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CVID in Motol Hospital - data extraction -

CVID in Motol Hospital - data extraction -. Janečková Daniela Vaněk Petr Cvaková Dagmar Pešková Petra Janda Aleš. 2nd Medical Faculty Charles Univerity. Patients´ Characteristics. Patients´ Characteristics. Increased no. of infectious diseases requiring antibiotics

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CVID in Motol Hospital - data extraction -

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  1. CVID in Motol Hospital- data extraction - Janečková Daniela Vaněk Petr Cvaková Dagmar Pešková Petra Janda Aleš 2nd Medical Faculty Charles Univerity

  2. Patients´ Characteristics

  3. Patients´ Characteristics • Increased no. of infectious diseases requiring antibiotics • respiratory tract, paranasal sinuses,… • Approx. 3 infectious episodes per year • Increased incidence of autoimmune diseases • Crohn (2), ITP (4), Hashimoto´s thyreoiditis (1), IDDM (1) • IgA deficit (11)

  4. Treatment • Approx. each 4 weeks ambulatory IVIG application • Mean dose: 170 mg/kg • Mean IgG level: 4.8 g/L

  5. Case Report • Male, born 1994 • Since 1995 recurrent RTI, 1996 mastoiditis, 2x chicken pox • Allergy, atopic eczema • Since 2004 treated in Motol • in 2006 Crohn disease diagnosed • Current treatment • Remicade, Imuran, Pentase, IVIG (transition to SCIG)

  6. Crohn Substitution 2004 2005 2007 2006 2003 2008

  7. Data extraction • advantages: • data collection • improvement in patients’ care • constraints: • paper documentation, transition to electronic patient chart • time demanding • data on 24 patients = 170 hours = 7 hours/patient • online upload

  8. Local x Online

  9. WHAT IS YOUR EXPERIENCE?

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