WHO World Alliance for Patient Safety

1. WHO World Alliance for Patient Safety Patients for Patient Safety

3. Patients for Patient Safety: Why? More to offer than simply the �victims� story of tragic medical error. Consumers offer the richest resource of information related to medical errors Patients want to know the truth when things go wrong and be treated with honesty and openness rather than face a closed door of denial Points to make: Although a powerful motivational force for health care providers, patients and families have more to offer than simply the �victims� story of tragic medical error. When something goes wrong patients and families have needs and wants. They want to be told something has gone wrong and for health professionals to be open and involve them in the investigation to find the root causes. Many want to contribute knowledge gained or lessons learnt, but more often than not, are met by a �wall of silence�. Recognising and capturing the unique contribution that patients make to the process of improving patient safety is essential in any patient safety initiative. Those who choose to partner with the health care providers or policy makers are highly knowledgeable, motivated and committed. They want to be treated as equal partners and help to share learning so that errors in healthcare can be reduced. Points to make: Although a powerful motivational force for health care providers, patients and families have more to offer than simply the �victims� story of tragic medical error. When something goes wrong patients and families have needs and wants. They want to be told something has gone wrong and for health professionals to be open and involve them in the investigation to find the root causes. Many want to contribute knowledge gained or lessons learnt, but more often than not, are met by a �wall of silence�. Recognising and capturing the unique contribution that patients make to the process of improving patient safety is essential in any patient safety initiative. Those who choose to partner with the health care providers or policy makers are highly knowledgeable, motivated and committed. They want to be treated as equal partners and help to share learning so that errors in healthcare can be reduced.

4. Results for the WHO in including Patients� Voices WHO are committed to ensuring that the patient voice is at the centre of their work. They want to ensure that patients are guiding and sharing learning and experience to promote a more patient-centred approach to the work of the Alliance resulting in more successful programmes and greater impact. . WHO are committed to ensuring that the patient voice is at the centre of their work. They want to ensure that patients are guiding and sharing learning and experience to promote a more patient-centred approach to the work of the Alliance resulting in more successful programmes and greater impact. .

5. Patients for Patient Safety: Development Guided by an informal Steering Group Patient Champions were selected through an international �Call� for applications Patient Champions were selected from around the world, from developing, developed and transitional countries The Informal Steering Group was formed by invitation through Sir Liam Donaldson the Chair of the Alliance and through Mrs Susan Sheridan who is an active patient advocate who�s family has suffered much from medical error. Patients for Patient Safety is building a network of patients around the world, committed to making healthcare safer, to work in partnership with health professionals and policy makers to learn from their experiences. A Call was sent out around the world to more than 2000 different organizations and individuals and all applications were considered on their own merit. The response was overwhelming and the decisions were difficult. It was important to understand the differences in each region, their particular challenges and ensure a fair balance within the group. Champions were then selected by the Patients for Patient Safety Steering Group based on personal experience of healthcare error and harm, their attempts to partner and make a change, their own achievements and hopes. The Informal Steering Group was formed by invitation through Sir Liam Donaldson the Chair of the Alliance and through Mrs Susan Sheridan who is an active patient advocate who�s family has suffered much from medical error. Patients for Patient Safety is building a network of patients around the world, committed to making healthcare safer, to work in partnership with health professionals and policy makers to learn from their experiences. A Call was sent out around the world to more than 2000 different organizations and individuals and all applications were considered on their own merit. The response was overwhelming and the decisions were difficult. It was important to understand the differences in each region, their particular challenges and ensure a fair balance within the group. Champions were then selected by the Patients for Patient Safety Steering Group based on personal experience of healthcare error and harm, their attempts to partner and make a change, their own achievements and hopes.

6. Patients for Patient Safety: First Workshop Held in the UK in November 2005 in conjunction with the UK Government�s EU Summit on Patient Safety Brought together 21 patient champions from 19 countries The Patient Champions developed a collective vision that expresses the deeper aspirations the group shared Exposure to experts in patient safety both as part of the larger EU Summit and in the more intimate setting with the workshop EU Summit Delegates were exposed to the perspective of a global team of Patients all committed and passionate about forming a partnership to bring about change aiming to reduce harm from medical error. The first workshop of Patients for Patient Safety was run in conjunction with the EU Summit on Patient Safety which was hosted by the UK Presidency of the EU. This event enabled the group of patients to be exposed to the global leaders in Patient Safety and listen to some of the leading European Politicians and policy makers. It also had an incredible impact for all the EU delegates who were exposed to a very real group of global patients who were there because they are committed to making a difference and a change based on an equal partnership. Bringing together patient champions from all of the 6 WHO geographical regions enabled the foundations of a global voice to be built.The first workshop of Patients for Patient Safety was run in conjunction with the EU Summit on Patient Safety which was hosted by the UK Presidency of the EU. This event enabled the group of patients to be exposed to the global leaders in Patient Safety and listen to some of the leading European Politicians and policy makers. It also had an incredible impact for all the EU delegates who were exposed to a very real group of global patients who were there because they are committed to making a difference and a change based on an equal partnership. Bringing together patient champions from all of the 6 WHO geographical regions enabled the foundations of a global voice to be built.

7. Workshop Goals and Achievements Goals were to Form an understanding of patient safety failures that account for the complex system of factors involved Form the foundation for an authentically patient-centred �home� for Patients for Patient Safety Initiative Determine the next steps for Patients for Patient Safety Achievements Formation of a Global Patient Voice London Declaration

8. Patients for Patient Safety: London Declaration We, Patients for Patient Safety, pledge to help create a world in which health care errors harm fewer people. We, gathered in London from 27-30 November 2005 to join together in partnership in an effort to reduce the massive burden of avoidable harm in health care. Risk and uncertainty are constant companions. So we come together in dialogue, participating in care with providers. We unite our strength as advocates for care with less harm in the developing as well as the developed world. We are committed to spreading the word from person to person, town to town, country to country. There is a right to safe health care and we will not let the current culture of error and denial continue. We call for honesty, openness and transparency. We will make the reduction of health-care errors a basic human right that protects human life around the world. We, Patients for Patient Safety, will be the voice of all patients, but especially of those who are now unheard. Together, as partners, we will collaborate in: Devising and promoting programmes for patient safety and patient empowerment. Developing and driving a constructive dialogue with all partners concerned with patient safety. Establishing systems for reporting and dealing with health-care harm on a worldwide basis. Defining best practices that deal with health-care harm of all kinds and promote those practices throughout the world. In honor of those who have died, those who have been left disabled and our loved ones today, we will strive for excellence, so that all people receiving health care are as safe as possible, as soon as possible. This is our pledge of partnership. January 17, 2006

10. Patients for Patient Safety: Core Values COLLECTIVE OPENESS HONESTY PARTNERSHIP EMPOWERMENT REDUCTION IN HARM DUE TO MEDICAL ERROR COLLECTIVE � Patients for Patient Safety and Patient Champions are a collective global voice, striving to work together with the World Alliance in the effort to prevent all avoidable harm in health care. OPENESS � Patients for Patient Safety and Patient Champions promote open and honest relationships and dialogue between all stakeholders, professional and consumer. HONESTY � Patients for Patient Safety and Patient Champions promote and expect honesty in dialogue and communication PARTNERSHIP � Patients for Patient Safety and Patient Champions partner with health professionals, policy makers and patient communities to create forums for dialogue and effective mechanisms to build safer health care systems around the world building on, and through, the World Alliance. EMPOWERMENT � Patients for Patient Safety and Patient Champions raise awareness and promote issues around Patient Safety to empower patients and health professionals to bring about effective change through education and open, honest dialogue. REDUCTION IN HARM DUE TO MEDICAL ERROR - Patients for Patient Safety and Patient Champions strive to reduce harm through medical error in a professional, transparent and honest partnership with all stakeholders in patient safety development and through the World Alliance, by sharing knowledge, experience, lessons and challenges in an open and meaningful dialogue. COLLECTIVE � Patients for Patient Safety and Patient Champions are a collective global voice, striving to work together with the World Alliance in the effort to prevent all avoidable harm in health care. OPENESS � Patients for Patient Safety and Patient Champions promote open and honest relationships and dialogue between all stakeholders, professional and consumer. HONESTY � Patients for Patient Safety and Patient Champions promote and expect honesty in dialogue and communication PARTNERSHIP � Patients for Patient Safety and Patient Champions partner with health professionals, policy makers and patient communities to create forums for dialogue and effective mechanisms to build safer health care systems around the world building on, and through, the World Alliance. EMPOWERMENT � Patients for Patient Safety and Patient Champions raise awareness and promote issues around Patient Safety to empower patients and health professionals to bring about effective change through education and open, honest dialogue. REDUCTION IN HARM DUE TO MEDICAL ERROR - Patients for Patient Safety and Patient Champions strive to reduce harm through medical error in a professional, transparent and honest partnership with all stakeholders in patient safety development and through the World Alliance, by sharing knowledge, experience, lessons and challenges in an open and meaningful dialogue.

11. Patients for Patient Safety: The Future Work with and integrate patient involvement into all work strands of the World Alliance Regional Workshops in at least 6 regions during 2006/07 Intense support to areas of greatest challenge Advocacy and networking on a national and regional basis

12. Patients for Patient Safety: How Advocacy and Communication Support WHO Regional Office Support to Champions Regional Workshops � build patient networks Participation in other strand areas� Targeted resources for Champions Collect stories of experience of champions and others Review challenges of particular countries to feed into development of further support Promotional Materials to help raise awareness Support packages are being developed to assist Champions in advocacy and communication strategies at a local level. PFPS will foster networks and build relationships between champions and their regional WHO focal points for Patient Safety so that Champions can work along side WHO to develop appropriate and effective steps forward. PFPS will run 3 regional workshops in 2006 to begin to build a wider regional network of patients and consumers who are advocating for patient safety and to strengthen the patient voice at a regional level. Opportunities will be identified for champions to become involved in the other areas of the world alliance. Two champions are already sitting on a Patient Involvement Task Force for the Global Patient Safety Challenge and looking into patient involvement in Hand hygiene compliance. PFPS will support champions to develop in-country activities through targeted resources It is vital that stories and experiences of patients around the world are collected and shared amongst the wider health communities. It is important that PFPS continues to grow and develop and therefore a process of continual review of support and challenges that patients and champions face is essential in providing appropriate and effective support. The PFPS team are designing and producing a variety of publicity materials that will assist in raising awareness of the work of the champions.Support packages are being developed to assist Champions in advocacy and communication strategies at a local level. PFPS will foster networks and build relationships between champions and their regional WHO focal points for Patient Safety so that Champions can work along side WHO to develop appropriate and effective steps forward. PFPS will run 3 regional workshops in 2006 to begin to build a wider regional network of patients and consumers who are advocating for patient safety and to strengthen the patient voice at a regional level. Opportunities will be identified for champions to become involved in the other areas of the world alliance. Two champions are already sitting on a Patient Involvement Task Force for the Global Patient Safety Challenge and looking into patient involvement in Hand hygiene compliance. PFPS will support champions to develop in-country activities through targeted resources It is vital that stories and experiences of patients around the world are collected and shared amongst the wider health communities. It is important that PFPS continues to grow and develop and therefore a process of continual review of support and challenges that patients and champions face is essential in providing appropriate and effective support. The PFPS team are designing and producing a variety of publicity materials that will assist in raising awareness of the work of the champions.

13. Return on Investment We identify, organize and orient like-minded consumer patient safety champions who collectively embrace a common foundation of values. We develop a shared mental model of partnership and consistent messages. Together we provide the world�s largest geographically and culturally diverse pool of patient wisdom on patient safety, ensuring authenticity and sustainability for the WAPS. This will ultimately save lives and prevent injuries.

14. �Make no little plans; they have no magic to stir men�s blood� Daniel H. Burnam, Director of Works World�s Columbian Exposition, 1893