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Personal Health Records: Past and Future Directions, In Two Acts PowerPoint Presentation
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Personal Health Records: Past and Future Directions, In Two Acts

Personal Health Records: Past and Future Directions, In Two Acts

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Personal Health Records: Past and Future Directions, In Two Acts

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  1. Personal Health Records: Past and Future Directions,In Two Acts Clement J. McDonald, MD James J. Cimino, MD Lister Hill National Center for Biomedical Communications National Library of Medicine

  2. No Relevant Financial Relationships with Commercial Interests James J. Cimino, M.D. Disclosures

  3. Learning Objectives – Act I • An introduction to consumer access to health information, including their own personal health data • Familiarity with a sample of typical consumer-oriented health information sites • Demonstration of some of the early experiments with patient health records

  4. Motivators • Patient self-help/self-care • Patient autonomy • Coordination of care • Health insurance - patient as case manager

  5. What's New? • Ability to interface with remote systems • Common user environment • Platform independence • Internet culture • Critical mass effect

  6. What Do Consumers Want? • Access to health information • Help in finding a caregiver • Purchasing power • Community • Access for providers • Access to their own records • monitor • understand • contribute

  7. Mayo Clinic: www.mayohealth.org

  8. Virtual Hospital: www.vh.org

  9. HMO: www.oxhp.com

  10. WebMD: www.webmd.com

  11. NLM Gateway: gateway.nlm.nih.gov/gw/Cmd

  12. MedlinePlus: www.nlm.nih.gov/medlineplus

  13. Healthfinder: www.healthfinder.gov

  14. CDC Preventive Guidelines: www.cdc.gov

  15. Buy Cipro: www.online-prescriptiondrugs.com/cipro.shtml

  16. Issues • Privacy and confidentiality • Quality of health information (credentialing)

  17. Zapper: www.drclark.net/disease/zapper.htm

  18. Health on the Net Code of Conduct (HONcode) • Authority (authors) • Complementarity (support, not replace) • Privacy (respect personal data) • Attribution (source of published information) • Justifiability (back up claims) • Transparency (of authorship) • Financial disclosure (funding source) • Advertising policy (distinguish ads from content)

  19. Health on the Net:www.hnot.ch

  20. Issues • Privacy and confidentiality • Quality of health information (credentialing) • Understanding health information

  21. breast cancer survival The 5-year overall survival, cause-specific survival, local recurrence-free survival and disease-free survival rates were 97.3%, 98.4%, 98.1%, and 91.5%, respectively.

  22. Issues • Privacy and confidentiality • Quality of health information (credentialing) • Understanding health information • Understanding their records • Patient relations with care givers • Have-nots • Accuracy of data contributions

  23. Issues • Privacy and confidentiality • Quality of health information (credentialing) • Understanding health information • Understanding their records • Patient relations with care givers • Have-nots • Accuracy of data contributions

  24. Some Examples of Past Systems • Patient Centered Access to Secure to Secure Systems Online (PCASSO) • Patient Clinical Information System (PatCIS)

  25. Some Examples of Past Systems • Patient Centered Access to Secure to Secure Systems Online (PCASSO) • Patient Clinical Information System (PatCIS) • MyHealthAtVanderbilt

  26. MyHealthAtVanderbilt:www.myhealthatvanderbilt.com/myhealth-portal/appMyHealthAtVanderbilt:www.myhealthatvanderbilt.com/myhealth-portal/app