NHS. It will be the biggest online service of its kind

15. Knowledge for everyone UK Online From April 2013, 50 existing UK Online Centres in local settings, such as libraries, community centres, cafes and pubs will receive additional funding to develop as digital health hubs, where people will be able to use technology to improve their health and wellbeing. They will provide training and support to help people to go online for the first time so that they can start using information services such as NHS Choices. Digital inclusion will have a direct impact on the health of the nation, helping people to take control of their own health and make choices that are right for them.

16. Digital first

17. Digital first Promoting customer service and growth

18. Digital future http://www.youtube.com/watch?v=p2eiiBujIv4&feature=player_profilepage