Coping with life transitions in young adults with celiac disease. Presented by Dr Suzanne Dupuis-Blanchard, PhD RN Canadian Celiac Association National Conference - Moncton, NB May 26 th , 2007. Overview of session. Notions on transitions Coping with transitions Examples
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Dr Suzanne Dupuis-Blanchard, PhD RN
Canadian Celiac Association National Conference - Moncton, NB
May 26th, 2007
Developmental (ex: life cycle)
Situational (ex: changes in role, relocation)
Health-illness (ex: illness, rehab)
Organizational (ex: change in the environment)
Result of these…
Process of transitions
Resolution of uncertainty and reconstruction
Awareness that previous reality is no longer available
Acknowledging the irreversibility
Engaging in information seeking
Deciding to pursue health behaviours (conviction)
Prior coping strategies
Doctor: “Oh, you just have to eliminate gluten from your diet; it’s simple, no medication, no surgeries, a diet is all you need”.
Here’s how to survive…
Learn to cook gluten-free; get familiar with food ingredient lists; plan for leftovers; freeze
Plan ahead for lunch: sandwich, salads, soups
Going out? Bring your own bread and cookies
Ask, ask, ask
Practice explaining celiac disease in simple words
Living in dorms: meet with food services; special permission for toaster in room; more space; kitchenette
Plan ahead; call and ask
Don’t become a “closet” celiac
Make suggestions: pick the restaurant; bring a food you can eat
When in doubt: ask
Plan ahead; check web sites for information on stores, restaurants
Bring food with you; peanut butter, bread, fruits, vegetables
Stop by a restaurant when not busy and ask questions for future meals
Find grocery stores; locate health food stores
Rent a room with kitchenette
Contact local Celiac chapter
Keep a food diary for ideas
Beware of hidden contamination
Don’t let celiac disease define who your are!
Take charge of your health… diet; it’s simple, no medication, no surgeries, a diet is all you need”.
In a study of 13 000 people (adults and children):
- 1:133 (with no risk factors) had CD
- 1:22 (first degree relative) had CD
- 1:39 (second degree relative) had CD
Reference: Treem, W.R. (2004). Emerging concepts in celiac disease. Current Opinion in Pediatrics, 16, 552-559.
Do you have any suggestions or comments that could help the person sitting next to you?