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Coping with life transitions in young adults with celiac disease. Presented by Dr Suzanne Dupuis-Blanchard, PhD RN Canadian Celiac Association National Conference - Moncton, NB May 26 th , 2007. Overview of session. Notions on transitions Coping with transitions Examples

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coping with life transitions in young adults with celiac disease

Coping with life transitions in young adults with celiac disease

Presented by

Dr Suzanne Dupuis-Blanchard, PhD RN

Canadian Celiac Association National Conference - Moncton, NB

May 26th, 2007

overview of session
Overview of session
  • Notions on transitions
  • Coping with transitions
  • Examples
    • College / university
    • Social relationships
    • Travel
  • Forum for discussion
slide3

What is a transition?

    • When one’s current reality is disrupted
    • A passage from one state to another
  • Can last 6-12 months
  • Crisis likely to occur at 6 months
types of transitions
Types of transitions

Developmental (ex: life cycle)

Situational (ex: changes in role, relocation)

Health-illness (ex: illness, rehab)

Organizational (ex: change in the environment)

for young adults
For young adults

Developmental

transitions

Health/illness

transition

Situational

transition

Result of these…

factors that influence transitions
Factors that influence transitions
  • Personal conditions
    • Meaning and expectations attached to the transition
    • Cultural beliefs and attitudes
    • Level of knowledge
    • Prior transition skills
    • Support (family and friends)
    • Economic security
slide8

Community conditions

    • Level of support (work, health professionals)
    • Advice and answers to questions
  • Societal conditions
    • Stereotypes and marginalization
slide9

Initiating

transition

Disrupted

reality

Reality

reconstructuring

Found

identity

Reality

Uncertainty

Process of transitions

Resolution of uncertainty and reconstruction

of reality

slide10

To facilitate transitions

    • Awareness that changes are occurring
    • Engagement in the process of transition
    • Realization that changes and differences in identities, roles, relationships, abilities and patterns of behavior will or are happening
    • Recognition of emotions: anxiety, insecurity, frustration, depression, low self-esteem and loneliness
coping with transitions
Coping with transitions

Awareness that previous reality is no longer available

Confronting circumstances

Acknowledging the irreversibility

Engaging in information seeking

Deciding to pursue health behaviours (conviction)

Prior coping strategies

two levels of adaptation
Two levels of adaptation
  • Behavioural
    • Actions
  • Cognitive
    • How you think
examples
Examples
  • Transitions in young adults
    • Going away to college / university
      • Cooking
      • New friends / parties
    • Ongoing social relationships
      • Friends
      • Work
      • Dating / Life partner
    • Family life
      • Travel
slide14

Doctor: “Oh, you just have to eliminate gluten from your diet; it’s simple, no medication, no surgeries, a diet is all you need”.

Here’s how to survive…

college university
College / University

Learn to cook gluten-free; get familiar with food ingredient lists; plan for leftovers; freeze

Plan ahead for lunch: sandwich, salads, soups

Going out? Bring your own bread and cookies

Ask, ask, ask

Practice explaining celiac disease in simple words

Living in dorms: meet with food services; special permission for toaster in room; more space; kitchenette

social relationships
Social relationships

Plan ahead; call and ask

Don’t become a “closet” celiac

Make suggestions: pick the restaurant; bring a food you can eat

When in doubt: ask

travel
Travel

Plan ahead; check web sites for information on stores, restaurants

Bring food with you; peanut butter, bread, fruits, vegetables

Stop by a restaurant when not busy and ask questions for future meals

Find grocery stores; locate health food stores

Rent a room with kitchenette

Contact local Celiac chapter

other tips
Other tips…

Keep a food diary for ideas

Beware of hidden contamination

Don’t let celiac disease define who your are!

the importance of being gluten free
The importance of being gluten-free…
  • To prevent complications
    • Neurological manifestations (migraines, tingling)
    • Cancer
    • Osteoporosis
    • Depression
    • Infertility
slide20

Take a deep slow breath…

    • There is no cure, but there is no need for prescribed medication;
    • There is no cure, but you know recovery is possible;
    • There is no cure, but you know that you alone are in charge of that recovery;
      • How much better can it get?
and spread the gluten news to family members
…and spread the ‘gluten’ news to family members

In a study of 13 000 people (adults and children):

- 1:133 (with no risk factors) had CD

- 1:22 (first degree relative) had CD

- 1:39 (second degree relative) had CD

Reference: Treem, W.R. (2004). Emerging concepts in celiac disease. Current Opinion in Pediatrics, 16, 552-559.

forum for discussion
Forum for discussion

Do you have any suggestions or comments that could help the person sitting next to you?

slide24
Thank you!

Dr Suzanne Dupuis-Blanchard, PhD RN

School of Nursing

Université de Moncton

Moncton, NB E1A 3E9

Phone: (506) 858-4260

suzanne.dupuis-blanchard@umoncton.ca