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COCHRANE CONSUMER NETWORK . PRESENT PAST FUTURE. THE PAST. 1993 - the first Colloquium in Oxford, England – first steering committee was appointed by the participants – Hilda Bastian represented consumers on that Steering Committee

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cochrane consumer network

COCHRANE CONSUMER NETWORK

PRESENT

PAST

FUTURE

Liz Whamond

the past
THE PAST
  • 1993 - the first Colloquium in Oxford, England – first steering committee was appointed by the participants – Hilda Bastian represented consumers on that Steering Committee
  • 1994 – the Cochrane Consumer Network was proposed – a second consumer position on the Steering Committee was granted

Liz Whamond

the past cont d
THE PAST – CONT’D
  • 1995 – there were 25 members in the Network and Hilda Bastian became Coordinator
  • First AGM was held in in Oslo, Norway
  • Interim coordinating committee consisted of Jean Jones (Canada), Fran Visco (USA), Ros Woods (Australia) and Hilda Bastian (Australia)

Liz Whamond

the past cont d1
THE PAST – CONT’D
  • 1996 the membership more than doubled
  • The second AGM was held in Adelaide, Australia
  • 14 consumers attended from six countries
  • The first newsletter was published

Liz Whamond

the past cont d2
THE PAST – CONT’D
  • 1997 membership was a key priority
  • The second newsletter was published
  • 25 consumers from 8 countries attended the Amsterdam Colloquium
  • A local management committee in Adelaide was developed that was directly accessible to Convenor rather than an international structure

Liz Whamond

the past cont d3
THE PAST CONT’D
  • 1998 the Convenor was supported financially for two days plus a coordinator who worked for two days per week
  • Funding was provided by ACC to CCN
  • Three newsletters were published
  • The first consumers from developing countries (South Africa and Zimbabwe) attended the Colloquium in Baltimore, Maryland

Liz Whamond

the past cont d4
THE PAST CONT’D
  • 1999 was the year of the Rome Colloquium
  • Two newsletters were published
  • CCN membership was at 353
  • Communications costs were increasing necessitating the switch over to e-mail and web communications

Liz Whamond

the past cont d5
THE PAST CONT’D
  • ACC grant moved to Melbourne, CCN stayed in Adelaide and was left with some funding
  • Medibank Private began funding a web-based consumer health information system paid directly to CCN
  • Capetown, South Africa AGM was attended by 20 consumers from 11 countries
  • Less emphasis on recruiting consumers with more concern for activating and supporting existing membership

Liz Whamond

past cont d
PAST CONT’D
  • 2001 saw a decrease in funding from the ACC
  • Funding became a major concern
  • CCCNI was incorporated as a non-profit association to receive outside funding
  • AGM in Lyon was attended by 23 people from 10 countries
  • A governance working party was established

Liz Whamond

the past cont d6
THE PAST CONT’D
  • 2002 was a real shift for the organization
  • While membership had grown substantially, it was felt that the governing body should be truly international
  • Working group continued on the governance document
  • The Convenor resigned from the Management Committee and her work with Medibank Private on the health information website continued

Liz Whamond

the present
THE PRESENT
  • 2003 (January) the new governing council took office
  • Membership of the Governing Council is: Godwin Aja (Nigeria), Don Baumber (Australia), Gill Gyte (England) Samuel Ochieng (Kenya), Silvana Simi (Italy), Janet Wale (Australia), Liz Whamond (Canada) and Sara Yaron (Israel)

Liz Whamond

the present cont d
THE PRESENT CONT’D
  • We have major challenges in terms of funding as there were no assets remaining from the previous management. All work is conducted by the Governing Council
  • We procured funding through the Australian Department of Health and Ageing to host a workshop in Australia, to develop a checklist exercise, to conduct a survey of Cochrane Collaborative Review Groups and Fields on consumer participation and a model strategic plan

Liz Whamond

the present cont d1
THE PRESENT (CONT’D)
  • An orientation folder has been developed through the Australian funding
  • Four newsletters have been produced
  • We continue to monitor the consumer e-mail list
  • We have members on the Cochrane Steering Group and several sub-committees

Liz Whamond

the present cont d2
THE PRESENT (CONT’D)
  • The Governing Council met in Barcelona in Oct.
  • Our name changed to Cochrane Consumer Network (CCNet)
  • We had a Special General Meeting and an AGM during the Colloquium
  • Several consumer workshops were held including “Making Sense of Evidence”
  • The Governing Council has been renamed to the Coordinating Team
  • The CCSG provided discretionary funds to CCNet

Liz Whamond

the future
The Future
  • Our governance document will be re-examined to ensure that it’s realistic and meets the needs of consumers worldwide
  • We will to continue to grow our membership
  • Our draft Strategic Plan will be further developed
  • We are working towards becoming a Cochrane Field

Liz Whamond