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Partnerships to Reduce the Burden of Arthritis: The Arthritis Foundation

Lisa M. Carlson, MPH, CHES Vice President, Population Health Arthritis Foundation. Partnerships to Reduce the Burden of Arthritis: The Arthritis Foundation. National Conference on Health Education and Health Promotion and the American Association for Health Education Summer Institute

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Partnerships to Reduce the Burden of Arthritis: The Arthritis Foundation

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  1. Lisa M. Carlson, MPH, CHES Vice President, Population Health Arthritis Foundation Partnerships to Reduce the Burdenof Arthritis: The Arthritis Foundation National Conference on Health Education and Health Promotion and the American Association for Health Education Summer Institute June 3, 1999 Washington, D.C.

  2. Our Mission The mission of the Arthritis Foundation is to support research to find the cure for and prevention of arthritis and to improve the quality of life for those affected by arthritis.

  3. Role of the Arthritis Foundation The Arthritis Foundation strives to strengthen outreach and referral, increase awareness of the impact of arthritis and the services of the Arthritis Foundation, and help people make good health decisions through advocacy, support, education and self-management opportunities.

  4. Organizational Strengths • The only national, voluntary health organization working for all people affected by any of the 100 forms of arthritis • More than 50 years of experience advocating for and addressing the needs of people with arthritis

  5. Nationwide network of 150 chapters and branches Volunteer workforce of 400,000+ Membership base of 500,000 Web site: www.arthritis.org 80+ pamphlets, books and videotapes 800# that receives more than 250,000 calls annually More than 150 million media impressions each year National Resources

  6. Chapter Core Competencies • Professional education (MDs, RNs) • Public education and outreach (community, clinic settings) • Advocacy • Patient services (referral by health care provider)

  7. Continuum of Educational Activities Awareness Increased Knowledge Changed Behavior Participation in group programs Occurs in program Education

  8. EDUCATION (to build awareness) 1-H our educational programs Lunch & Learns Press releases Marketing Arthritis Foundation Programs

  9. SELF-MANAGEMENT Arthritis Self-Help Course Lupus Self-Help Course Fibromyalgia Self-Help Course Bone Up on Arthritis Support groups PHYSICAL ACTIVITY Arthritis Foundation YMCA Aquatics Program PACE (People with Arthritis Can Exercise) Joint Efforts Walk with Ease Arthritis Foundation Programs (to develop increased knowledge and changed behavior)

  10. Partnering Organizations • Public Health • Behavioral Risk Factor Surveillance System • Legislation promoting arthritis education and programs • Pharmaceutical companies • Professional associations • medical practitioners • hospitals and other care facilities • Managed care

  11. Public Health Partnerships • Osteoporosis Initiatives in New Jersey • Objectives • improve quality of life for people with osteoporosis through peer support groups • train support group facilitators • provide public forums, Speaker’s Bureau programs on osteoporosis

  12. Public Health Partnerships • Partners -- Advisory Council • American Association of Retired Persons • Older Women’s League • NJ Osteoporosis Self-Help Organization • NJ Department of Health and Senior Services • Successes • support groups underway • Speaker’s Bureau presentations scheduled • Public Forums sites and speakers identified

  13. Managed Care Partnerships • New York Chapter and Group Health Incorporated (GHI) • GHI sponsored the Arthritis Foundation Arthritis Self-Help Course (ASHC) • 18 courses offered to GHI subscribers to learn self-care techniques, pain management, and coping strategies

  14. Managed Care Partnerships • Maryland Chapter and CareFirst Blue Cross Blue Shield • Chapter staff trained CareFirst health educators about arthritis • CareFirst newsletter ran information about foundation services • Chapter staff arranged presenters for arthritis education videos for CareFirst’s Health Today cable TV program

  15. Addressing Diverse Populations • Southern California Chapter Spanish Arthritis Empowerment Program • Community-based program taught in Spanish by lay health educators • Program developed by chapter, Stanford University, Olive View-UCLA Medical Center Foundation • Program focuses on empowering participants to gain control of their arthritis

  16. Addressing Women’s Health • Arthritis Foundation and Older Women’s League (OWL) • Foundation developing quality of life arthritis education program: “Women Over 40 & Arthritis” • OWL to facilitate public education seminars, including health care professionals speaking about arthritis

  17. Building Partnerships No single organization can effectively address the burden of arthritis alone.

  18. To get involved… Contact your local Arthritis Foundation chapter: 1.800.283.7800 www.arthritis.org

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