1 / 28

Community-Based Participatory Research - PowerPoint PPT Presentation

  • Uploaded on

Community-Based Participatory Research. María Luisa Zúñiga, PhD Associate Professor Division of Global Public Health, Medicine Division of Child Development and Community Health, Pediatrics University of California, San Diego Fall 2011. Learning Objectives.

I am the owner, or an agent authorized to act on behalf of the owner, of the copyrighted work described.
Download Presentation

PowerPoint Slideshow about ' Community-Based Participatory Research' - caesar-bartlett

An Image/Link below is provided (as is) to download presentation

Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author.While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server.

- - - - - - - - - - - - - - - - - - - - - - - - - - E N D - - - - - - - - - - - - - - - - - - - - - - - - - -
Presentation Transcript
Community based participatory research


Participatory Research

María Luisa Zúñiga, PhD

Associate Professor

Division of Global Public Health, Medicine

Division of Child Development and Community Health, Pediatrics

University of California, San Diego

Fall 2011

Learning objectives
Learning Objectives

  • Define Community-Based Participatory Research (CBPR)

  • Describe evidence of CBPR

  • Describe community data sharing activities

1 community based participatory research cbpr

1. Community-Based Participatory Research (CBPR)

Communities as partners
Communities as Partners

“Community-based participatory research is one approach that engages diverse partners in strategies aimed at obtaining multiple perspectives in order to address community-identified concerns”

Minkler & Wallerstein, 2003

Community based participatory research
Community-based participatory research

  • Meaningful engagement of community partners

  • Equitable power structure

    - money & shared decision making

  • Includes data feedback

  • Long-term commitment

  • View as a process

Community based participatory research

Who should participate in CBPR?Who represents ‘the community’, Who represents academic researchers?Who are the “experts”?

Relevance of cbpr to research
Relevance of CBPR to research

  • Research activity is grounded in the realities of study participants—improves relevance of findings to the community

  • Improves our ability to measure more accurately—relevance of study questions

  • Opportunity to validate prior research findings

Benefits to researcher community
Benefits to researcher & community

  • Interdisciplinary

  • Diversity of perspectives and participation

  • Potential for capacity & skill building for all involved

The moment your are conceiving a cbpr study
The moment your are conceiving a CBPR study…

  • Invite a community partner to serve as a consultant or Co-Investigator on your grant

    • Experiences with partner agencies can provide profound learning experiences…

      • Benefits:

        • Broader dissemination of knowledge

        • Credibility

Planning for cbpr
Planning for CBPR

  • Identify persons that are intimately familiar with the community

    • Examples:

      • Members of support or advocacy groups

      • Persons working in non-profit agencies

      • Clinic personnel and leadership

  • Be aware of: inter-group politics, agency or personal agendas or other factors that can negatively influence your work together

Planning for cbpr cont
Planning for CBPR, cont. speak the language …

  • Consider various approaches to engage different members of the community

  • Plan with community partners a way to give back data

    • Presentation to clinic staff, support group, simple flyer

  • Engaging prior to the work being done

Cbpr during study implementation
CBPR during study implementation speak the language …

  • Foster open, trusting lines of communication—don’t be shy about mapping out a communication diagram with partners

  • Frequent meetings

  • Be mindful of community perception

    e.g. study border population cautious of sharing sensitive information

Keeping your community engaged
Keeping speak the language …your community engaged

1. Provide results and feedback to community members, think about how ahead of time

2. Have a good idea of the relative importance of the issue to the community

3. Be aware of which populations are likely to benefit

4. Describe anticipated benefits to the community

5. Work with community to determine next steps

6. Determine a sustainability plan with key community members

Community based participatory research

Community Data Sharing speak the language …

Cbpr during data analysis interpretation dissemination
CBPR during data analysis, interpretation & dissemination speak the language …

  • Ask community and research team what they think is important to analyze (what do they want to know?)

    • Present ideas to get the ball rolling

  • Before a formal write-up, present findings to different groups to gain perspective and general consensus

Cbpr during data analysis interpretation dissemination1
CBPR during data analysis, interpretation & dissemination speak the language …

  • Ask partners to summarize lessons learned about the study…genuinely great ideas come out of this process.

Dissemination of findings
Dissemination of findings speak the language …

  • Gauge community partner interest in writing a manuscript

  • Be very clear about expectations of co-authorship

  • Importance of Community Acknowledgement

Community based participatory research

Vaya speak the language … con la gente.

Viva con ellos, Aprenda de ellos, Amelos.

Comience con lo quesaben,

construya con lo quetengan.

Y con los mejoreslíderes, cuando se ha terminado el trabajo,

la tareaconcluida,

la Gentedirá:

“Nosotrosmismos lo logramos”

Lao Tzu. China, 700 B.C.

Community based participatory research

fin speak the language …

Community based participatory research
Primary principles of ethics in research: speak the language …Also good ideas to keep in mind when engaging community members

1. Respect for persons

  • Autonomy and protection of persons w/ diminished autonomy

  • Free power of choice; consent (voluntary & informed)

  • Sufficient knowledge & ability to comprehend nature, duration & purpose of research

    2. Beneficense

  • Respect for decisions; protect from harm; secure well-being

    3. Justice

  • Who benefits from research; fairness in distribution; who bears burden

    References: Annas GJ (2009); Nuremburg Code (1947); National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research 1979 (Belmont Report 1976--U.S. funded research)

Protection of participants
Protection of participants speak the language …

  • Approval of all research protocols required PRIOR to initiating work

    • Recruitment protocols, consent forms and survey measures

  • Community & other institutional IRBs

  • Field staff and investigators should complete Ethics and Human Subjects trainings

Researcher obligations
Researcher obligations speak the language …

  • Consider potential for increasing vulnerability or visibility of study population

    • Questions (may go undetected by IRBs who are unfamiliar with specific vulnerabilities of some groups)

    • Biomarker data

    • Immigration status

    • Potential for funding loss for clinic for non-residents

    • Unintended consequences (cause undue fear among study population)

Figuring out if you got it right

You get invited back speak the language …

You can invite yourself back

Community members come to you for continued feedback and advice

You can go to community members for continued feedback and advice

Figuring out if you got it right…..

Community based participatory research

Go to the People. Live with them, speak the language …

Learn from them,

Love them.

Start with what they know,

Build with what they have.

But with the best leaders,

When the work is done,

The task accomplished,

The people will say:

“We have done this Ourselves”

Lao Tzu. China, 700 B.C.


University of California San Diego speak the language …

Patronato Pro - COMUSIDA Tijuana, A.C.

County of San Diego,

Health and Human Services Agency

Public Health Services


  • TIES Program: US-Mexico Training, Internship, Exchange, Scholarships(Sponsored by USAID)

  • El Cuete Project Staff and Co-Investigators

  • Funding by NIDA (DA09227-S11, DA019829); USAID (GSM-025); NIMH (5K01MH072353)

  • CFAR Developmental Grant Funding