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Reducing Disparities through Research and Translation. AHRQ 2011 Sue Swenson, DAS USED/OSERS sue.swenson@ed.gov. People with Disabilities. About 19% of Americans have functional limitations About 12% of Americans have a “ severe ” disability

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reducing disparities through research and translation

Reducing Disparities through Research and Translation

AHRQ 2011

Sue Swenson, DAS

USED/OSERS

sue.swenson@ed.gov

people with disabilities
People with Disabilities

About 19% of Americans have functional limitations

About 12% of Americans have a “severe” disability

Source: DREDF, Improving Health and Access to Health Care for People with Disabilities, May 2009

people who report fair or poor health
People Who Report Fair or Poor Health

Asians - 8%

Blacks - 18%

American Indian/Alaska Native - 22%

Hispanic - 23%

People with Disability - 40%

Source: “Health Disparities Chart Book on Disability and Racial and Ethnic Status in the United States,” IOD/UNH, 2011

questions of value
Questions of value
  • Is disability stigmatized?
    • “This is a good enough outcome.”
    • “Disability is not compatible with health.”
    • “Those people need to see someone who specializes in their disability.”
    • “People would rather die than live with disability.”
    • “It costs too much to include people with disabilities in my practice.”
    • “I have time limits.”
doctor teacher
Doctor = Teacher
  • The unspoken lesson:
    • If you can’t get to the doctor’s office,
    • If the office doesn’t take your insurance,
    • If you can’t get into the doctor’s office,
    • If you can’t get onto the examining table,
    • If you can’t access testing or treatment equipment,
    • If you can’t understand diagnostic questions, risks and instructions,
    • If you don’t have the community support you need to carry out recommendations,
doctor teacher1
Doctor = Teacher
  • The unspoken lesson:
    • You don’t belong here.
    • Your health does not matter.
the marketing discipline
The Marketing Discipline
  • Carve nature at its joints
  • Understand segments
  • Shared want, need, and way to pay
  • Shared information channels
segments
Segments
  • Racial minorities
  • Ethnic minorities
  • Multi-ethnic identity
  • Density/ urbanicity
  • Income/poverty
  • Lifestyle/values
  • Disability
  • Gender
  • Age
proprietary market research
Proprietary Market Research

One example: Nielsen Claritas PRIZM

There are 66 PRIZM segments

slide10

Knowledge Translation:

  • Cross-cutting effort, like technology
  • F/T staff in a small office
    • pimjai.sudsawad@ed.gov
  • Invitational training
slide11

NIDRR-funded

Center on Knowledge Translation and Technology Transfer: KT4TT

SUNY/Buffalo

http://www.kt4tt.buffalo.edu

managing the learning curve
Managing the learning curve
  • Competition as a source of innovation
    • Market share = learning curve
    • Segmentation is a marketing strategy – not a goal.
    • Can market penetration result from grant funding?
  • New funding mechanisms?
    • Part for-profit, part non-profit
      • Stanford Social Innovation Review
    • Is there a cross-government effort to look at this?
    • Could ICDR look at this?
ethics systems and quality
Ethics, Systems and Quality
  • Measure inputs, outputs, results, outcomes and impacts
  • For those you serve and those you should serve