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Author: Latvian Cancer Patient Society «Dzīvības koks» 2015

The role of Oncological Patient Support Society in support and increase of life quality of the patient Patients in Latvia: Challenges and Lessons Learned. Author: Latvian Cancer Patient Society «Dzīvības koks» 2015. Latvian Cancer Patient Society «Dzīvības koks» – WHO ARE WE?.

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Author: Latvian Cancer Patient Society «Dzīvības koks» 2015

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  1. The role of Oncological Patient Support Society in support and increase of life quality of the patient Patients in Latvia: Challenges and Lessons Learned Author: Latvian Cancer Patient Society «Dzīvības koks» 2015

  2. Latvian Cancer Patient Society «Dzīvības koks» – WHO ARE WE? • Leading cancer patient society • Founded in 2004 • Central office in Riga, 2 regional offices • Priority – improving oncological patient life quality

  3. ON THE MOVE 365 DAYS

  4. OVERALL SITUATION IN LATVIA • Registered cancer patients – 74 647 (2014); (49 098 -( 2000 ) • First diagnosis per year – 12 thousands (2014) ~ 40% lately diagnosed • Lung cancer ~1082 (2014) newly diagnosed; total lung cancer patients- 2662 (2014), 5 years survivorship- 1334 (2014) ~ 77% lately diagnosed • From 2009 – organized cancer screening programs (breast cancer; cervical cancer; colorectal cancer), organized HPV vaccination for young girls (12 years old) Insufficient • «Cancer alarm year»- 2015 NO REHABILITATION SERVICES AVAILABLE FOR CANCER PATIENTS IN LATVIA!

  5. Cancer treatment in Latvia • Concentrated in 4 clinics ( RAKUS;PSKUS; Piejūras slimnīcas onkoloģijas klīnika, Liepāja; Daugavas slimnīcas onkoloģijas klīnika, Daugavpils) • Primary – medical treatment; until 2009 no talks about rehabilitation as part of treatment

  6. CHALLENGES… • Medical, social and professional rehabilitation – What is psychosocial? Who is responsible? • Cancer patients are not a direct target audience for receiving rehabilitation services – why? • Changing the LAW – how to lobby? • Lack of specialists specialized in onco-psychology and psycho therapy • Overall acceptance by doctors, common understanding – including in guidelines for cancer treatment • Limited financial resources

  7. Specifics of cancer • Not only physical disease • Cancer- psychosomatic damage • Sometimes it is named as «veteran syndrome» • Cancer- personal psychosocial crisis • Cancer – confusion for family and loved ones • Cancer - social isolation • Cancer- financial burden and loss

  8. Specifics of cancer • Fear • Stereotypes • Stigma • Cancer= death • Cancer= pain • Cancer= loneliness

  9. Psychosocial support and rehabilitation • Psychosocial support, an ambitious package of measures that focus on emotional health and social integration. • Psychosocial support should be topical diagnosis of learning of the time (patients and relatives) • Particularly significant psychosocial rehabilitation at the time of the end of the active treatment and the man remains alone- how to live further? • Research shows that 40% of cancer patients (of the population) are unable to cope with the aftermath of disease caused by psychoemotional stress

  10. The goal raised by our association Psychosocial support during active therapy and rehabilitation services after active therapy MUST be provided by law and easily accessible for all cancer patients!

  11. WHAT HAS BEEN DONE?(1) First of all, necessity to approve psychosocial rehabilitation needs after active medical treatment • Since 2009, psychosocial rehabilitation program «Spēka Avots» was developed • Programs based only on donation and project activities, without any support from government • More than 600 patients take part in rehabilitation programs since 2009

  12. WHAT HAS BEEN DONE?(2) Second: to find out our «friends»— doctors, professionals, professional associations for support and psychosocial rehabilitation needs argumentation • Program «Spēka Avots» (Source of Strengths ) for cancer patients based on the concept of Montebello Centre Norway • Leading industry experts and specialists involved • Educational programs for GPS and social workers, national and international conferences

  13. WHAT HAS BEEN DONE? (3) Third: needs to change legislation- to introduce psychosocial rehabilitation as government paid service for those patients who needed • Ongoing lobbying (advocacy) activities to make it financed by Latvian government • Ministry of Health, Ministry of Welfare, Cabinet of Ministers, Parliament • Cooperation with local and regional governments'

  14. WHAT HAS BEEN DONE? (4) Fourth: continuous information activities for various target audiences (information buckles, newspaper, internet webpages, social networks, video and audio informational clips, special events, educational projects and programmes etc.) • Patients and relatives • Professionals‘ (oncology, GPs, social workers etc.) • Mass media (real life stories..) • Decision makers (local and national level, not only politicians' but also administrative workers, clerks…) • NGOS (health care and civic society- as support groups) • Society at all

  15. WHAT HAS BEEN DONE? (5) • We are now on changes on low on Social aid and social services • The changes in Parliament on 2nd reading • We hope that from 2017 psychosocial rehabilitation for cancer survivors will be available as government paid service

  16. SINCE THEN – MORE THAN 19 CAMPS, MORE THAN 600 PARTICIPANTS…

  17. GROUP THERAPY, LECTURES, ART, MUSIC & DANCE THERAPIES, YOGA, INDIVIDUAL CONSULTATIONS…….

  18. THE FUTURE- PSYCHOSOCIAL REHABILITATION CENTRE IN DIGNAJA

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