Rena Greifinger, MS Independent Consultant Director, One Love Project at Next Step

1. Addressing Psychosocial Support Needs of Transitioning Adolescents Living with HIV Since Childhood: A Global Perspective Rena Greifinger, MS Independent Consultant Director, One Love Project at Next Step 2012 International AIDS ConferenceWashington D.C. USA

2. Anatomy of an Adolescent Brain

3. Anatomy of an Adolescent Brain Living with HIV ADHERING TO MEDS FEELING ISOLATED AND DEPRESSED DISCLOSURE TAKING CARE OF OTHERS GETTING TO THE DOCTOR DEALING WITH STIGMA COPING WITH LOSS

4. What Does Psychosocial Mean? Unpacking our definition. • Psycho - Feelings, thoughts, beliefs, and attitudes. • Social - Interactions, culture, family, peers, school. • Psychosocial support • Individual and group counseling • Peer support • Case management • Psychosocial well being ICAP Adolescent HIV Care and Treatment

5. What Psychosocial Challenges do ALHIV Face?

6. SOCIETY/POLICY Gender inequality Political inertia COMMUNITY Stigma Unsupportive schools Churches/religious institutions Policies go unnoticed Lack of funding ORGANIZATIONAL Stigma Workplace discrimination Weak referral systems Weak linkages to care Lack of trained professionals INTERPERSONAL Loss/bereavement Stigma Disclosure Weak social/family support Stigma INDIVIDUAL Coping w/diagnosis Fear/anxiety about the future Mental health/substance use Stigma poverty

7. 4 Recommendations from the field, for the field

8. Recommendations from the field, for the field • Provide psychosocial support that is holistic, intentional and sustainable • Address all clinical and psychosocial needs • Design programs for ALHIV specifically • Provide long-term support

9. Recommendations from the field, for the field • 2. Provide training and capacity-building • Clinical care needs • Sexual and reproductive health • Creating a youth-friendly environment

10. Recommendations from the field, for the field 3. Critically involve ALHIV • Treat ALHIV as the experts that they are • Create meaningful partnerships with adults • Shift paradigm from survival to quality of life • Harness the power of peers

11. Recommendations from the field, for the field 4. Improve linkages to care & support • SRH services including PMTCT • Adult care services • Peer and psychosocial support • Education and employment support

12. Recommendations from the field, for the field Cross-cutting themes • Stigma • Sustainable resources

13. One Love Projecta program of Next Step

14. No Longer Voiceless Conference • Annual 5-day retreat for YPLHIV and health care providers • Grounded in positive youth development • Ongoing engagement model

15. 2012 Agenda * disease progression * adherence * poetry interviewing * financial literacy * advocacy *yoga * complementary therapies * housing * college options * non-college options * substance use * sexual health * relationships * disclosure * zumba * music therapy * painting *public speaking * resume writing *social media * peer pressure * bullying * dancing * stress management * the law * nutrition *

16. Impact • Improved confidence, attitude, self-efficacy • Increased linkages to care, psychosocial support, job training, advocacy, media; etc. • Replication • One Love West Coast • SHIFT Uganda

17. THANK YOU!