Coping with life transitions in young adults with celiac disease
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Coping with life transitions in young adults with celiac disease. Presented by Dr Suzanne Dupuis-Blanchard, PhD RN Canadian Celiac Association National Conference - Moncton, NB May 26 th , 2007. Overview of session. Notions on transitions Coping with transitions Examples

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Coping with life transitions in young adults with celiac disease l.jpg

Coping with life transitions in young adults with celiac disease

Presented by

Dr Suzanne Dupuis-Blanchard, PhD RN

Canadian Celiac Association National Conference - Moncton, NB

May 26th, 2007


Overview of session l.jpg
Overview of session disease

  • Notions on transitions

  • Coping with transitions

  • Examples

    • College / university

    • Social relationships

    • Travel

  • Forum for discussion


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  • What is a transition? disease

    • When one’s current reality is disrupted

    • A passage from one state to another

  • Can last 6-12 months

  • Crisis likely to occur at 6 months


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Types of transitions disease

Developmental (ex: life cycle)

Situational (ex: changes in role, relocation)

Health-illness (ex: illness, rehab)

Organizational (ex: change in the environment)


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For young adults disease

Developmental

transitions

Health/illness

transition

Situational

transition

Result of these…


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STRESS disease


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Factors that influence transitions disease

  • Personal conditions

    • Meaning and expectations attached to the transition

    • Cultural beliefs and attitudes

    • Level of knowledge

    • Prior transition skills

    • Support (family and friends)

    • Economic security


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  • Community conditions disease

    • Level of support (work, health professionals)

    • Advice and answers to questions

  • Societal conditions

    • Stereotypes and marginalization


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Initiating disease

transition

Disrupted

reality

Reality

reconstructuring

Found

identity

Reality

Uncertainty

Process of transitions

Resolution of uncertainty and reconstruction

of reality


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  • To facilitate transitions disease

    • Awareness that changes are occurring

    • Engagement in the process of transition

    • Realization that changes and differences in identities, roles, relationships, abilities and patterns of behavior will or are happening

    • Recognition of emotions: anxiety, insecurity, frustration, depression, low self-esteem and loneliness


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Coping with transitions disease

Awareness that previous reality is no longer available

Confronting circumstances

Acknowledging the irreversibility

Engaging in information seeking

Deciding to pursue health behaviours (conviction)

Prior coping strategies


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Two levels of adaptation disease

  • Behavioural

    • Actions

  • Cognitive

    • How you think


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Examples disease

  • Transitions in young adults

    • Going away to college / university

      • Cooking

      • New friends / parties

    • Ongoing social relationships

      • Friends

      • Work

      • Dating / Life partner

    • Family life

      • Travel


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Doctor: “Oh, you just have to eliminate gluten from your diet; it’s simple, no medication, no surgeries, a diet is all you need”.

Here’s how to survive…


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College / University diet; it’s simple, no medication, no surgeries, a diet is all you need”.

Learn to cook gluten-free; get familiar with food ingredient lists; plan for leftovers; freeze

Plan ahead for lunch: sandwich, salads, soups

Going out? Bring your own bread and cookies

Ask, ask, ask

Practice explaining celiac disease in simple words

Living in dorms: meet with food services; special permission for toaster in room; more space; kitchenette


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Social relationships diet; it’s simple, no medication, no surgeries, a diet is all you need”.

Plan ahead; call and ask

Don’t become a “closet” celiac

Make suggestions: pick the restaurant; bring a food you can eat

When in doubt: ask


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Travel diet; it’s simple, no medication, no surgeries, a diet is all you need”.

Plan ahead; check web sites for information on stores, restaurants

Bring food with you; peanut butter, bread, fruits, vegetables

Stop by a restaurant when not busy and ask questions for future meals

Find grocery stores; locate health food stores

Rent a room with kitchenette

Contact local Celiac chapter


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Other tips… diet; it’s simple, no medication, no surgeries, a diet is all you need”.

Keep a food diary for ideas

Beware of hidden contamination

Don’t let celiac disease define who your are!


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The importance of being gluten-free… diet; it’s simple, no medication, no surgeries, a diet is all you need”.

  • To prevent complications

    • Neurological manifestations (migraines, tingling)

    • Cancer

    • Osteoporosis

    • Depression

    • Infertility


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  • Take a deep slow breath… diet; it’s simple, no medication, no surgeries, a diet is all you need”.

    • There is no cure, but there is no need for prescribed medication;

    • There is no cure, but you know recovery is possible;

    • There is no cure, but you know that you alone are in charge of that recovery;

      • How much better can it get?


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Take charge of your health… diet; it’s simple, no medication, no surgeries, a diet is all you need”.


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…and spread the ‘gluten’ news to family members diet; it’s simple, no medication, no surgeries, a diet is all you need”.

In a study of 13 000 people (adults and children):

- 1:133 (with no risk factors) had CD

- 1:22 (first degree relative) had CD

- 1:39 (second degree relative) had CD

Reference: Treem, W.R. (2004). Emerging concepts in celiac disease. Current Opinion in Pediatrics, 16, 552-559.


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Forum for discussion diet; it’s simple, no medication, no surgeries, a diet is all you need”.

Do you have any suggestions or comments that could help the person sitting next to you?


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Thank you! diet; it’s simple, no medication, no surgeries, a diet is all you need”.

Dr Suzanne Dupuis-Blanchard, PhD RN

School of Nursing

Université de Moncton

Moncton, NB E1A 3E9

Phone: (506) 858-4260

[email protected]


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