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Celiac Consumer: Survey Results. Pam Cureton, RD, LDN University of Maryland, School of Medicine Center for Celiac Research. The Center for Celiac Research Presents:. Making Tracks for Celiacs: A Patient Education Day July 9, 2005. Demographics.

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celiac consumer survey results

Celiac Consumer: Survey Results

Pam Cureton, RD, LDN

University of Maryland, School of Medicine

Center for Celiac Research

the center for celiac research presents
The Center for Celiac Research Presents:

Making Tracks for Celiacs:

A Patient Education Day

July 9, 2005

demographics
Demographics
  • Sample Size = 57 (10 - Males, 46 - Females)
  • Age
    • Survey completers: 11-78 years, mean = 47 years
    • Person on GFD: 3-78 years, mean = 43.5
  • Income
    • Participants predominantly High SES (>$70K/year)
  • Education
    • Most had some college or more (90%)
  • Ethnicity
    • Predominantly European American (89.5%)
  • Time on GFD
    • 2+ years (52%; range <1month – 5+ years)
current diet
Current Diet
  • When asked how strictly they followed the GFD, participants said:
    • They never ingest gluten (53%)
    • Try hard not to ingest gluten (37%)
    • Try not to ingest gluten (3.5%)
    • Knowingly Cheat (5%)
ingredients participants have doubts about
Modified Food Starch (N=44)

Malt (N=37)

Artificial Flavors (N=36)

Starch (N=35)

Caramel (N=34)

Hydrolyzed Vegetable Protein (N=32)

Natural Flavors (N=26)

Kamut (N=23)

Distilled Alcohol (N=15)

Millet (N=13)

Vanilla (N=13)

Dextrin (N=12)

Vinegar (N=12)

Buckwheat (N=8)

Dextrose (N=7)

Sorbitol (N=7)

Masa Flour (N=6)

Rice Syrup (N=6)

Corn Gluten (N=4)

Bean Flour (N=2)

Tapioca Starch (N=2)

Vegetable Oil (N=2)

Ingredients Participants Have Doubts About
what does gf mean
What Does GF Mean?
  • Participants were asked “If you see ‘Gluten Free’ on a label, what does it mean to you?”
    • No detectable levels of gluten – safe to eat
    • Trace amounts of gluten (<10mg) – probably safe to eat
    • May contain gluten – may not be safe to eat
    • Definitely contains gluten – not safe to eat
what does gf mean7
What Does GF Mean?
  • No participant answered “Definitely contains gluten”
  • 71% reported that it means “No detectable gluten”
  • 27% reported “Trace amounts”
  • 2% reported “May contain gluten”
what should gf mean
What Should GF Mean?
  • Participants were asked “What do you think ‘Gluten Free’ on a label should mean?”
    • No detectable levels of gluten – safe to eat
    • Trace amounts of gluten (<10mg) – probably safe to eat
    • May contain gluten – may not be safe to eat
    • Definitely contains gluten – not safe to eat
what should gf mean9
What Should GF Mean?
  • No participant answered “Definitely contains gluten”
  • No participant answered that GF should mean “May contain gluten”
  • 83% reported that it should mean “No detectable gluten”
  • 17% reported “Trace amounts”
slide10

Difference Between Perception and Facts on GF Meaning

What Does GF Mean?

What Should GF Mean?

how do you identify gf foods
How Do You Identify GF Foods?
  • Most common answers included:
    • Read Labels (N = 44)
    • Rely on Foods Labeled “GF” (N = 32)
    • Call the Manufacturer (N = 25)

*Participants were allowed to check more than one answer

influence purchase of gf foods
Influence Purchase of GF Foods?
  • Influence Purchase Decision if Labeled GF vs. if Not Labeled?
    • When faced with a questionable ingredient, 24 participants reported that they would rely on foods labeled “GF”.
      • 35 call the manufacturer
      • 20 rely on safe food list

*Participants were allowed to check more than one answer

likely to buy if manufactured in non dedicated plant
Likely to Buy if Manufactured in Non-Dedicated Plant?
  • Participants were asked, “How likely are you to purchase a food item that is GF but manufactured in a plant that also processes foods containing Gluten?”
    • Absolutely will not purchase
    • Might Purchase
    • Would Probably Purchase
    • Would Definitely Purchase
likely to buy if manufactured in non dedicated plant14
Likely to Buy if Manufactured in Non-Dedicated Plant?
  • Participants reported:
    • 48% - Might Purchase
    • 33% - Would Probably Purchase
    • 9% - Would Definitely Purchase
    • 9% - Absolutely will not purchase
limitations
Limitations
  • May not Generalize Well to All Patients with CD.
    • Convenience Sample of Conference Attendees.
    • Predominantly High Income, European American Participants with Average Age of 47 years.
    • Small Sample Size.
  • Results are Correlational in Nature.
  • Self Report.