A relevant example for information sharing • CaringBridge.org -- http://www.caringbridge.org/ • For example, http://www.caringbridge.org/visit/depasquale
An overall message • Increasing responsibility of the patients to be in charge of their treatments. • Studies show that more engaged and involved patients respond better to treatment • Health care is fragmented and specialists do not communicate with each other, except through the specialist • Health care is part of a larger life picture that involves activities not directly related to the health treatments.
Fragmentation • Various doctors • Caregivers • Family • Work • Other interests and activities • How much should each know? Whose responsibility is it that the treatment is right?
Personal Health Records • Tools provide record of health history to the patient. • Information generally web based • Access needs to be open to those who need the information to treat the patient, but protected from those who should not see it. • Keep a record of medications, allergic reactions, potential interactions of medications, past conditions, surgery, test results, etc.
Data collection • Home health management technologies collect information about conditions • Pacemakers can be read through a phone connection to provide an update on the patient’s condidition from home • Diabetes monitors check blood sugar levels • Some devices monitor for a number of conditions and send an alert if a danger is detected • These are especially valuable for people with chronic conditions who live alone.
Study findings demostrate needs: • Information is fragmented • People do not always know what to do with information when the have it • People forget or cannot find information when it is needed • People can become overwhelmed by available information • People’s approach to PIM needs support
Further details, from radiology • Radiology & IT presentation by Dr. David Meyer