Results of a patient-completed. questionnaire about facial lipoatrophy. and its repair procedures in France. Poster P35 Emmanuel TRENADO , Thierry PRESTEL, Hind GAIGI, Jérôme SOLETTI AIDES, Tour Essor, 14 rue Scandicci, 93508 Pantin CEDEX, France Tél.: +33 1 41 83 46 13
questionnaire about facial lipoatrophy
and its repair procedures in France
Emmanuel TRENADO, Thierry PRESTEL, Hind GAIGI, Jérôme SOLETTI
AIDES, Tour Essor, 14 rue Scandicci, 93508 Pantin CEDEX, France
Tél.: +33 1 41 83 46 13
Fax: +33 1 41 83 46 19
To evaluate the need for and obstacles for repair procedures among HIV positive persons who experience facial lipoatrophy while on antiretroviral therapy. To collect patient satisfaction of the results of such procedures by people who have undergone them.
The first part of the questionnaire was for people who had undergone repair procedures.
The second part was for people with lipoatrophy who had not yet done so.
A questionnaire was distributed to people experiencing facial lipoatrophy in hospitals, over the Internet, through AIDES chapters and the phone help line all over France and printed in the September 2001 issue of Remaides (community-based newsletter).
248 questionnaires were analyzed.
The majority of responders are male.
A majority of returned the questionnaires had been distributed with the newsletter REMAIDES (133 out of 248).
The majority of responders were between 30 and 49 years old (71,8%).
1,2% of responders did not answer this intem
67,3% of responders had been HIV-positive for more than 10 years.
The most frequent body changes that are reported, in addition to facial lipoatrophy, are:
2) lost of fat in the buttocks
3) belly fat accumulation
5) increase in breast size
6) buffalo neck
The chart shows that most responders have been exposed to NRTIs - retrovir (73,3%) videx (78,5%) epivir (85,8%) zerit (89,1%).
62,2% of responders have been exposed to ARVs for more than 5 years.
Most responders had discussed lipoatrophy with their doctors (77%).
If yes, did your doctor explain the different repair procedures?
Overall only 49,6% of responders had discussed repair procedures with their doctors.
Type of repair procedure
23,4% of responders had access to repair procedure (58 persons, 50 men and 8 women)
Among the majority of responders, the first access to repair procedure happened starting year 2000.
Last injection of filling product occurred in
Two types of filling products are in use in France:
Temporary filling products
Most responders (72,5%) report having used acide polyactique (New Fill) as filling product.
Acid Hyaluronique (Restilane and Perlane for example) is also reported as being used (12,5% of responders).
« Other products » (15%) are mainly composed of permanent filling products such as Gore-Tex.
It takes several injections to improve facial lipoatrophy.
The injection of filling products or the autologous fat implant surgery were well tolerated (86,8%).
Overall, 75% of responders are satisfied or very satisfied with the results of the repair procedure.
25% of responders are not satisfied (mainly lack of filling effect or price issue).
Responders were well informed about the possible temporary effect of the repair procedure: 94,3% of responders were explained that the results will be temporary.
How often were you told that you will need repair procedures?
A majority of responders paid for the repair procedures (51%) but an important number of responders benefited from diverse forms of reimbursement:
Did you pay for the repair procedure?
Lack of information and financial reasons are stated as being the main obstacle for access to repair procedures. Among responders who answered “Other reasons” about one fourth state that facial lipoatrophy was mild and didn’t need repair procedure for the moment.
Would you like to have access to repair procedures?
1- My doctor does not want
2- I don’t know any doctor who could help me
3- I have some apprehension
4- Other reasons
5- Financial reasons
6- Lack of information
A very large majority of responders would like to have access to repair procedures.
Only half of the responders report knowing about the available repair procedures.
If yes, which one you would like to use?
A vast majority (77,9%) of responders who knew about available repair procedures, and had not yet undergone any, wishes to use filling products. The main reason reported to discard surgery is the existence of a long waiting list for such procedure.