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How to Incorporate Consumers, Including Patients, into Guideline Development

How to Incorporate Consumers, Including Patients, into Guideline Development. Theme II, Breakout Session 3. Panel. Rebecca Burkholder, National Consumers League Barbara Warren, National Coalition for Lesbian, Gay, Bisexual and Transgender Health Terrie Cowley , The TMJ Association.

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How to Incorporate Consumers, Including Patients, into Guideline Development

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  1. How to Incorporate Consumers, Including Patients, into Guideline Development Theme II, Breakout Session 3

  2. Panel • Rebecca Burkholder, National Consumers League • Barbara Warren, National Coalition for Lesbian, Gay, Bisexual and Transgender Health • Terrie Cowley, The TMJ Association

  3. Resources • G-I-N PUBLIC Toolkit: Patient and Public Involvement in Guidelines http://www.g-i-n.net/activities/gin-public/toolkit • Serving on Clinical Practice Guidelines Video, by Richard Rosenfeld for Consumers United for Evidence-Based Healthcare (CUE) http://us.cochrane.org/serving-clinical-practice-guideline-panel

  4. Strategies to Involve Consumers & Patients in Guidelines • Consultation • Collecting information from the public to inform guideline development • Participation • Participation of patients and consumers in guideline development groups • Communication • Dissemination and implementation of guidelines; plain language versions of guidelines; patient decision aids

  5. Participation of Consumers and Patients in Guideline Development • Goal • Foster mutual learning between health professionals and consumers & patients • Facilitate compromise and consensus on decisions about guidelines

  6. Participation of Consumers and Patients in Guideline Development • Recruitment • Nomination or open • Support • Training • Practical • Informal • Financial • Out of pocket • Compensation for time and effort • Moderating – the importance of the Chair • Structure of meetings – calls, in-person • Encouraging broad participation • After Development • Recognition • Plain language version

  7. Issues • How to foster consumer and patient involvement? (How to make is easy?) • What are the do’s and don’ts for involving consumers? • Other?

  8. Thank you! • Check out the resources: • G-I-N PUBLIC Toolkit: Patient and Public Involvement in Guidelines http://www.g-i-n.net/activities/gin-public/toolkit • Serving on Clinical Practice Guidelines Video, by Richard Rosenfeld for Consumers United for Evidence-Based Healthcare (CUE) http://us.cochrane.org/serving-clinical-practice-guideline-panel

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