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how. Kimberly McCartha August 2, 2013. Being how do you feel. Table of Contents. Hold onto hope – each journey is individual. People How you should be. Your Feelings Right Legitimate. Hold onto hope – each journey is individual. Dementia Experience No one signs up

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how

Kimberly McCartha August 2, 2013


Being how do you feel

Being how do youfeel



Hold onto hope each journey is individual
Hold onto hope – each journey is individual

  • People

    • How you should be

  • Your Feelings

    • Right

    • Legitimate


Hold onto hope each journey is individual1
Hold onto hope – each journey is individual

  • Dementia Experience

    • No one signs up

      • Care Partner

      • PWD


Hold onto hope each journey is individual2
Hold onto hope – each journey is individual

Choices

  • Choices

    • GO on Journey or NOT

      • No set time

      • Unknown things to come

      • Alongside PWD

      • Huge personal cost

        • Respected & Supported

        • Not for everyone


Hold onto hope each journey is individual3
Hold onto hope – each journey is individual

  • Choices

    • Overwhelming

      • Despair

      • Anxiety

      • Fear


Hold onto hope each journey is individual4
Hold onto hope – each journey is individual

  • Choices

    • HOPE

      • Good times together

      • Inner peace

      • For support

      • Exceptional care

      • QOL



Become care partners to weather the storm
Become care partners to weather the storm

‘I do not want to be mothered’


Become care partners to weather the storm1
Become care partners to weather the storm

  • Instinct

    • Look after

    • Show care

      • Risk of removing rights

      • Independency

      • Control


Become care partners to weather the storm2
Become care partners to weather the storm

  • Care Partners

    • Negotiate together

    • Harder than carer

      • Looking after someone

  • Not for everyone


Being supportive involves deciding on your purpose together
Being supportive involves deciding on your purpose together

  • Supporting PWD

    • Starts with PWD

      • Journey

      • We join them

      • Their shoes

      • Empathy

      • Choices

      • Enabling to live


Being supportive involves deciding on your purpose together1
Being supportive involves deciding on your purpose together

  • Common purpose

  • Express needs

    • PWD

    • Partner

  • Third Person

    • Dementia

      • Include

      • Postive


  • Being supportive involves deciding on your purpose together2
    Being supportive involves deciding on your purpose together

    • Common purpose

    • Express needs

      • PWD

      • Partner

  • Third Person

    • Dementia

      • Include

      • Postive


  • Closeness is what counts
    Closeness is what counts

    • Sensitive to losses

    • Value self esteem

    • Need reassurance of love/care

    • Closeness needed

      • Heightened

      • Trust feeling rather

      • than facts

      • Communicate now


    Learn about dementia collect strategies
    Learn about dementia –collect strategies

    • EDUCATE

    • Ready for feeling

    • You expert of your experience

      • Publications a plus

    • Person Centerd

      • Represents rights

      • Needs of care partner


    Learn about dementia collect strategies1
    Learn about dementia –collect strategies

    • Focus on Person not disease

      • Everything has meaning

      • Connected to feelings


    Accept someone as they are embrace their reality
    Accept someone as they are-embrace their reality

    • Accept

      • PWD reality

      • Difficult

      • Learn their language

        • Language is feelings not facts

      • Can’t fix them

      • Reality is real


    Using logic and reason generally won t work
    Using logic and reason generally won’t work

    • “Thanks very much, that’s a great help. That will keep the bedding nice and clean”


    Using logic and reason generally won t work1
    Using logic and reason generally won’t work

    • Our Brains

    = Feelings

    = Thinking

    = Action


    Using logic and reason generally won t work2
    Using logic and reason generally won’t work

    • PWD Brains

    = Feelings

    = Action


    Using logic and reason generally won t work3
    Using logic and reason generally won’t work

    • PWD Brains

    I feel and then I act


    Using logic and reason generally won t work4
    Using logic and reason generally won’t work

    • PWD Brains

    Correcting

    • Highten mistake

    • Humiliate

    • Damage self esteem

    Live in their world


    Being person centered with oneself is important
    Being person centered withoneself is important

    • People who are good at being a partner, being caring, being loving, are often not very good

    • at being careful to take care of themselves.


    Being person centered with oneself is important1
    Being person centered withoneself is important

    • Need time & space

    • Watch for stress

    • Receive support

    • Believe your well being matters too!


    Start with being heartfelt as a person centered worker
    Start with being heartfelt as a person centered worker

    Being person centered is about how you are with people. It is not just what you do


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