The Haven. Innovative Service User Led Research. Reasons for the Research. Growing number of disaffected clients a Personality Disorder diagnosis Debbie Tallis - Guardian Article - Feb. 1997 Dr. Ooi - Guardian Article - July 1997 Lesley Allen ’ s letter
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Innovative Service User Led Research
Personality Disorder diagnosis
Total Female Male
Borderline Personality Disorder 29 23 6
Dissocial Personality Disorder 14 3 11
Unspecified Personality Disorder 7 4 3
We need more communication – no-one talks to you.
The response is too slow.
We don’t want to be told we’re not ill.
We need acceptance and staff who understand.
We need a relaxed atmosphere where we are respecting one another and we have peer support.
The day hospital isn’t always the right place for us, and nor is the acute ward.
Some of us need substance abuse help and they don’t understand it here.
“We need help in a crisis.”
“We need a Crisis House and crisis support.”
“We need help to prevent suicide attempts.”
“We can feel very unsupported and need help earlier.”
“We need mentoring/buddying:
A befriending service
One to ones
Groups can be too deep for us”
“We need groups when we are ready:
Some service user led groups”
“We need education:
“We need practical help:
Child protection issues
Legal/Criminal justice support”
“We like the idea of alternative therapies:
“Don’t forget gay and lesbian support”
“We need the right kind of therapies to be available:
Counselling and psychotherapy”
“We need all services to be working together:
Medication if we need it
A strong link to statutory services”
“We need a safe base where we are understood and where we can help each other, where we can get help in a crisis 24/7, and where we can get and give ongoing support.”
North Essex Mental Health Partnership NHS Trust (NEMHPT);
Local Service Users of the North Essex Personality Disorder Support Group;
CHUMS - self advocacy group;
NEST - service user empowerment network;
Phoenix Group Homes;
Uttlesford PCT Lead Commissioners for Mental Health;
Colchester & Tendring PCT's, & Witham, Braintree & Halstead Care Trust;
Colchester Night Shelter;
The A&E Department - Colchester General Hospital;
Colchester Borough Council;
Essex Police.A Multi-Agency Group
The Haven Project is located in the Colchester, Essex area and has a geographical catchment of Tendring and Colchester PCT areas, plus the north-eastern part of the Witham, Braintree & Halstead PCT area (20 mile radius). This area has a population of approximately 334,000.
Advocacy and mediation practical help with benefits, housing, relationships
Health and Fitness and Nutrition Groups
Activity groups such as Arts and Crafts and Gardening
Complementary therapies such as reflexology and head massage
in a non-judgmental but safe environment.
Life Skills training focusing on
Creative Writing Group
Dialectical Behaviour Therapy Group
Study and Work SupportDay Services - A Tiered Approach
1. A 24 hour crisis phone line and mobile to text in times of crisis.
2. A non-residential Safe Centre environment providing daytime and night crisis support for up to six people at any time.
3. A short stay residential facility provides a calm, quiet location where people benefit from time away from their usual environment for up to four people.