1 / 14

R. Laumond, J. Baron Lysio, M-L Doizé

Education of patients with primary hypogammaglobulinemia for S/C Ig self-administration The Saint-Louis Hospital (Paris) Experience. R. Laumond, J. Baron Lysio, M-L Doizé. Aims of the approach. Allowing for autonomy of patients at home Reducing the costs for the health system

arien
Download Presentation

R. Laumond, J. Baron Lysio, M-L Doizé

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript


  1. Education of patients with primary hypogammaglobulinemia for S/C Ig self-administrationThe Saint-Louis Hospital (Paris) Experience R. Laumond, J. Baron Lysio, M-L Doizé

  2. Aims of the approach • Allowing for autonomy of patients at home • Reducing the costs for the health system • Modifying the use of out-patient hospital

  3. The educational booklet

  4. Week 1, 2, … Evaluation scale Hygiene and installation Hand washing, Asepsis Waste Peremption of products … Technical care Date, and validation: -Demonstration -Made « alone or with » -Acquired

  5. Inclusion • S/C administration of Ig is a medical decision • Eligibility Criteria : • Voluntary contribution • Cognitive capacity • Subjective assessment of skilfulness • Rule approval

  6. Training period • 3 steps for each patient • Demonstration (showing & handling by a nurse) • Made « with » (handling with a nurse) • Made « alone » (validated by a nurse) • The step made « alone » can be carried on for several weeks until autonomy is reached

  7. Practical course

  8. Hand washing • Work surface organization • Syringe manipulation

  9. Programming and connecting the ambulatory infusion pump • Draining the tubulure after adjusting it on the syringe

  10. Made alone Decontamination of the cutaneous surface • Installation and occupation of the patient during infusion as wished • Subcutaneous injection

  11. Following at home • Control session planned 3 months later in out-patient hospitalisation • Thereafter, hospitalisation or consultation every 6 months • Call center for questions or emergency

  12. QuantitativeResults • 48/58 substituted patients included • 159 out-patient sessions (Median = 3 per patient) • 1 failure (patient decision) • Few side effects (only local reactions) • Treatment could be resumed in all patients

  13. Qualitative results • Most patients (95%) were satisfied with Ig s/c administration : • More comfortable and painless than Ig IV • Less time consuming • Satisfied with the process

  14. Conclusion

More Related