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The Role of Digital Stories in Supporting User Involvement and Participation Quality Services ~ User Views SSRG Event 17 th March 2008 Karen Barrie, ISD Overview What are digital stories? Using digital stories in health and social care Sharing the digital storytelling approach

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the role of digital stories in supporting user involvement and participation

The Role of Digital Stories in Supporting User Involvement and Participation

Quality Services ~ User Views

SSRG Event 17th March 2008

Karen Barrie, ISD

overview
Overview
  • What are digital stories?
  • Using digital stories in health and social care
  • Sharing the digital storytelling approach
  • Viewing a digital story
what are digital stories
What are ‘digital stories’?
  • Short, powerful, presentations that combine voice, still images and music into a story between 2 and 5minutes in length
  • Told in the storyteller’s own words and voice
  • The storyteller may be helped to shape the story, but ultimately decides what to say
  • And retains editorial control
using digital stories in health and social care
Using digital stories in health and social care
  • The ‘digital story’ is not an attempt to describe what happens in care settings most of the time
  • Rather, it allows the voices of ‘ordinary’ service users and carers to be heard
  • Providing a gentle yet powerfulreminder of what health and social care is all about
  • As a process, ‘digital storytelling’ supports active and meaningful participation
  • And may finding useful applications within user and carer consultation & engagement, education & training, quality assurance, service improvement efforts, informing national debate etc.
using digital stories in health and social care5
Using digital stories in health and social care

Adapted from the CHD Collaborative ~ Discovery Interviews 2005

using digital stories in health and social care6
Using digital stories in health and social care
  • Good use has been made of digital stories within health care in England, notably through the Patient Voices programme http://www.patientvoices.org.uk
  • Successful, but limited application in Scotland e.g. NHS Lanarkshire stroke service http://www.strokestories.scot.nhs.uk
  • The storytelling approach has served as a somewhat ad hoc means of uncovering the experiences of people who use care service and their carers
  • Identified an opportunity to try to situate digital storytelling within the wider service improvement and quality of care agenda
  • Involvement of JIT = ideal means of doing so
the whose care whose lives story collection
The ‘Whose Care, Whose Lives’ Story Collection
  • 18 stories developed with storytellers living in different care settings in Lanarkshire, Moray and Orkney
  • A highly enjoyable experience
  • Providing powerful statements that highlight the impact care services have on the quality of life for the vulnerable
  • Reinforcing the UDSET outcomes
  • (Re-)setting in the context of individual lives
the whose care whose lives story collection8
The ‘Whose Care, Whose Lives’ Story Collection
  • Collection made widely available on DVD
  • Finding applications in various national and local contexts
  • Causing service providers and decision makers to take a moment to reflect
  • And hopefully to think creatively about how to improve practices, services, outcomes…. . and ultimately people’s lives
other story collections
Other Story Collections
  • Work is currently underway to build on the ‘Whose Care, Whose Lives’ stories
    • UDSET ~ Usage Experiences
    • Intermediate Care
    • Housing
    • Telecare
  • In moving forward, need to think very carefully about how digital stories might be used........... misused, or abused
sharing the digital storytelling approach
Sharing the digital storytelling approach
  • A short project ‘Digital Storytelling In Health and Social Care’ is supporting the application of the approach in 3 care locations to:
    • Determine the safeguards, teaching methods, facilitation skills and technologies needed to embed the making and effective use of digital stories in local care communities
    • Inform development of a toolkit to support implementation in different contexts
    • Assess the value that digital storytelling adds to the service improvement and quality of care agenda
sharing the digital storytelling approach11
Sharing the digital storytelling approach
  • Initial 3-day training workshop held in November 2007
  • Participants preparing for local use within:
    • Staff awareness raising and training programmes
    • Service evaluation and review
    • Sharing employment experiences of adults with physical disabilities / learning difficulties
  • Follow-up local training and storytelling workshops planned throughout March and April
  • Evaluation of contribution of digital storytelling to service improvement built in
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